Supporting Dying Children and their Families


Book Description

This practical guide offers invaluable and sensitive advice for all who work alongside terminally ill children, their families and families who have been bereaved. Paul Nash helpfully describes the different types of care that are needed depending on the age of the child - from baby to teenager - and on the particular needs of the child's family. He also provides resources to help with remembering and celebrating the life of a child, including rituals that can be used in preparation for death, at the time of death and at funeral or memorial services.




When Children Die


Book Description

The death of a child is a special sorrow. No matter the circumstances, a child's death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify "medicine with a heart." At worst, families' encounters with the health care system will leave them with enduring painful memories, anger, and regrets. When Children Die examines what we know about the needs of these children and their families, the extent to which such needs areâ€"and are notâ€"being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do notâ€"and will likewise help all families who suffer with their seriously ill or injured child. Featuring illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child's life-threatening illness or injury.




Confident Parents, Confident Kids


Book Description

Confident Parents, Confident Kids lays out an approach for helping parents—and the kids they love—hone their emotional intelligence so that they can make wise choices, connect and communicate well with others (even when patience is thin), and become socially conscious and confident human beings. How do we raise a happy, confident kid? And how can we be confident that our parenting is preparing our child for success? Our confidence develops from understanding and having a mastery over our emotions (aka emotional intelligence)—and helping our children do the same. Like learning to play a musical instrument, we can fine-tune our ability to skillfully react to those crazy, wonderful, big feelings that naturally arise from our child’s constant growth and changes, moving from chaos to harmony. We want our children to trust that they can conquer any challenge with hard work and persistence; that they can love boundlessly; that they will find their unique sense of purpose; and they will act wisely in a complex world. This book shows you how. With author and educator Jennifer Miller as your supportive guide, you'll learn: the lies we’ve been told about emotions, how they shape our choices, and how we can reshape our parenting decisions in better alignment with our deepest values. how to identify the temperaments your child was born with so you can support those tendencies rather than fight them. how to align your biggest hopes and dreams for your kids with specific skills that can be practiced, along with new research to support those powerful connections. about each age and stage your child goes through and the range of learning opportunities available. how to identify and manage those big emotions (that only the parenting process can bring out in us!) and how to model emotional intelligence for your children. how to deal with the emotions and influences of your choir—the many outside individuals and communities who directly impact your child’s life, including school, the digital world, extended family, neighbors, and friends. Raising confident, centered, happy kids—while feeling the same way about yourself—is possible with Confident Parents, Confident Kids.




When Children Die


Book Description

This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.




Hospice Care for Children


Book Description

Children with life-threatening and terminal illnesses--and their families-- require a unique kind of care to meet a wide variety of needs. This book, the first edition of which won the 1993 Pediatric Nursing Book of the Year Award, provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment and is intended for all those who participate in the hospice-care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents, and community service volunteers.




Preparing Your Children for Goodbye


Book Description

Preparing Your Children For Goodbye is a supportive guidebook for parents who are terminally ill. This book is divided into three parts: -End-of-life issues to consider -How children cope with death -A Life Review workbook The book will help you plan for your own end-of-life care, prepare your children for your death, and record memories of your life. The book includes a Bibliography and a list of "Places to Turn To for Help". Your most important role as a parent is raising your child. All along, you are attempting to impart into them your values, as well as teach them the skills that they will need to be successful as they grow into adulthood. No parent expects to leave a child to journey through life without his or her direct guidance. As that day approaches, and you begin to accept that you will not have the time that you thought you would, the pressure mounts to prepare your child for the future. The process of looking back over your life and thinking about what has mattered most to you is a natural part of facing death. There is a formal discipline called "Life Review" in which people are encouraged to discuss and write down aspects of their past. This Life Review workbook is specifically designed for use by parents of children and teenagers. It includes questions to help you consider issues relating to your children, as well as more general questions that will trigger memories about other parts of your life. This Life Review process can be used by anyone who is interested in thinking about their own past, even if they do not have children. You can use the workbook on your own or with someone else. It's a nice activity for two people to do together using a conversational approach. An adult child could use the conversational method with an elderly parent. It can be an enjoyable way to reminisce about the past and capture memories. This type of conversational approach can be helpful as a tool to use with older people who are having memory problems. The workbook can be used in hospice settings by hospice volunteers to use with patients who want to reflect on their lives. If someone is too sick to take on a major writing project, the volunteer can ask questions from the workbook to help the person recall anything that they want to have remembered. A volunteer could also work with family members to explain life review ideas and introduce the workbook as something they can use on their own. Any parent who wants to record family history can also use this book. Perhaps you have a high-risk profession in an area such as law enforcement, firefighting, or serve in the military and are concerned about the future. Who hasn't thought, "What if?"




The Private Worlds of Dying Children


Book Description

Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.




Supporting Bereaved and Dying Children


Book Description

The aim of this guide is to provide bereavement counsellors, nurses and doctors and other health care and social service professionals with knowledge, skills and values which assist them in the daunting task of helping children and their families at a time of the deepest possible distress and uncertainty, and to this end, to develop their understanding of how children and adults react to the loss, or imminent loss, of loved ones.




Supporting Sick Children and Their Families


Book Description

This book offers comprehensive guidance on providing emotional, psychological, and spiritual support for sick and dying children and their families. In addition to covering the practical and underlying theoretical approaches to counseling, it explores defense mechanisms and coping strategies.




Care of the Dying Child


Book Description

This unique book considers the specific medical, psycho-social, and practical issues involved in caring for children dying from chronic diseases. Ann Goldman, herself a consultant paediatrician in palliative care at the Hospital for Sick Children, Great Ormond Street, recognizes the special needs of terminally ill children and their families. She confronts the problems and issues surrounding the care of these children in order to help paediatricians and other professionals provide the very best possible care for such patients. A range of contributors experienced in palliative care for children provide comprehensive coverage of the subject, including: consideration of the magnitude of the problem and the provision of services, pain control symptom management, family support and communication with children, spiritual issues, bereavement, stress. This practical, interdisciplinary approach to the specific needs of children with terminal diseases will be invaluable for every professional who wishes to enhance standards of care for dying children and their families.