Developing Support Groups for Individuals with Early-stage Alzheimer's Disease


Book Description

Step-by-step guidelines show how to facilitate and administer a support group for early-stage Alzheimer's patients, from selecting group participants to addressing administrative concerns. Includes role plays for practicing ways to handle difficult situations, advice on involving caregivers and family members, and numerous sample interview, screening, evaluation, and observation forms and contractual agreements. A review of the author's study on patient groups includes research questions, procedures, and results. Annotation copyright by Book News, Inc., Portland, OR




The Person with Alzheimer's Disease


Book Description

The first book to provide a comprehensive look at what it's like to have dementia and the subjective experience of living with progressive memory loss. Few families are untouched by Alzheimer's disease or a related dementia. Moving accounts of what it is like to care for someone with this disease have already been published, as well as how-to books that offer caregivers advice and information on coping. But this book is the first to provide a comprehensive report of what it is like to have dementia oneself—the subjective experience of living with progressive memory loss. Each chapter discusses a different aspect of having dementia, from the initial assessment and diagnosis through placement in a nursing home. The discussions are grounded in qualitative research and case studies, which convey the variable and personal nature of the experience. They seek to help clinicians, researchers, students, and caregivers (both professionals and family members) understand the experience of dementia, and thereby to promote better caregiving through a person-centered approach. Contributors: Kathleen Kahn-Denis, Judson Retirement Community; Casey Durkin, a psychotherapist in Cleveland, Ohio; Jane Gilliard, Dementia Voice, UK; Phyllis Braudy Harris, John Carroll University; John Keady, University of Wales, UK; John Killick, University of Stirling, UK; Rebecca G. Logsdon, University of Washington; Charlie Murphy, University of Stirling, UK; Alison Phinney, University of British Columbia, Canada; Steven R. Sabat, Georgetown University; Dorothy Seman, Alzheimer's Family Care Center, Chicago; Lisa Snyder, University of California, San Diego; Jane Stansell, Alzheimer's Family Care Center, Chicago; Gloria Sterin, Shaker Heights, Ohio; Jon C. Stuckey, Messiah College; Robyn Yale, Consultant to the Alzheimer's Association, San Francisco; Rosalie Young, Wayne State University School of Medicine.




Counseling People with Early-stage Alzheimer's Disease


Book Description

People with early dementia face enormous challenges in coping with their condition, yet they typically receive no personalized education or support following the diagnosis. Counseling empowers them to understand and come to terms with the illness while also learning to manage and make healthy adaptations to it. With the rapid increase in people diagnosed with early memory impairment--and demand for better support services--this groundbreaking new guide gives you essential tools to become an integral partner in a process that helps people adjust to the many changes in their lives. Presenting an innovative new counseling framework designed around the unique problems and needs arising from dementia, Counseling People with Early-Stage Alzheimer's Disease guides the counselor and client through the many emotional, practical, and lifestyle issues to be faced. In her new and easy-to-follow protocol, Robyn Yale--an internationally renowned expert on early-stage support groups--explores topics that include identity and self-esteem, resilience, relating to and educating others, stress management, and more. You will come away with an expanded repertoire of specialized skills and support roles--including coach, care planner, mediator, communications specialist, and problem solver--that will dramatically improve your ability to assist people with early dementia to - work through complex emotions - tap into useful coping mechanisms - focus on capabilities - adapt to practical circumstances in their day-to-day activities - retain maximum autonomy over lifestyle preferences - find new ways to move forward with their lives At the heart of this approach is the unique story behind each relationship forged between the person with dementia and the counselor. It is sure to spark inspiration and self-discovery--in yourself and in those with whom you work!







Reducing the Impact of Dementia in America


Book Description

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.




Mayo Clinic on Alzheimer's Disease and Other Dementias


Book Description

A reference on preventing, treating, and coping with dementia, from “one of the most reliable, respected health resources that Americans have” (Publishers Weekly). This book from the world-renowned Mayo Clinic offers an update on what experts know about Alzheimer’s and related dementias, including the latest research into treatment and prevention, ways to live well with dementia, and recommendations for caregivers. While Alzheimer’s disease is the most common type of dementia, many related types also affect adults worldwide, causing loss of memory, reason, judgment, and other cognitive functions. Although the diseases that cause dementia have long been considered unrelenting and incurable, recent advances offer hope. This book includes information about: • What to expect of typical aging and what are the earliest signs of abnormal aging • Memory loss and other forms of cognitive impairment that may lead to dementia • Characteristic features of Alzheimer’s disease and related dementias, including frontotemporal degeneration, Lewy body dementia, and vascular cognitive impairment • The latest research on Alzheimer’s disease and related dementias • Caring for and supporting someone living with dementia Are there ways you can lower your risk? Can dementia be prevented? Can you live well with dementia? If so, how? You’ll find answers to these important questions and more in this book.




Early Psychosocial Interventions in Dementia


Book Description

For the increasing number of people diagnosed with dementia each year, treatment in the early stages can make a significant difference to their quality of life. This book provides examples of psychosocial interventions: taking into consideration the individual, social and environmental aspects of the person's life. It looks at ways of providing support at the time of diagnosis and goes on to explore a variety of interventions and services for the treatment of early dementia. Bringing together the knowledge and experiences of professionals from both the UK and Europe, the contributors describe interventions for both psychological and practical problems with case examples such as memory support groups, art therapies and assistive technologies for use in the home. This accessible book will be essential reading for practitioners and carers working with those with early dementia and will be extremely useful in both professional development and for those new to dementia care.




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Help for the Caring


Book Description

This much-needed bibliography and filmography brings together lists of books about Alzheimer's and caregiving, including biographies, poetry, and even fiction, as well as in instructional and dramatic films.




The Handbook of Memory Disorders


Book Description

The eagerly awaited 2nd edition of this classic handbook is a critical, thorough account of memory disorders relating to neurological processes and to developmental and acquired brain damage and presents comprehensive sections on theory, assessment, treatment and management of memory disorders. Written by a truly international team of experts, this completely updated edition offers an authoritative review of the key areas of research and development in this field. ? Completely updated and expanded ? New sections and chapters reflect many of the biggest growth areas in the field in recent years, such as confabulation, false memory and the frontal lobes ? Written by an international team of experts