Voluntarily Stopping Eating and Drinking


Book Description

Many people who are experiencing unacceptable suffering or deterioration in the present, or who fear them in the near future, do not know their full range of options to hasten death. This is particularly true if they live in jurisdictions that do not allow a physician assisted death - over forty jurisdictions in the U.S. and most countries across the world. Though VSED is readily available, and not illegal, most people are unaware of it as an option. The informationin this book is vital to those considering their options either hypothetically or in real time, providing an integrated, balanced, and nuanced exploration of VSED with contributions from legal, medical, and ethical experts.




Choosing To Die


Book Description

Phyllis Shacter courageously shares the first personal story ever written about VSED (voluntarily stopping eating and drinking). This memoir and guidebook follows the journey she took with her husband, Alan, once he decided to VSED so he didn't have to live into the late stages of Alzheimer's disease. This is their love story, their partnership, the brave territory they traversed, including how they prepared themselves with proper medical and legal guidance. They knew they were paving the way for others who would follow in their footsteps. Every detail is shared, including what happened to Alan during the nine-and-a-half days it took for him to die, and how the experience transformed Phyllis. This book is for anyone who wants a deeper understanding of end of life choices, and especially for anyone who has been diagnosed with a degenerative disease. www.PhyllisShacter.com




Interdisciplinary Nutritional Management and Care for Older Adults


Book Description

Intro -- Foreword -- Acknowledgements -- Contents -- Part I: Nutritional Care in Geriatrics -- 1: Overview of Nutrition Care in Geriatrics and Orthogeriatrics -- 1.1 Defining Malnutrition -- 1.2 Nutrition Care in Older Adults: A Complex and Necessary Challenge -- 1.3 Malnutrition: A Truly Wicked Problem -- 1.4 Building the Rationale for Integrated Nutrition Care -- 1.5 Managing the Wicked Nutrition Problems with a SIMPLE Approach (or Other Tailored Models) -- 1.5.1 Keep It SIMPLE When Appropriate -- 1.5.2 A SIMPLE Case Example -- 1.5.2.1 S-Screen for Malnutrition -- 1.5.2.2 I-Interdisciplinary Assessment -- 1.5.2.3 M-Make the Diagnosis (es) -- 1.5.2.4 P-Plan with the Older Adult -- 1.5.2.5 L-Implement Interventions -- 1.5.2.6 E-Evaluate Ongoing Care Requirements -- 1.6 Bringing It All Together: Integrated Nutrition Care Across the Four Pillars of (Ortho) Geriatric Care -- 1.7 Summary: Finishing Off with a List of New Questions -- References -- Recommended Reading -- 2: Nutritional Requirements in Geriatrics -- 2.1 Nutritional Recommendations for Older Adults, Geriatric and Orthogeriatric Patients -- 2.2 Nutritional Recommendations for Older Adults -- 2.2.1 Energy Requirement and Recommended Intake -- 2.2.2 Protein Requirement and Recommended Intake -- 2.2.3 Micronutrients and Dietary Fibers -- 2.3 Nutritional Risk Factors in Older Adults -- 2.4 Estimating Intake in Older Adults -- 2.5 Nutritional Status of Older Adults, Geriatric and Orthogeriatric Patients -- 2.6 Summary -- References -- Recommended Reading -- 3: Nutritional Assessment, Diagnosis, and Treatment in Geriatrics -- 3.1 The Nutrition Care Process -- 3.2 Nutritional Screening/Risk Detection -- 3.3 Nutritional Assessment and Diagnosis -- 3.3.1 Nutrition Impact Symptoms -- 3.3.2 Nutritional Diagnosis -- 3.3.3 Etiologic Criteria.




The Last Ten Days - Academia, Dementia, and the Choice to Die


Book Description

The Last Ten Days addresses the concerns of loved ones and caregivers, providing them not only with information but also acknowledging the sadness and frustration, the heartache and bittersweet memories experienced during this painful time. To these readers, the book says, “You are not alone.” The Last Ten Days: Academia, Dementia, and the Choice to Die is a heartrending memoir of love, scholarship, dignity, courage, and the choices one is forced to make when given the devastating diagnosis of a terminal illness. Spanning sixty years, this extraordinary book recounts the love story of Martha Risberg Brosio and her husband, Richard Brosio, Ph.D., a brilliant scholar and college professor whose communication skills dazzled all with whom he came in contact. Teenage sweethearts who went their separate ways after high school, Martha and Richard reconnected twenty-six years later over a friendly dinner that sparked into passionate love. They married in 1983, enjoying a vibrant life. Then tragedy struck. In late 2013, Richard was diagnosed with Primary Progressive Aphasia, a type of dementia similar to Alzheimer’s that affects the frontal and temporal lobes of the brain. The disease impacted Richard’s ability to communicate. Eventually, he would lose his verbal and processing skills. There was no cure. Determined to have a dignified death at the time and in the manner of his own choosing, Richard hastened his death two years after his diagnosis by voluntarily stopping eating and drinking, seeking only palliative and hospice care until the end. Reminiscent of Still Alice, The Notebook, Tuesdays with Morrie, and When Breath Becomes Air, The Last Ten Days grabs the heartstrings and gives a mighty tug.




Sedation at the End-of-life: An Interdisciplinary Approach


Book Description

The book’s main contribution is its interdisciplinary approach to the issue of sedation at the end-of-life. Because it occurs at the end of life, palliative sedation raises a number of important ethical and legal questions, including whether it is a covert form of euthanasia and for what purposes it may legally be used. Many of the book chapters address the first question and almost all deal with a specific form of the second: whether palliative sedation should be used for those experiencing “existential suffering”? This raises the question of what existential suffering is, a topic that is also discussed in the book. The different chapters address these issues from the perspectives of the relevant disciplines: Palliative Medicine, Bioethics, Law and Theology. Hence, helpful accounts of the clinical and historical background for this issue are provided and the importance of drawing accurate ethical and legal distinctions is stressed throughout the whole book. So the volume represents a valuable contribution to the emerging literature on this topic and should be helpful across a broad spectrum of readers: philosophers, theologians and physicians.




Terminal Sedation: Euthanasia in Disguise?


Book Description

TERMINAL SEDATION DURING THE 1990s During the 1990s a discussion took place in scholarly journals concerning a measure within palliative care that had earlier attracted little attention, to wit, the sedation of dying patients. There seem to have been two main reasons why the practice came under debate. On the one hand, some people felt that, when palliative medicine had advanced and methods to control symptoms had improved, it was no longer justified to sedate the patients in a manner that had often been done in the past. The system of 1 terminal sedation had turned into ‘euthanasia in disguise’ or ‘slow euthanasia’. On the other hand, there were people sympathetic to the recently established Dutch system of euthanasia, people who agreed that terminal sedation was euthanasia in disguise, but who felt that, if it is not objectionable to sedate dying patients at their request, then why should it not be permitted for doctors to kill dying patients at 2 request? From these two motives a discussion about terminal sedation gained momentum. The intention behind this anthology is to continue and deepen this discussion. The anthology starts off with a chapter where an influential article from the 1990s has been reprinted.




Voluntarily Stopping Eating and Drinking


Book Description

"Four stories of real patients who considered and then activated plans to voluntarily stop eating and drinking (VSED) are presented. Each had unique personal and clinical circumstances, but all wanted to know what "escape options" might be possible if their anticipated or actual suffering or deterioration became unacceptable to them. Most were initially unaware of VSED as a life-ending option until informed by the treating clinicians, and some were disappointed that they could not receive medical aid-in-dying which they clearly would have preferred. The process of becoming aware and then ultimately choosing and completing VSED are explored. The prospect of losing decision-making capacity late in VSED and expressing a basic desire for food and drink should be anticipated and planned for. VSED was ultimately effective in helping these patients achieve a wished-for death, but the process was not without challenges"--




Finish Strong (Second Edition)


Book Description

Finish Strong by Barbara Coombs Lee is for those of us who want an end-of-life experience to match the life we've enjoyed-defined by love, purpose, and agency. Written with candor and clarity by a former nurse, physician assistant and attorney, Finish Strong's stories, facts and dialogue will help prepare for latter days that reflect your values and priorities. The second edition of Finish Strong, published in September 2022, features valuable new material, including a brand new chapter called "Race and Culture Matter;" an Afterword by Kim Callinan, the President/CEO of Compassion & Choices; and a detailed index for the book. -----Praise for FINISH STRONG----- "Barbara Coombs Lee covers all the issues we must address. Read Finish Strong and use it as a guide to consider your own final decisions." - Diane Rehm, executive producer of The Diane Rehm Show and author of When My Time Comes. "Finish Strong will help people who want to pass the gift of life back into the hands of their God thankfully and with dignity. It is a blessing." - Archbishop Emeritus Desmond Tutu




Choosing to Live, Choosing to Die


Book Description

★ “Tate’s sprawling work is a fascinating guide that belongs in all middle school, high school, and public libraries. This resource will help tweens and teens looking to better understand death and dying for personal or academic purposes.”—School Library Journal, starred review With many jurisdictions considering whether or not to implement new assisted-death legislation, Choosing to Live, Choosing to Die is a timely look at the subject for teen readers who may not yet have had much experience with death and dying. Readers are introduced to the topic of assisted dying through the author's own story. The issue continues to be hotly debated in families, communities and countries around the world, and there are no easy answers. Choosing to Live, Choosing to Die looks at the issue from multiple perspectives and encourages readers to listen with an open mind and a kind heart and reach their own conclusions.




With the End in Mind


Book Description

For readers of Atul Gawande and Paul Kalanithi, a palliative care doctor's breathtaking stories from 30 years spent caring for the dying. Modern medical technology is allowing us to live longer and fuller lives than ever before. And for the most part, that is good news. But with changes in the way we understand medicine come changes in the way we understand death. Once a familiar, peaceful, and gentle -- if sorrowful -- transition, death has come to be something from which we shield our eyes, as we prefer to fight desperately against it rather than accept its inevitability. Dr. Kathryn Mannix has studied and practiced palliative care for thirty years. In With the End in Mind , she shares beautifully crafted stories from a lifetime of caring for the dying, and makes a compelling case for the therapeutic power of approaching death not with trepidation, but with openness, clarity, and understanding. Weaving the details of her own experiences as a caregiver through stories of her patients, their families, and their distinctive lives, Dr. Mannix reacquaints us with the universal, but deeply personal, process of dying. With insightful meditations on life, death, and the space between them, With the End in Mind describes the possibility of meeting death gently, with forethought and preparation, and shows the unexpected beauty, dignity, and profound humanity of life coming to an end.