Book Description
The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.
Author : Dr. Jenni Kleinman Berebitsky
Publisher :
Page : 278 pages
File Size : 11,8 MB
Release : 2018-03-18
Category : Amyotrophic lateral sclerosis
ISBN : 9780692066690
The author shares her insights and perspectives on living with ALS, or Lou Gehrig's disease, sharing both her thoughts on life and happiness as well as practical ideas for daily living with this progressive neuromuscular disease.
Author : Bret Witter
Publisher : Hachette UK
Page : 346 pages
File Size : 33,55 MB
Release : 2013-03-14
Category : Biography & Autobiography
ISBN : 1444762214
THE NEW YORK TIMES BESTSELLER What would you do with one last year? Susan Spencer-Wendel was determined to laugh instead of cry. In June 2011, Susan Spencer-Wendel learned she had amyotrophic lateral sclerosis (ALS) - Lou Gehrig's disease - an irreversible condition that systematically destroys the nerves that power the muscles. She was 44-years-old, with three young children, and she had only one year of health remaining. She decided to live that year with joy. She left her job as a journalist and spent time with her family. She built a meeting place for friends in her backyard. And she took seven trips with the seven most important people in her life. As her health declined, Susan journeyed to the Yukon, Hungary, the Bahamas, and Cyprus. She went to the beach with her sons and to Kleinfeld's bridal shop in New York City with her teenage daughter, Marina, for a glimpse of the wedding she would never attend. She also wrote this book. No longer able to walk or even lift her arms, she tapped it out letter by letter on her iPhone using only her right thumb, the last finger still working. And yet Until I Say Good-Bye is not angry or bitter. It is sad in parts - how could it not be? - but it is filled with Susan's optimism, joie de vivre and sens of humour. It is a book that, like Susan, will make everyone smile. From a hilarious family Christmas disaster to the decrepit monastery in eastern Cyprus where she rediscovered her heritage, Until I Say Good-Bye is Susan Spencer-Wendel's unforgettable gift to her loved ones and to us: a record of their final experiences together and a reminder that every day is better when it is lived with joy.
Author : Dennis Eldridge
Publisher : Tate Publishing
Page : 174 pages
File Size : 34,72 MB
Release : 2007-07
Category :
ISBN : 1602473285
Learn how a thirty-five-year-old fast rising, no nonsense Special Agent of our government turned a diagnosis of certain death into a life saving experience. A.L.S., It Literally Saved My Life author Dennis Eldridge delicately weaves his daily battle for life over death while exposing some of Satan's most prized secrets. Readers will both laugh and cry as they root for a man whose vocabulary doesn't contain the word quit. Readers will also greet with open arms and receptive hearts the bold manner in which author Dennis Eldridge systematically speaks truth into a world infiltrated by myths and dastardly lies from the 'evil one'. A.L.S., It Literally Saved My Life is a long overdue book that individuals should have at their fingertips.
Author : Lisa Genova
Publisher : Simon and Schuster
Page : 336 pages
File Size : 13,15 MB
Release : 2018-03-20
Category : Fiction
ISBN : 1476717826
“Unsparing in her depiction of the disease’s harrowing effects, neuroscientist Genova also celebrates humanity.” —People “Sometimes it’s easier to tell truth in fiction…And she tells it with heart and hope.” —NPR “Her juxtaposition of scientific detail with compassionate, heartfelt storytelling is unparalleled.” —Bookreporter “Every Note Played will grip and gut you.” —The Boston Globe From neuroscientist and New York Times bestselling author of Still Alice comes a powerful exploration of regret, forgiveness, freedom, and what it means to be alive. An accomplished concert pianist, Richard received standing ovations from audiences all over the world in awe of his rare combination of emotional resonance and flawless technique. Every finger of his hands was a finely calibrated instrument, dancing across the keys and striking each note with exacting precision. That was eight months ago. Richard now has ALS, and his entire right arm is paralyzed. His fingers are impotent, still, devoid of possibility. The loss of his hand feels like a death, a loss of true love, a divorce—his divorce. He knows his left arm will go next. Three years ago, Karina removed their framed wedding picture from the living room wall and hung a mirror there instead. But she still hasn’t moved on. Karina is paralyzed by excuses and fear, stuck in an unfulfilling life as a piano teacher, afraid to pursue the path she abandoned as a young woman, blaming Richard and their failed marriage for all of it. When Richard becomes increasingly paralyzed and is no longer able to live on his own, Karina becomes his reluctant caretaker. As Richard’s muscles, voice, and breath fade, both he and Karina try to reconcile their past before it’s too late. Poignant and powerful, Every Note Played is a masterful exploration of redemption and what it means to find peace inside of forgiveness.
Author : Mark B. Bromberg
Publisher : Oxford University Press
Page : 281 pages
File Size : 18,61 MB
Release : 2017
Category : Medical
ISBN : 0190241624
Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.
Author : Cyrus Dunham
Publisher : Little, Brown
Page : 131 pages
File Size : 41,5 MB
Release : 2019-10-15
Category : Biography & Autobiography
ISBN : 0316444952
A "stunning" (Hanif Abdurraqib), "unputdownable" (Mary Karr) meditation on queerness, family, and desire. How do you know if you are transgender? How do you know if what you want and feel is real? How do you know whether to believe yourself? Cyrus Dunham’s life always felt like a series of imitations—lovable little girl, daughter, sister, young gay woman. But in a culture of relentless self-branding, and in a family subject to the intrusions and objectifications that attend fame, dissociation can come to feel normal. A Lambda Literary Award finalist, Dunham’s fearless, searching debut brings us inside the chrysalis of a transition inflected as much by whiteness and proximity to wealth as by gender, asking us to bear witness to an uncertain and exhilarating process that troubles our most basic assumptions about identity. Written with disarming emotional intensity in a voice uniquely his, A Year Without a Name is a potent, thrillingly unresolved meditation on queerness, family, and selfhood. Named a Most Anticipated Book of the season by: Time NYLON Vogue ELLE Buzzfeed Bustle O Magazine Harper's Bazaar
Author : Bruce H. Kramer
Publisher : U of Minnesota Press
Page : 215 pages
File Size : 26,33 MB
Release : 2015-04-01
Category : Health & Fitness
ISBN : 1452945195
Nautilus Book Awards — Silver Award Winner 2010 had been a very good year for Bruce H. Kramer. But what began as a floppy foot and leg weakness led to a shattering diagnosis: he had amyotrophic lateral sclerosis. ALS is a cruel, unrelenting neurodegenerative disease in which the body’s muscles slowly weaken, including those used to move, swallow, talk, and ultimately breathe. There is no cure: ALS is a death sentence. When death is a constant companion, sitting too closely beside you at the dinner table, coloring your thoughts and feelings and words, your outlook on life is utterly transformed. The perspective and insights offered in We Know How This Ends reveal this daily reality and inspire a way forward for anyone who has suffered major loss and for anyone who surely will. Rather than wallowing in sadness and bitterness, anger and denial, Kramer accepted the crushing diagnosis. The educator and musician recognized that if he wanted a meaningful life, then embracing his imminent death was his only viable option. His decision was the foundation for profound, personal reflection and growth, even as his body weakened, and inspired him to share the lessons he was learning from ALS about how to live as fully as possible, even in the midst of devastating grief. At the time Kramer was diagnosed, broadcast journalist Cathy Wurzer was struggling with her own losses, especially her father’s slow descent into the bewildering world of dementia. Mutual friends put this unlikely pair—journalist and educator—together, and the serendipitous result has been a series of remarkable broadcast conversations, a deep friendship, and now this book. Written with wisdom, genuine humor, and down-to-earth observations, We Know How This Ends is far more than a memoir. It is a dignified, courageous, and unflinching look at how acceptance of loss and inevitable death can lead us all to a more meaningful and fulfilling life.
Author : Sarah J. Robinson
Publisher : WaterBrook
Page : 257 pages
File Size : 50,48 MB
Release : 2021-05-11
Category : Religion
ISBN : 0593193539
A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.
Author : Ady Barkan
Publisher : Simon and Schuster
Page : 304 pages
File Size : 40,74 MB
Release : 2019-09-10
Category : Biography & Autobiography
ISBN : 1982111569
In this “gripping story of resistance and the triumph of human will” (Senator Elizabeth Warren), activist and subject of the documentary Not Going Quietly Ady Barkan explores his life with ALS and how his diagnosis gave him a profound new understanding of his commitment to social justice for all. Ady Barkan loved taking afternoon runs on the California coast and holding his newborn son, Carl. But one day, he noticed a troubling weakness in his hand. At first, he brushed it off as carpal tunnel syndrome, but after a week of neurological exams and two MRIs, he learned the cause of the problem: amyotrophic lateral sclerosis, better known as ALS or Lou Gehrig’s disease. At age thirty-two, Ady was given just three to four years to live. Yet despite the devastating diagnosis, he refused to let his remaining days go to waste. Eyes to the Wind is a rousing memoir featuring intertwining storylines about determination, perseverance, and how to live a life filled with purpose and intention. The first traces Ady’s battle with ALS: how he turned the initial shock and panic from his diagnosis into a renewed commitment to social justice—not despite his disability but because of it. The second, told in flashbacks, illustrates Ady’s journey from a goofy political nerd to a prominent figure in the enduring fight for equity and justice whose “selfless activism fighting to make health care a right should be an inspiration to us all” (Senator Bernie Sanders). From one of the most vocal advocates for social justice, Eyes to the Wind’s “primary question is existential: how to live when you are dying? Barkan’s answer is to share, open up, act, and capital-R Resist, and his memoir, clearly and candidly written, establishes a legacy” (Booklist).
Author : Tim Shaw
Publisher : Dexterity
Page : 224 pages
File Size : 39,20 MB
Release : 2017-01-03
Category : Biography & Autobiography
ISBN : 0998325309
If you've ever dreamed of something more in life, this book is for you. Winner in two categories at the 2018 Benjamin Franklin Awards, Blitz Your Life is a collection of reflections from a former NFL linebacker on a life lived fearlessly and challenges from a man with a sense of urgency for impact. These powerful stories range from Tim's time on the football field to the radically different life and goals that resulted from his diagnosis with ALS in 2014. Tim also shares stories of ordinary people who have faced everyday challenges and accomplished extraordinary things. Whether they sweep floors or rebuild neighborhoods or make music, all are living lives that make a difference. At times funny and others serious, Tim encourages readers to write their own goals and stories while pursuing their dreams. Through his whiteboard challenges, he provides practical help that takes readers on a road to success. From his NFL days to his support of ALS awareness, this fighter's message is a courageous call to find and enjoy a life with purpose.