Book Description

This new book is a practical guide for physicians and other professionals who care for children and adolescents with complex, chronic diseases. These disorders are a challenge because they require multiple services, the information about the disorders are scattered, and the exact treatments are not available in standard texts. To overcome these barriers, this book provides a summary of the clinical features, laboratory diagnosis, and the general and specific treatments needed for optimal care of these children. The key points are presented in a clear, succinct format, providing recommendations that can be implemented within the time span of an office or emergency room visit. Furthermore, pitfalls that are encountered are emphasized and alternatives are suggested. For example, this resource outlines: - Routine and special vaccines that are needed or contraindicated for these children - Interactions between drugs and diseases that could result in surprising adverse effects - Care of medical devices such as gastrostomy tube and nebulizer machine - Specific medical treatment with the appropriate medication dosage - Chronic wound care - Education and rehabilitation recommendations - Patient support groups This book not only provides a disease specific guide, but also instructions for creating a medical home, information on disease-drug interactions, and references for further study.