› › Psychological Support By Cognitive Behavioral Therapy For Bardet Biedl Syndrome

PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR BARDET-BIEDL SYNDROME

Author : Edenilson Brandl

Publisher : Edenilson Brandl

Page : 1268 pages

File Size : 30,98 MB

Release :

Category : Psychology

ISBN :

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Book Description

Bardet-Biedl Syndrome (BBS) is a complex, multi-system genetic disorder that poses unique challenges for those affected and their families. This syndrome not only encompasses a range of physical symptoms, such as obesity, retinal degeneration, and kidney dysfunction, but also carries significant psychological implications. Individuals living with BBS often face emotional and mental health hurdles, including anxiety, depression, and feelings of isolation. Recognizing and addressing these challenges is crucial for fostering resilience and improving quality of life. In this book, I aim to bridge the gap between genetic understanding and psychological support by presenting Cognitive Behavioral Therapy (CBT) as a powerful tool for managing the emotional aspects of living with Bardet-Biedl Syndrome. The principles of CBT can empower individuals to confront their fears, reshape negative thought patterns, and develop healthier coping strategies. By incorporating insights from genetics, psychology, and personal experiences, this book serves as a comprehensive guide for patients, families, and healthcare providers. Each chapter delves into essential topics, beginning with an exploration of Bardet-Biedl Syndrome and its associated traumas, moving through foundational concepts of genetics and psychology, and culminating in practical CBT techniques tailored to the unique needs of individuals facing this syndrome. Whether you are a patient navigating the emotional landscape of BBS, a caregiver seeking tools to support a loved one, or a healthcare professional looking to enhance your therapeutic approach, this book is designed to be a valuable resource. It is my hope that this work not only informs but also inspires a collaborative approach to psychological care for those affected by Bardet-Biedl Syndrome. Together, we can foster a deeper understanding of the interplay between genetics and mental health, ultimately enhancing the lives of individuals living with this condition. I would like to express my gratitude to all the individuals, families, and professionals who have shared their experiences and insights. Your stories have shaped this book and underscore the importance of psychological support in the journey of living with Bardet-Biedl Syndrome.



PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR OSTEOGENESIS IMPERFECTA

Author : Edenilson Brandl

Publisher : Edenilson Brandl

Page : 1474 pages

File Size : 44,91 MB

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Category : Psychology

ISBN :

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Book Description

Living with Osteogenesis Imperfecta (OI), often known as brittle bone disease, is not just a physical challenge—it impacts every aspect of life, including emotional and mental well-being. As a genetic condition marked by fragile bones and chronic pain, OI can shape one's identity, affect relationships, and influence life choices. Beyond the medical care required to manage the condition, psychological support becomes a crucial element in helping individuals cope with the mental health challenges that accompany OI. This book, Psychological Support by Cognitive Behavioral Therapy for Osteogenesis Imperfecta, was born from the need to address the emotional and psychological burden that often remains untreated or overlooked in the medical community. The idea behind this work is to empower both individuals living with OI and healthcare professionals to explore a structured, evidence-based approach for mental health care: Cognitive Behavioral Therapy (CBT). CBT is a powerful therapeutic tool that helps people identify and reframe negative thoughts and behaviors, allowing them to regain control over their emotional responses to life's challenges. By blending the practical aspects of CBT with the specific emotional and physical experiences of those living with OI, this book serves as a guide for managing pain, addressing feelings of isolation or helplessness, and fostering resilience. In addition to providing an in-depth understanding of the condition, this book delves into genetics and epigenetics, offering insight into how hereditary diseases like OI affect the body and mind. It explains the biological underpinnings of genetic mutations and the impact they have on individuals’ daily lives, framed within the context of trauma and mental health. Throughout the chapters, you will find tailored CBT tools and techniques designed specifically to address the unique challenges faced by individuals with OI—such as chronic pain management, emotional regulation, and coping with physical limitations. Moreover, this book emphasizes personalized therapeutic approaches that consider not just the condition, but also the individuality of each person’s journey through life with OI. Whether you are an individual affected by OI, a caregiver, a healthcare provider, or a mental health professional, this book will offer valuable insights, practical advice, and a sense of understanding in navigating the complexities of living with a genetic condition. It is our hope that through the use of Cognitive Behavioral Therapy, individuals with OI can find psychological relief and gain the tools necessary to live fulfilling, empowered lives.



PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR RETINITIS PIGMENTOSA

Author : Edenilson Brandl

Publisher : Edenilson Brandl

Page : 1472 pages

File Size : 21,62 MB

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Category : Psychology

ISBN :

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Retinitis Pigmentosa (RP) is a hereditary and progressive eye disease that significantly affects the quality of life of those diagnosed with it. With gradual loss of vision, many individuals face not only physical challenges but also emotional and psychological ones. This book, Psychological Support by Cognitive Behavioral Therapy for Retinitis Pigmentosa, aims to bridge the gap between the medical aspects of RP and the critical mental health support needed by patients navigating this difficult journey. The diagnosis of a genetic disease such as RP often comes with a whirlwind of emotions—shock, fear, anxiety, and sometimes even depression. Many struggle to understand the biological underpinnings of the disease, while also grappling with the emotional toll it can take on daily life, relationships, and future plans. Throughout my work with individuals and families dealing with RP, I have observed a pressing need for a comprehensive approach that addresses both the mental and physical dimensions of this condition. This book is designed for a broad audience, including patients, their families, therapists, and medical professionals. It offers insights into the biology of RP, genetics, epigenetics, and how these factors contribute to the progression of the disease. But more importantly, it provides a framework for emotional and psychological resilience through Cognitive Behavioral Therapy (CBT). By learning to manage thoughts, emotions, and behaviors associated with living with a genetic condition, individuals can take control of their mental health and develop healthy coping mechanisms. The tools presented in this book are rooted in the principles of CBT, one of the most effective therapeutic approaches for managing anxiety, depression, and other mental health challenges. With personalized therapeutic approaches, practical exercises, and case examples, this book serves as a guide to help individuals overcome mental health barriers, foster self-compassion, and regain a sense of control and independence. I hope that this book will offer a sense of hope, empowerment, and guidance for those facing the challenges of Retinitis Pigmentosa. Through understanding the biology behind the disease and harnessing the power of cognitive behavioral therapy, it is possible to not only cope but also thrive despite the difficulties.



Developmental-Behavioral Pediatrics E-Book

Author : Heidi M Feldman

Publisher : Elsevier Health Sciences

Page : 1212 pages

File Size : 24,87 MB

Release : 2022-08-18

Category : Medical

ISBN : 0323809731

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Book Description

Addressing the major advances in biomedical, psychological, social, and environmental sciences over the past decade, Developmental-Behavioral Pediatrics, 5th Edition, remains the reference of choice for professionals in a wide range of fields, including medicine and health care, education, social service, advocacy, and public policy. This foundational, pioneering resource emphasizes children's assets and liabilities, not just categorical labels. Comprehensive in scope, it offers information and guidance on normal development and behavior, psychosocial, and biologic influences on development, developmental disorders, neurodevelopmental disabilities, and mental health conditions. It also discusses tools and strategies for diagnosis and management, including new assessments that can be used in telehealth encounters. - Offers a highly practical focus, emphasizing clinical approaches to evaluation, counseling, treatment, and ongoing care. - Provides new or expanded information on theoretical foundations of human development and behavior; trauma, adverse childhood events, and resilience across the life span; mechanisms of genetic, epigenetic, and neurological conditions; and principles of psychological assessment, including a broad array of evaluation approaches. - Discusses management and treatment for developmental and behavioral conditions, spanning common factors, cognitive behavior therapies, rehabilitative services, integrative medicine, and psychopharmacology. - Contains up-to-date chapters on celebrating socio-cultural diversity and addressing racism and bias, acute stress and post-traumatic stress disorder in youth, sexuality and variation, and alternatives to restrictive guardianship. - Begins each chapter with a colorful vignette that demonstrates the importance of the human dimensions of developmental-behavioral pediatrics. - Offers viewpoints from an interdisciplinary team of editors and contributors, representing developmental-behavioral pediatrics, general pediatrics, psychiatry, psychology, occupational and physical therapy, speech-language pathology, and law. - Provides the latest drug information in the updated and revised chapters on psychopharmacology. - Includes key points boxes, tables, pictures, and diagrams to clarify and enhance the text.





Assessing and Treating Pediatric Obesity in Neurodevelopmental Disorders

Author : Adelle M. Cadieux

Publisher : Springer

Page : 169 pages

File Size : 48,87 MB

Release : 2017-04-18

Category : Psychology

ISBN : 3319559249

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Book Description

This book reviews strategies for assessing and treating pediatric obesity in children with neurodevelopmental disorders (ND). It synthesizes empirical findings and clinical strategies to offer the latest knowledge in key areas, including risk factors, physical activity, nutrition, treatment planning, goal-setting, and engagement with patients. A four-stage treatment model presents clinical guidance in triaging treatment and tailoring interventions to children’s changing medical, behavioral, emotional, and cognitive needs. The book complements current pediatric ND literature by presenting clear guidelines for integrating treatment for obesity into existing treatment of these young patients. Topics featured in this book include: The effect of neurodevelopmental disorders on the assessment of obesity in children. The impact of developmental delays on physical activities and health behaviors. Strategies for promoting weight management goals in pediatric ND. Suggestions on how to engage and support families and caregivers. The role of prevention in weight management within pediatric ND. Assessing and Treating Pediatric Obesity in Neurodevelopmental Disorders is a must-have resource for clinicians, scientist-practitioners, and related professionals as well as researchers, professors, and graduate students in clinical child and school psychology, public health, social work, pediatrics, occupational therapy, and nutrition.



Evidence-Based Practice with Emotionally Troubled Children and Adolescents

Author : Morley D. Glicken

Publisher : Academic Press

Page : 463 pages

File Size : 48,61 MB

Release : 2009-05-11

Category : Psychology

ISBN : 0080923062

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Book Description

This book on evidence-based practice with children and adolescents focuses on best evidence regarding assessment, diagnosis, and treatment of children and adolescents with a range of emotional problems including ADHD; Bi-Polar Disorder; anxiety and depression; eating disorders; Autism; Asperger's Syndrome; substance abuse; loneliness and social isolation; school related problems including underachievement; sexual acting out; Oppositional Defiant and Conduct Disorders; Childhood Schizophrenia; gender issues; prolonged grief; school violence; cyber bullying; gang involvement, and a number of other problems experienced by children and adolescents. The psychosocial interventions discussed in the book provide practitioners and educators with a range of effective treatments that serve as an alternative to the use of unproven medications with unknown but potentially harmful side effects. Interesting case studies demonstrating the use of evidence-based practice with a number of common childhood disorders and integrative questions at the end of each chapter make this book uniquely helpful to graduate and undergraduate courses in social work, counseling, psychology, guidance, behavioral classroom teaching, and psychiatric nursing. - Fully covers assessment, diagnosis & treatment of children and adolescents, focusing on evidence-based practices - Offers detailed how-to explanation of practical evidence-based treatment techniques - Cites numerous case studies and provides integrative questions at the end of each chapter - Material related to diversity (including race, ethnicity, gender and social class) integrated into each chapter



Management of Genetic Syndromes

Author : Suzanne B. Cassidy

Publisher : John Wiley & Sons

Page : 1678 pages

File Size : 40,30 MB

Release : 2011-09-20

Category : Medical

ISBN : 1118210670

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Book Description

The bestselling guide to the medical management of common genetic syndromes —now fully revised and expanded A review in the American Journal of Medical Genetics heralded the first edition of Management of Genetic Syndromes as an "unparalleled collection of knowledge." Since publication of the first edition, improvements in the molecular diagnostic testing of genetic conditions have greatly facilitated the identification of affected individuals. This thorough revision of the critically acclaimed bestseller offers original insights into the medical management of sixty common genetic syndromes seen in children and adults, and incorporates new research findings and the latest advances in diagnosis and treatment of these disorders. Expanded to cover five new syndromes, this comprehensive new edition also features updates of chapters from the previous editions. Each chapter is written by an expert with extensive direct professional experience with that disorder and incorporates thoroughly updated material on new genetic findings, consensus diagnostic criteria, and management strategies. Edited by two of the field's most highly esteemed experts, this landmark volume provides: A precise reference of the physical manifestations of common genetic syndromes, clearly written for professionals and families Extensive updates, particularly in sections on diagnostic criteria and diagnostic testing, pathogenesis, and management A tried-and-tested, user-friendly format, with each chapter including information on incidence, etiology and pathogenesis, diagnostic criteria and testing, and differential diagnosis Up-to-date and well-written summaries of the manifestations followed by comprehensive management guidelines, with specific advice on evaluation and treatment for each system affected, including references to original studies and reviews A list of family support organizations and resources for professionals and families Management of Genetic Syndromes, Third Edition is a premier source to guide family physicians, pediatricians, internists, medical geneticists, and genetic counselors in the clinical evaluation and treatment of syndromes. It is also the reference of choice for ancillary health professionals, educators, and families of affected individuals looking to understand appropriate guidelines for the management of these disorders. From a review of the first edition: "An unparalleled collection of knowledge . . . unique, offering a gold mine of information." —American Journal of Medical Genetics



Index Medicus

Author :

Publisher :

Page : 2164 pages

File Size : 16,2 MB

Release : 2004

Category : Medicine

ISBN :

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Book Description

Vols. for 1963- include as pt. 2 of the Jan. issue: Medical subject headings.



Neurobiology of Mental Illness

Author : Dennis S. Charney

Publisher : Oxford University Press, USA

Page : 1259 pages

File Size : 13,52 MB

Release : 2013-07-04

Category : Medical

ISBN : 0199934959

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Book Description

Our understanding of the neurobiological basis of psychiatric disease has accelerated in the past five years. The fourth edition of Neurobiology of Mental Illness has been completely revamped given these advances and discoveries on the neurobiologic foundations of psychiatry. Like its predecessors the book begins with an overview of the basic science. The emerging technologies in Section 2 have been extensively redone to match the progress in the field including new chapters on the applications of stem cells, optogenetics, and image guided stimulation to our understanding and treatment of psychiatric disorders. Sections' 3 through 8 pertain to the major psychiatric syndromes-the psychoses, mood disorders, anxiety disorders, substance use disorders, dementias, and disorders of childhood-onset. Each of these sections includes our knowledge of their etiology, pathophysiology, and treatment. The final section discusses special topic areas including the neurobiology of sleep, resilience, social attachment, aggression, personality disorders and eating disorders. In all, there are 32 new chapters in this volume including unique insights on DSM-5, the Research Domain Criteria (RDoC) from NIMH, and a perspective on the continuing challenges of diagnosis given what we know of the brain and the mechanisms pertaining to mental illness. This book provides information from numerous levels of analysis including molecular biology and genetics, cellular physiology, neuroanatomy, neuropharmacology, epidemiology, and behavior. In doing so it translates information from the basic laboratory to the clinical laboratory and finally to clinical treatment. No other book distills the basic science and underpinnings of mental disorders and explains the clinical significance to the scope and breadth of this classic text. The result is an excellent and cutting-edge resource for psychiatric residents, psychiatric researchers and doctoral students in neurochemistry and the neurosciences.



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