Living with Alzhiemers'


Book Description

.....this book is a compilization of Joes World Renown and read blog. It is his story of his journey with this dreaded disease that only has one ending. He tells of how his mind is slowly robbed, the theft of himself and what lies ahead. Book is raw and to the point. It tells the suffers side of the story.




Alzheimer's Disease Memoirs


Book Description

This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality,' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.




Reconsidering Dementia Narratives


Book Description

Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.




Explaining Alzheimer's and Dementia


Book Description

What exactly is Alzheimer's disease and dementia? With Alzheimer's and dementia now reckoned to affect thousands in Britain, this is a question that more and more people are needing to ask. The second book in the new Explaining series, Explaining Alzheimer's and Dementia provides a clear and concise introduction to this fascinating and complex subject. Written in accessible, non-specialist language, it provides an ideal introduction for parents, carers, partners and anyone faced with a loved one or client with either of these conditions.




Tumbleweeds


Book Description

Tumbleweeds are stories of mostly ordinary or normal people placed in or finding themselves involved in freakish or bizarre circumstances. They are, we believe interesting and unusual stories worth reading. Tumbleweeds are cleanly written with little or no profanity despite some violent incidences described therein. It is our belief that all of us are like tumbleweeds in that we too are subjected to the winds that scatter the tumbleweeds in all directions. Just remember that once that bond of birth is broken, the winds of destiny start blowing and never cease throughout our entire lives.




Forget Memory


Book Description

Memory loss can be one of the most terrifying aspects of a diagnosis of dementia. Yet the fear and dread of losing our memory make the experience of the disease worse than it needs to be, according to cultural critic and playwright Anne Davis Basting. She says, Forget memory. Basting emphasizes the importance of activities that focus on the present to improve the lives of persons with Alzheimer's disease and other dementias. Based on ten years of practice and research in the field, Basting’s study includes specific examples of innovative programs that stimulate growth, humor, and emotional connection; translates into accessible language a wide range of provocative academic works on memory; and addresses how advances in medical research and clinical practice are already pushing radical changes in care for persons with dementia. Bold, optimistic, and innovative, Basting's cultural critique of dementia care offers a vision for how we can change the way we think about and care for people with memory loss.




The Poetics and Politics of Alzheimer’s Disease Life-Writing


Book Description

This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.




Alzheimer's Early Stages


Book Description

If someone you love has been diagnosed with Alzheimer's, you may not know where to turn. The early stages can be the most difficult time for relatives and friends because they often don't know much about the disease, or how they can be of help. This compassionate and practical book fills the information gap. It is divided into sections on how Alzheimer's begins, how to help a loved one with the disease, and how families and caregivers can help themselves. This new edition contains updated information on risk factors, treatments and potential means of prevention. A new chapter, "Voices of Experience" contains reflections by family members about what works and what doesn't in handling someone with Alzheimer's. This edition also includes information about two drugs approved since 1999 and the recent decision by the government to cover the cost of counseling and other health related services through Medicare. Resources are updated. Straightforward and pragmatic, yet encouraging, this book is invaluable for anyone with a loved one in the early stages of Alzheimer's disease.




Contemporary Narratives of Dementia


Book Description

This book examines narratives of dementia in contemporary literary texts, studying what is now a pressing issue with deep political, economic, and social implications for many ageing societies. As part of the increasing visibility of dementia in social and cultural life, these narratives pose ethical, aesthetic, and political questions about subjectivity, agency, and care that help us to interrogate the cultural discourse of dementia. Contemporary Narratives of Dementia is a seminal book that offers a sustained examination of a wide range of literary narratives, from auto/biographies and detective fiction, to children’s books and comic books. With its wide-reaching theoretical and critical scope, its comparative dimension, and its inclusion of multiple genres, this book is important for scholars engaging with studies of dementia and ageing in diverse disciplines. Sarah Falcus is a Reader in Contemporary Literature at the University of Huddersfield, UK. She has research interests in contemporary women’s writing, feminism and literary gerontology. She is the co-director of the Dementia and Cultural Narrative (DCN) network. Katsura Sako is an Associate Professor of English, at Keio University, Japan. Her main field of research is in post-war/contemporary British literature, and she has particular interests in gender, ageing and illness. She is a member of the steering committee of the DCN network.




Supportive care for the person with dementia


Book Description

Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach and for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application. Supportive Care for the person with dementia provides just such a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition. It is an ideal resource for all clinicians who are part of an interdisciplinary team caring for sufferers with this debilitating illness.