Families Living with Chronic Illness and Disability


Book Description

To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, and family advocates and will serve as a useful textbook for professionals-in-training.




Living with Chronic Illness and Disability


Book Description

Fully updated and refreshed to reflect current knowledge, data and perspectives







Coping with Chronic Illness and Disability


Book Description

This book synthesizes the expanding literature on coping styles and strategies by analyzing how individuals with CID face challenges, find and use their strengths, and alter their environment to fit their life-changing realities. The book includes up-to-date information on coping with high-profile conditions, such as cancer, heart disease, diabetes, arthritis, spinal cord injuries, and traumatic brain injury, in-depth coverage of HIV/AIDS, chronic pain, and severe mental illness, and more.




Living Well with Chronic Illness


Book Description

In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.




Sex-Interrupted


Book Description

By the year 2030, as many as 171 million people in the U.S.- more than half of all Americans-will be living with at least one chronic medical condition (data from The Robert Wood Johnson Foundation). Illness or disability can easily derail a person's sex life-but it doesn't have to be that way. Using kindness, honesty, and humor, Iris Zink, BSN, MSN, ANP, RN-BC, explores the ways illness or disability can affect a sexual relationship and offers suggestions on how to regain intimacy. She also describes existing myths about sex and debunks them with real-life examples. Most importantly, you'll learn that, no matter how a person's body changes, no-one should have to give up sex. Ms. Zink has 20 years of experience in treating sexual health complications related to chronic illness, and in writing and lecturing to healthcare providers on sexual health subjects. She has enabled thousands of people to experience fulfilling sex and meaningful intimacy-she can help you, too!




Estate Planning for People with a Chronic Condition or Disability


Book Description

This is the first comprehensive estate-planning guide for those living with a chronic disease or disability. This book is targeted at those planning for the disbursement of their estates, no matter their size. Estate-planning is crucial for those living with a chronic disease or disability: individuals must express their preferences whether to receive long-term care at home rather than in a nursing home in the event that they become more disabled, and it is more important for one who has a chronic illness to name a power of attorney. Estate Planning for People with a Chronic Condition or Disability covers all of those topics plus: How to write your will How to determine how much life insurance your family needs How to figure out whether you need a living trust Learn about powers of attorney When to work with a lawyer, if you need to The book also includes downloadable sample forms for: Power of Attorney Living Will Designation of Proxy for Financial and Health Decisions




Easy for You to Say


Book Description

Practical information for teens and their families. Praise for the previous edition: This very unusual book...is loaded with the kind of information disabled teens often need but may be too embarrassed to ask for. --Booklist The teen years are some of the most demanding. Even the most well-adjusted youth struggles with the intense daily challenges of friends, family, school and wider society. But these problems pale in comparison to those faced by teenagers with a handicap or chronic illness such as spina bifida or cystic fibrosis. "Get over it" or "it's just a phase" is idle advice and little more than offensive. "Easy for you to say," is the teenager's often-heard -- and reasonable -- response. Easy for You to Say profiles the lives of uniquely challenged teens as they work hard to make sense of the world and their places in it. The questions they pose are frank and courageous, many include street language that teens can identify with and readily understand. The issues front and center in their lives are addressed, such as family, doctors and medical issues, friends and dating, school and work, alcohol and street drugs, medications and sexuality. Useful charts give reliable information on medication interactions and side effects. Kaufman is straightforward and honest, and provides solid information. Easy for You to Say to Say addresses issues that often are not easy or pretty. It offers solid practical advice, straight talk and honest answers to questions that many would be too embarrassed to ask.




Cognitive Behavioral Therapy for Chronic Illness and Disability


Book Description

Severe pain, debilitating fatigue, sleep disruption, severe gastrointestinal distress – these hallmarks of chronic illness complicate treatment as surely as they disrupt patients’ lives, in no small part because of the overlap between biological pathology and resulting psychological distress. Cognitive Behavioral Therapy for Chronic Illness and Disability cuts across formal diagnostic categories to apply proven therapeutic techniques to potentially devastating conditions, from first assessment to end of treatment. Four extended clinical case examples of patients with chronic fatigue, rheumatoid arthritis, inoperable cancer, and Crohn’s disease are used throughout the book to demonstrate how cognitive-behavioral interventions can be used to effectively address ongoing medical stressors and their attendant depression, anxiety, and quality-of-life concerns. At the same time, they highlight specific patient and therapist challenges commonly associated with chronic conditions. From implementing core CBT strategies to ensuring medication compliance, Renee Taylor offers professionals insights for synthesizing therapeutic knowledge with practical understanding of chronic disease. Her nuanced client portraits also show how individual patients can vary—even within themselves. This book offers clinicians invaluable help with - Conceptualizing patient problems - Developing the therapeutic relationship - Pacing of therapy - Cognitive restructuring - Behavioral modification - Problem solving - Fostering coping and adapting skills Taylor’s coverage is both clean and hands-on, with helpful assessments and therapy worksheets for quick reference. Cognitive Behavioral Therapy for Chronic Illness and Disability gives practitioners of CBT new insights into this population and provides newer practitioners with vital tools and tactics. All therapists will benefit as their clients can gain new confidence and regain control of their lives.




Definition of Serious and Complex Medical Conditions


Book Description

In response to a request by the Health Care Financing Administration (HCFA), the Institute of Medicine proposed a study to examine definitions of serious or complex medical conditions and related issues. A seven-member committee was appointed to address these issues. Throughout the course of this study, the committee has been aware of the fact that the topic addressed by this report concerns one of the most critical issues confronting HCFA, health care plans and providers, and patients today. The Medicare+Choice regulations focus on the most vulnerable populations in need of medical care and other services-those with serious or complex medical conditions. Caring for these highly vulnerable populations poses a number of challenges. The committee believes, however, that the current state of clinical and research literature does not adequately address all of the challenges and issues relevant to the identification and care of these patients.