Normality and Disability


Book Description

Hotly contested, normality remains a powerful, complex category in contemporary law and culture. What is little realized are the ways in which disability underpins and shapes the operation of norms and the power dynamics of normalization. This pioneering collection explores the place of law in political, social, scientific and biomedical developments relating to disability and other categories of ‘abnormality’. The contributors show how law produces cultural meanings, norms, representations, artefacts and expressions of disability, abnormality and normality, as well as how law responds to and is constituted by cultures of disability. The collection traverses a range of contemporary legal and political issues including human rights, mercy killing, reproductive technologies, hate crime, policing, immigration and disability housing. It also explores the impact and ongoing legacies of historical practices such as eugenics and deinstitutionalization. Of interest to a wide range of scholars working on normality and law, the book also creates an opening for critical scholars and activists engaged with other marginalized and denigrated categories, notably contesting institutional violence in the context of settler colonialism, neoliberalism and imperialism, to engage more richly and politically with disability. This book was originally published as a special issue of the Continuum journal.




Normality


Book Description

Most of us think we know what is meant when we hear the term "normal," but Cryle and Stephens upend taken-for-granted attitudes about the term. They offer a history of the intellectual and cultural issues that have been at stake in the use of the term since it appeared around 1820. What is taken at one time or any one culture to be "aberrant" or "deviant" clearly depends on assumed meanings for norm and normality. The authors of this book explore this history--peppered with a fascinating series of case studies--to make sense of variations on the theme of identity (disability, gender, race, sexuality) in fields organized around identity. They locate the concept in the scientific spheres where it originated in its modern sense and they chart its transformations and developments from the 1820s in France (medicine) to the mid-20th century (Alfred Kinsey). They start with comparative anatomy and other branches of medicine before moving on to consider developments in fields as remote as craniometry, statistics, criminal anthropology, sociology, and eugenics. It is not enough to say, with David Halperin, that "queer" is "whatever is at odds with the normal, the legitimate, the dominant." Cryle and Stephens move beyond a simple binary opposition between "normal" and "abnormality" to give us the whole picture, from the Continent to the U.S., and in all the contexts that distinguish the normal from other available terms (such as typical, average, respectable, conventional, white and heterosexual, and uniform). "Normality" has had a long struggle to secure its cultural dominance and authority, a story which is told here for the first time.




The Normal One


Book Description

In the first book of its kind, renowned psychotherapist Jeanne Safer examines the hidden trauma of growing up with an emotionally troubled or physically disabled sibling, and helps adult "normal" siblings resolve their childhood pain. For too long the therapeutic community has focused on the parent-child relationship as the primary relationship in a child's life. In The Normal One, Dr. Safer shows that sisters and brothers are just as important as parents, and she illuminates for the first time the experience of being "the normal one." Drawing on more than sixty interviews with normal, or intact, siblings, Safer explores the daunting challenges they face, and probes the complex feelings that can strain families and damage lives. A “normal” sibling herself, Safer chronicles her own life-shaping experiences with her troubled brother. She examines the double-edged reality of normal ones: how they both compensate for their siblings’ abnormality and feel guilty for their own health and success. With both wisdom and empathy, she delineates the “Caliban Syndrome,” a set of personality traits characteristic of higher-functioning siblings: premature maturity, compulsion to achieve, survivor guilt, and fear of contagion. Essential reading for normal ones and those who love them, this landmark work offers readers insight, compassion, and tools to help resolve childhood pain. It is a profound and eye-opening examination of a subject that has too long been shrouded in darkness.




Disability, Health, Law, and Bioethics


Book Description

Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.




Being Heumann


Book Description

A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.




Disability Studies


Book Description

This textbook brings together a wide range of expert voices from the field of disability studies and the disabled people′s movement to tackle the essential topics relevant to this area of study. From the outset disability is discussed from a social model perspective, demonstrating how future practice and discourse could break down barriers and lead to more equal relationships for disabled people in everyday life. An interdisciplinary and broad-ranging text, the book includes 50 chapters on topics relevant across health and social care. Reflective questions and suggestions for further reading throughout will help readers gain a critical appreciation of the subject and expand their knowledge. This will be valuable reading for students and professionals across disability studies, health, nursing, social work, social care, social policy and sociology.




The Myth of the Normal Curve


Book Description

"The Myth of the Normal Curve provides a much-needed critique of commonly and even scientifically accepted notions of normality. For too long we have supported an ideology of normality without much interrogation of the subject. This book provides that interrogation."---Lennard J. Davis, Professor of English and Disability Studies, University of Illinois at Chicago --Book Jacket.




Enforcing Normalcy


Book Description

In this highly original study of the cultural assumptions governing our conception of people with disabilities, Lennard J. Davis argues forcefully against “ableist” discourse and for a complete recasting of the category of disability itself. Enforcing Normalcy surveys the emergence of a cluster of concepts around the term “normal” as these matured in western Europe and the United States over the past 250 years. Linking such notions to the concurrent emergence of discourses about the nation, Davis shows how the modern nation-state constructed its identity on the backs not only of colonized subjects, but of its physically disabled minority. In a fascinating chapter on contemporary cultural theory, Davis explores the pitfalls of privileging the figure of sight in conceptualizing the nature of textuality. And in a treatment of nudes and fragmented bodies in Western art, he shows how the ideal of physical wholeness is both demanded and denied in the classical aesthetics of representation. Enforcing Normalcy redraws the boundaries of political and cultural discourse. By insisting that disability be added to the familiar triad of race, class and gender, the book challenges progressives to expand the limits of their thinking about human oppression.




Keywords for Disability Studies


Book Description

Introduces key terms, concepts, debates, and histories for Disability Studies Keywords for Disability Studies aims to broaden and define the conceptual framework of disability studies for readers and practitioners in the field and beyond. The volume engages some of the most pressing debates of our time, such as prenatal testing, euthanasia, accessibility in public transportation and the workplace, post-traumatic stress, and questions about the beginning and end of life. Each of the 60 essays in Keywords for Disability Studies focuses on a distinct critical concept, including “ethics,” “medicalization,” “performance,” “reproduction,” “identity,” and “stigma,” among others. Although the essays recognize that “disability” is often used as an umbrella term, the contributors to the volume avoid treating individual disabilities as keywords, and instead interrogate concepts that encompass different components of the social and bodily experience of disability. The essays approach disability as an embodied condition, a mutable historical phenomenon, and a social, political, and cultural identity. An invaluable resource for students and scholars alike, Keywords for Disability Studies brings the debates that have often remained internal to disability studies into a wider field of critical discourse, providing opportunities for fresh theoretical considerations of the field’s core presuppositions through a variety of disciplinary perspectives. Visit keywords.nyupress.org for online essays, teaching resources, and more.




Normal Sucks


Book Description

Confessional and often hilarious, in Normal Sucks a neuro-diverse writer, advocate, and father meditates on his life, offering the radical message that we should stop trying to fix people and start empowering them to succeed Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn—individually, uniquely, and with advantages and upshots to every type of brain and body. As a neuro-diverse kid diagnosed with dyslexia and ADHD who didn't learn to read until he was twelve, the realization that that he wasn’t the problem—the system and the concept of normal were—saved Mooney’s life and fundamentally changed his outlook. Here he explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem. But, he argues, if we can reorient the ways in which we think about diversity, abilities, and disabilities, we can start a revolution. A highly sought after public speaker, Mooney has been inspiring audiences with his story and his message for nearly two decades. Now he’s ready to share what he’s learned from parents, educators, researchers, and kids in a book that is as much a survival guide as it is a call to action. Whip-smart, insightful, and utterly inspiring—and movingly framed as a letter to his own young sons, as they work to find their ways in the world—this book will upend what we call normal and empower us all.




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