AIDS Doesn't Show Its Face


Book Description

AIDS and Africa are indelibly linked in popular consciousness, but despite widespread awareness of the epidemic, much of the story remains hidden beneath a superficial focus on condoms, sex workers, and antiretrovirals. Africa gets lost in this equation, Daniel Jordan Smith argues, transformed into a mere vehicle to explain AIDS, and in AIDS Doesn’t Show Its Face, he offers a powerful reversal, using AIDS as a lens through which to view Africa. Drawing on twenty years of fieldwork in Nigeria, Smith tells a story of dramatic social changes, ones implicated in the same inequalities that also factor into local perceptions about AIDS—inequalities of gender, generation, and social class. Nigerians, he shows, view both social inequality and the presence of AIDS in moral terms, as kinds of ethical failure. Mixing ethnographies that describe everyday life with pointed analyses of public health interventions, he demonstrates just how powerful these paired anxieties—medical and social—are, and how the world might better alleviate them through a more sensitive understanding of their relationship.




A Visual History of HIV/AIDS


Book Description

The Face of AIDS film archive at Karolinska Institutet, Sweden, consists of more than 700 hours of unedited and edited footage, shot over a period of more than thirty years and all over the world by filmmaker and journalist Staffan Hildebrand. The material documents the HIV/AIDS pandemic and includes scenes from conferences and rallies, and interviews with activists, physicians, people with the infection, and researchers. It represents a global historical development from the early years of the AIDS crisis to a situation in which it is possible to live a normal life with the HIV virus. This volume brings together a range of academic perspectives – from media and film studies, medical history, gender studies, history, and cultural studies – to bear on the archive, shedding light on memories, discourses, trauma, and activism. Using a medical humanities framework, the editors explore the influence of historical representations of HIV/AIDS and stigma in a world where antiretroviral treatment has fundamentally altered the conditions under which many people diagnosed with HIV live. Organized into four sections, this book begins by introducing the archive and its role, setting it in a global context. The first part looks at methodological, legal and ethical issues around archiving memories of the present which are then used to construct histories of the past; something that can be particularly controversial when dealing with a socially stigmatized epidemic such as HIV/AIDS. The second section is devoted to analyses of particular films from the archive, looking at the portrayal of people living with HIV/AIDS, the narrative of HIV as a chronic illness and the contemporary context of particular films. The third section looks at how stigma and trauma are negotiated in the material in the Face of AIDS film archive, discussing ideas about suffering and culpability. The final section contributes perspectives on and by the filmmaker as activist and auteur. This interdisciplinary collection is placed at the intersection of medical humanities, sexuality studies and film and media studies, continuing a tradition of studies on the cultural and social understandings of HIV/AIDS.




Living Proof


Book Description

This moving and beautiful book offers unprecedented insight into the astounding strength of the human spirit when confronted with illness, pain, loss, and death. Features 75 black-and-white photographs. Carolyn Jones's vivid and life-affirming portraits capture people from all backgrounds—children and grandmothers, men and women of all races—living with HIV and AIDS. It is estimated that over one million people in the United States would test positive for the Human Immune Virus, and many others are already suffering from Acquired Immune Deficiency Syndrome. A common-and harmful-misconception holds that AIDS is an instant death sentence but, in fact, testing positive for HIV does not mean immediate illness. Carolyn Jones has collaborated with George DeSipio, Jr., and Michael Liberatore (co-founders of the project), and the seventy-three people who volunteered to pose for these photographs in an inspiring effort to change the way we think about AIDS. Jones's compelling portraits have the power to profoundly alter perceptions about this disease, and about the way we all live and die. AIDS poses challenging questions that we must each grapple with, whether healthy or not. These captivating pictures illustrate the self-confidence and wisdom of ordinary people coping with an extraordinary fate, facing their mortality, questioning their priorities, and living life to the fullest. Their energy, courage, and dignity in the face of such adversity offer a vital lesson in how to embrace life, day by day. Their faces and their stories are proof that AIDS doesn't look like anyone—it looks like, and ultimately is, all of us. Design Industries Foundation for AIDS (DIFFA) is the sole recipient of the royalties from the sale of Living Proof. For additional information regarding Living Proof and the Design Industries Foundation for AIDS, please call DIFFA: (212) 727-3100.




The Changing Face of AIDS


Book Description

Social work practitioners active among those most directly involved with persons with AIDS/HIV need guidance and support. This volume offers both in a balanced analysis of key issues relating to their practice. The authors clearly and authoritatively establish that the demographics of the AIDS/HIV crisis are undergoing change rapidly and alarmingly. Although there have been significant advances in education about AIDS and modifications in sexual practices among gay men resulting in a lowered rate of new infection, other groups are shown to be evidencing explosive levels of infection. Not only are the population parameters of AIDS defined, but the fundamental issues of social service delivery are addressed as are the special needs of the newly at-risk groups. Women, adolescents, substance abusers, minorities, and the mentally ill are all in the demographic patterns describing AIDS/HIV diffusion. The most compelling AIDS care issues are directly focused on and practical guidance is given to social work practitioners. AIDS/HIV poses a sometimes daunting challenge threatening to overwhelm service providers. This book will be of value due to its sensitive, insightful, experience-based guidance at the level of practice. It will also prove a useful resource for all in the caring professions who will appreciate its timely explanation of the complexities involved in framing effective responses to current and emerging needs associated with AIDS/HIV.




The Social Impact of AIDS in the United States


Book Description

Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.




Workable Sisterhood


Book Description

Workable Sisterhood is an empirical look at sixteen HIV-positive women who have a history of drug use, conflict with the law, or a history of working in the sex trade. What makes their experience with the HIV/AIDS virus and their political participation different from their counterparts of people with HIV? Michele Tracy Berger argues that it is the influence of a phenomenon she labels "intersectional stigma," a complex process by which women of color, already experiencing race, class, and gender oppression, are also labeled, judged, and given inferior treatment because of their status as drug users, sex workers, and HIV-positive women. The work explores the barriers of stigma in relation to political participation, and demonstrates how stigma can be effectively challenged and redirected. The majority of the women in Berger's book are women of color, in particular African Americans and Latinas. The study elaborates the process by which these women have become conscious of their social position as HIV-positive and politically active as activists, advocates, or helpers. She builds a picture of community-based political participation that challenges popular, medical, and scholarly representations of "crack addicted prostitutes" and HIV-positive women as social problems or victims, rather than as agents of social change. Berger argues that the women's development of a political identity is directly related to a process called "life reconstruction." This process includes substance- abuse treatment, the recognition of gender as a salient factor in their lives, and the use of nontraditional political resources.




Living and Loving in the Age of AIDS


Book Description

This is the tale of a devastating pandemic, of lives cut painfully short; it's also a love letter. Derek, a distinguished designer and J, his husband, a pioneering entrepreneur and creator of both The Embassy Club, London’s answer to Studio 54, and iconic Heaven, Europe’s largest gay discotheque, met and fell in love more than 40 years ago. Their lives were high-octane, full of adventure, fun and fearless creativity. Suddenly their friends began to get sick and die – AIDS had arrived in their lives. When they got tested, J received what was then a death sentence: he was HIV Positive. While the onset of AIDS strengthened stigma and fear globally, they confronted their personal crisis with courage, humour and an indomitable resolve to survive. J’s battle lasted six long years. Turning to spiritual reflection, yoga, nature – and always to love – Derek describes a transformation of the spirit, how compassion and empathy rose phoenix-like from the flames of sickness and death. Out of this transformation also came Aids Ark, the charity they founded, which helped to save, amongst the world’s most marginalised people, more than 1,000 HIV Positive lives. This is a story of joy and triumph; about facing universal challenges; about the great rewards that come from giving back. Derek speaks for a generation who lived through a global health crisis that many in society refused even to acknowledge. His is a powerful story chronicling this extraordinary time.




AIDS TV


Book Description

Camcorder AIDS activism is a prime example of a new form of political expression--an outburst of committed, low-budget, community-produced, political video work made possible by new accessible technologies. As Alexandra Juhasz looks at this phenomenon--why and how video has become the medium for so much AIDS activism--she also tries to make sense of the bigger picture: How is this work different from mainstream television? How does it alter what we think of the media's form and function? The result is an eloquent and vital assessment of the role media activism plays in the development of community identity and self-empowerment. An AIDS videomaker herself, Juhasz writes from the standpoint of an AIDS activist and blends feminist film critique with her own experience. She offers a detailed description of alternative AIDS video, including her own work on the Women's AIDS Video Enterprise (WAVE). Along with WAVE, Juhasz discusses amateur video tapes of ACT UP demonstrations, safer sex videos produced by Gay Men's Health Crisis, public access programming, and PBS documentaries, as well as network television productions. From its close-up look at camcorder AIDS activism to its critical account of mainstream representations, AIDS TV offers a better understanding of the media, politics, identity, and community in the face of AIDS. It will challenge and encourage those who hope to change the course of this crisis both in the 'real world' and in the world of representation.




AIDS and Power


Book Description

Publisher Description




Hidden Mercy


Book Description

The 1980s and 1990s, the height of the AIDS crisis in the United States, was decades ago now, and many of the stories from this time remain hidden: A Catholic nun from a small Midwestern town packs up her life to move to New York City, where she throws herself into a community under assault from HIV and AIDS. A young priest sees himself in the many gay men dying from AIDS and grapples with how best to respond, eventually coming out as gay and putting his own career on the line. A gay Catholic with HIV loses his partner to AIDS and then flees the church, focusing his energy on his own health rather than fight an institution seemingly rejecting him. Set against the backdrop of the HIV and AIDS epidemic of the late twentieth century and the Catholic Church's crackdown on gay and lesbian activists, journalist Michael O'Loughlin searches out the untold stories of those who didn't look away, who at great personal cost chose compassion--even as he seeks insight for LGBTQ people of faith struggling to find a home in religious communities today. This is one journalist's--gay and Catholic himself--compelling picture of those quiet heroes who responded to human suffering when so much of society--and so much of the church--told them to look away. These pure acts of compassion and mercy offer us hope and inspiration as we continue to confront existential questions about what it means to be Americans, Christians, and human beings responding to those most in need.