EBOOK: Carers Perceived


Book Description

Carers are the bedrock of community care, and yet our understanding of how they do and do not fit into the care system is limited. Concern is often expressed about the need to support carers, but the best way to do this is not always clear. This book breaks new ground in exploring the reality of how service providers the doctors, social workers, and community nurses respond to carers. It looks at which carers get help and why, analyzing how age, relationship, class and gender structure the responses of service providers and carers. It examines the moral and policy issues posed by trying to incorporate carers' interests into service provision. What would services look like if they took the needs of carers seriously? How far can they afford to do so? Is this only achieved at the expense of disabled people? What is the proper relationship between carers and services? Carers pose in acute form many of the central dilemmas of social welfare, and the account presented here has the widest significance for the analysis of community care. Focusing on the views of carers as well as service providers, the book looks at caring across a variety of relationships and conditions, including people with mental health problems and learning disabilities.




EBOOK: Partnerships In Family Care


Book Description

* What are the key features of partnerships between family and professional carers? * How do partnerships change over time? * What is needed to help create the best working partnerships? Forging partnerships between service users, family carers and service providers is a key theme in both the policy and academic literatures. However, what such partnerships mean and how they can be created and sustained while responding to change over time, is far from clear. This book considers how family and professional carers can work together more effectively in order to provide the highest quality of care to people who need support in order to remain in their own homes. It adopts a temporal perspective looking at key transitions in caregiving and suggests the most appropriate types of help at particular points in time. It draws on both empirical and theoretical sources emerging from several countries and relating to a number of differing caregiving contexts in order to illustrate the essential elements of 'relationship-centred' care. Partnerships in Family Care will be important reading for all health care students and professionals with an interest in community and home care for the ill, disabled, and elderly.




EBOOK: Community Mental Health Nursing And Dementia Care


Book Description

"it should be compulsory reading for any nurse working with people who have dementia and should be a core text on courses used to train this profession." Dementia "I'd recommend this book to any health professional working in dementia care. Its commitment to breaking down inter-disciplinary barriers makes it universally applicable." Mental Health Today A rounded account of Community Mental Health Nurses' practice in dementia care has been long overdue. This is the first book to focus on the role of Community Mental Health Nurses in their highly valued work with both people with dementia and their families. This book: Explores the complexity and diversity of Community Mental Health Nurse work Captures perspectives from along the trajectory of dementia Identifies assessment and intervention approaches Discusses an emerging evidence base for implications in practice Contributions to this collection of essays and articles are drawn from Community Mental Health Nurse practitioners and researchers at the forefront of their fields. It is key reading for practitioners, researchers, students, managers and policy makers in the field of community mental health nursing and/or dementia care. Contributors: Trevor Adams, Peter Ashton, Gill Boardman, Angela Carradice, Chris Clark, Charlotte L. Clarke, Jan Dewing, Sue Hahn, Mark Holman, John Keady, Kath Lowery, Jill Manthorpe, Cathy Mawhinney, Anne Mason, Paul McCloskey, Anne McKinley, Linda Miller, Gordon Mitchell, Elinor Moore, Michelle Murray, Mike Nolan, Peter Nolan, Tracy Packer, Sean Page, Marilla Pugh, Helen Pusey, Assumpta Ryan, Alison Soliman, Vicki Traynor, Dot Weaks, Heather Wilkinson.




EBOOK: Race And Ethnicity In A Welfare Society


Book Description

The book aims to: -Review debates, issues and concepts associated with the notion of a multicultural-welfare state in the context of contemporary Britain -Draw on examples from across 'need' groups (children, mental health, older people, women etc) explore the ways in which black and ethnic minorities engage in the production of welfare -Consider major transformations in the delivery and practices of welfare their implications for the engagement, access and participation of ethnic minorities -Consider issues of race and ethnicity within the context of a variety of welfare policy arenas. -Suggest ways that welfare practices could be transformed to incorporate the ideas such as 'cosmopolitan citizenship' within a welfare society. The book will appeal to undergradute and postgraduate students of social work, social policy and sociology taking modules in Race and Ethnicity, Social Care and Welfare, Community Studies, Social Exclusion and Citizenship. It will also appeal to practitioners with an interest in welfare policy and practice generally and those with a specific interest in welfare delivery issues and racial and ethnic diversity.




Handbook of Social Support and the Family


Book Description

While insights sometimes are slow in coming, they often seem obvious when they finally arrive. This handbook is an outcome of the insight that the topics of social support and the family are very closely linked. Obvious as this might seem, the fact remains that the literatures dealing with social support and the family have been deceptively separate and distinct. For example, work on social support began in the 1970s with the accumulation of evidence that social ties and social integration play important roles in health and personal adjustment. Even though family members are often the key social supporters of individuals, relatively little re search of social support was targeted on family interactions as a path to specifying supporter processes. It is now recognized that one of the most important features of the family is its role in providing the individual with a source of support and acceptance. Fortunately, in recen t years, the distinctness and separateness of the fields of social support and the family have blurred. This handbook provides the first collation and integration of social support and family research. This integration calls for specifying processes (such as the cognitions associated with poor support availability and unrewarding faIllily constellations) and factors (such as cultural differences in family life and support provision) that are pertinent to integration.




EBOOK: Working With Older People And Their Families


Book Description

Addressing the needs of older people and their carers is an essential element of both policy and practice in the fields of health and social care. Recent developments promote a partnership and empowerment model, in which the notion of 'person-centred' care figures prominently. However, what 'person-centred' care means and how it can be achieved is far from clear. Working with Older People and their Families combines extensive reviews of specialist literatures with new empirical data in an attempt at a synthesis of themes about making a reality of 'person-centred' care. Uniquely, it seeks to unite the perspectives of older people, family and professional carers in promoting a genuinely holistic approach to the challenges of an ageing society. Working with Older People and their Families is recommended reading for students on health related courses such as nursing, medicine and the therapies. It is also of relevance to students of social work and social gerontology, researchers, managers and policy makers.




EBOOK: Reflections on Research: The Realities of Doing Research in the Social Sciences


Book Description

·What is it really like to do social science research? ·In what ways can research go wrong and what can you do to put it right again? ·How do research methods and research ethics relate in practice? This is a ‘how it went’ rather than a ‘how to do’ research methods book. It is based upon the reflections and experiences of a wide range of established social researchers, the majority of whom undertake research in the field of health care. By drawing upon anecdotal accounts of setting up research projects, negotiating access, gathering data and disseminating findings, the book highlights the practical and ethical complexities involved in the conduct of empirically based research. By focussing upon the real-life experiences of social science researchers Reflections on Research provides insight into the day-to-day realities of conducting research – the pleasures and the pitfalls. As such, it is essential reading for all students and researchers in the social sciences as well as academics and professionals interested in research and research ethics. Contributors Priscilla Alderson, Professor of Childhood Studies at the Institute of Education; Kathryn Backett-Milburn, Senior Research Fellow at the Research Unit in Health, Behaviour and Change and Co-Director of the Centre for Research on Families and Relationships, University of Edinburgh; Rosaline Barbour, Professor of Health and Social Care at the University of Dundee; Hannah Bradby, Lecturer in Medical Sociology at Warwick University; Elizabeth Chapman, Research Associate at the Centre for Family Research, University of Cambridge; Susan Cox, Assistant Professor and Michael Smith Foundation for Health Research Scholar at The W. Maurice Young Centre for Applied Ethics, University of British Columbia; Sarah Cunningham-Burley, Reader in Public Health Sciences and Co-Director of the Centre for Research on Families and Relationships at the University of Edinburgh; Gill Dunne, Senior Lecturer in the Department of Sociology at the University of Plymouth; Susan Eley, Lecturer at the Department of Applied Social Science, University of Stirling; Elizabeth Ettorre, Professor of Sociology, University of Plymouth; Catherine Exley, Lecturer in Medical Sociology in the Centre for Health Services Research, University of Newcastle upon Tyne; Calliope (Bobbie) Farsides, Senior Lecturer in Medical Ethics at the Centre of Medical Law and Ethics, King's College London; Claire Foster, Chartered Health Psychologist and Senior Research Fellow at The Institute of Cancer Research ; Jonathan Gabe, Reader in Sociology in the Department of Social and Political Science at Royal Holloway, University of London; Wendy Gnich, Research Fellow at the Research Unit in Health, Behaviour and Change, University of Edinburgh; Trudy Goodenough, Research Assistant working at the Centre for Ethics in Medicine, University of Bristol; Susan Gregory, Research Fellow at the Research Unit in Health, Behaviour and Change, the University of Edinburgh; Rachel Grellier, Assistant Health & Social Development Specialist at Options Consultancy Service; Nina Hallowell, teaches Social Science and Ethics in the department of Public Health Sciences, the Medical School, University of Edinburgh; Khim Horton, Lecturer (clinical) at the European Institute of Health and Medical Sciences, University of Surrey; Julie Kent, Senior Lecturer in Sociology at the University of West of England; Julia Lawton, Research Fellow at the Research Unit in Health, Behaviour and Change, the University of Edinburgh; Abby Lippman, Professor in the Department of Epidemiology & Biostatistics at McGill University; Liz Lobb, Researcher in familial cancer and palliative care at Edith Cowan University in Perth.Lesley Lockyer, Senior Lecturer in the Faculty of Health and Social Care, University of the West of England; Alice Lovell, teaches Psychology at Birkbeck College, Faculty of Continuing Education; Marion McAllister, Macmillan Genetic Counsellor and Honorary Lecturer at the North West Genetics Knowledge Park (Nowgen) and Regional Genetics Service/Academic Unit of Medical Genetics, St Mary's Hospital, Manchester; Richard Mitchell, Research Fellow in the Research Unit in Health, Behaviour and Change (RUHBC), University of Edinburgh; Virginia Morrow, Research Lecturer at the Child-Focused Research Centre, Department of Health & Social Care, Brunel University, London; Melissa Nash, University College London; Odette Parry, Professor of Social Welfare & Community Justice and head of the Social Inclusion Research Unit (SIRU) at NEWI, The University of Wales; Stephen Platt, Director of the Research Unit in Health, Behaviour and Change, University of Edinburgh; Laura Potts, Senior Lecturer in the School of Management, Community and Communication at York St John College, York; Shirley Prendergast, Reader in Research at Anglia Polytechnic University, Cambridge; Martin Richards, Director of the Centre for Family Research, University of Cambridge; Deborah RitchieSenior Lecturer in Health Promotion at Queen Margaret University College; Ann Robertson, Associate Professor in the Department of Public Health Sciences at the University of Toronto; Susan Robinson, Research Associate in the Department of General Practice at King's College, London; Tom Shakespeare, Director of Outreach at PEALS, a University of Newcastle-based research centre ; Hilary Thomas, Senior Lecturer in the Department of Sociology, University of Surrey; Stefan Timmermans, Associate Professor at Brandeis University; Kay Tisdall, Senior Lecturer in Social Policy at the University of Edinburgh; Jonathan Tritter, Research Director of the Institute of Governance and Public Management, University of Warwick; Julia Twigg, Professor of Social Policy and Sociology at the University of Kent; Clare Williams, Research Fellow in the Department of Midwifery and Women's Health, King's College London; Emma Williamson, Wellcome Trust Research Fellow for the EPEG Project, Centre for Ethics in Medicine, University of Bristol .




EBOOK: Rethinking Experiences of Childhood Cancer: A Multidisciplinary Approach to Chronic Childhood Illness


Book Description

"The experiences of the families rang true throughout. I have experienced many of these personally. ...It made me think differently about my personal experience as a parent of a child with cancer and my son's current social experiences." Macmillan Cancer Support This book offers a radical critique of existing psychosocial research on children’s experiences of cancer and proposes an alternative view informed by recent interpretive perspectives. Exploring topics from obtaining a diagnosis of childhood cancer through to sharing decision-making and communication, it reviews a wide-ranging body of research and theory on childhood, chronic illness, and cancer. The book also examines research that has focused on how parents and other family members experience childhood illness. Written by a sociologist, a psychologist and a practising paediatric oncologist, this book is unique in its approach and provides key reading across traditional disciplinary boundaries. In particular, the book highlights the emerging contribution of interpretive work to understanding chronic childhood illness and further develops the dialogue that has only recently emerged between the sociology of illness and the sociology of childhood. Rethinking Experiences of Childhood Cancer is aimed at researchers, students and practitioners in the fields of social science, childhood studies, nursing, medicine, mental health care, social work, clinical psychology and other professions allied to medicine, and will also be of interest to families who have been affected by childhood cancer.




EBOOK: The Dementia Care Workbook


Book Description

The Dementia Care Workbook This workbook builds upon the person-centred approach to dementia care, and gives students, practitioners and carers a new way of looking at dementia and the people who live with it. The authors reflect upon the reality of working within dementia care and the importance of working positively with others to achieve the best care possible. The workbook is full of exercises and activities to try, all designed to help you engage and connect with the person with dementia, empowering both them and their families/carers. Key topics explored by the workbook includes: Understanding how it feels to live with dementia. Recognising the issues and feelings involved for family carers or healthcare professionals when caring for individuals with dementia Questioning your own care approach and attitudes to encourage more compassionate person-centred care Throughout the workbook, vignettes featuring two fictional characters living with dementia, provide examples of good and realistic practice and encourage you to examine your own practice and explore ways in which the care you give can be enhanced. The Dementia Care Workbook is a valuable companion and learning tool for all those working with people with dementia




EBOOK: Loss, Change and Bereavement in Palliative Care


Book Description

"For anyone seeking to develop their understanding of loss and change, whether in a palliative care of general or social care setting, this book contains much useful material which can be taken selectively or in its entirety." Hospise Information Bulletin How do professionals meet the needs of bereaved people? How do professionals undertake best practice with individuals, groups, families and communities? What are the implications for employing research to influence practice? This book provides a resource for working with a complex range of loss situations and includes chapters on childhood bereavement, and individual and family responses to loss and change. It contains the most up-to-date work in the field presented by experienced practitioners and researchers and is relevant not only for those working in specialist palliative care settings, but for professionals in general health and social care sectors. Strong links are maintained between research and good practice throughout the book. These are reinforced by the coherent integration of international research material and the latest thinking about loss and bereavement. Experts and clinicians draw upon their knowledge and practice, whilst the essential perspective of the service user is central to this book. Loss, Change and Bereavement in Palliative Care provides essential reading for a range of professional health and social care disciplines practising at postgraduate or post-registration/qualification level. It challenges readers, at an advanced level, on issues of loss, change and bereavement. Contributors Lesley Adshead, Jenny Altschuler, Peter Beresford, Grace Christ, Suzy Croft, Pam Firth, Shirley Firth, Richard Harding, Felicity Hearn, Jennie Lester, Gill Luff, Linda Machin, Jan McLaren, David Oliviere, Ann Quinn, Phyllis Silverman, Jean Walker, Karen Wilman.