A Caregiver's Guide to Communication Problems from Brain Injury or Disease


Book Description

An all-in-one guide for helping caregivers of individuals with brain injury or degenerative disease to address speech, language, voice, memory, and swallowing impairment and to distinguish these problem areas from healthy aging. Advances in science mean that people are more likely to survive a stroke or live for many years after being diagnosed with a degenerative disease such as Parkinson's. But the communication deficits that often accompany a brain injury or chronic neurologic condition—including problems with speech, language, voice, memory, and/or swallowing—can severely impact quality of life. If you are a caregiver coping with these challenges, this all-in-one book can help you and your loved one. Written by a team of experts in speech-language pathology, each chapter focuses on a different aspect of caregiving and features relatable patient examples. Providing answers to common questions, definitions of complex medical terms, and lists of helpful resources, this book also: • touches on expected, age-related changes in communication, memory, swallowing, and hearing abilities, to name a few • offers practical strategies for caregivers to cope with speech, language, and voice problems and to maximize their loved one's ability to communicate • reveals how caregivers can assist their loved ones with swallowing challenges to maintain good nutrition and hydration • provides crucial information on how caregivers can handle grief and take care of themselves during the caregiving process • explains how to incorporate the arts, as well as a loved one's hobbies and interests, into their communication or memory recovery This comprehensive book will allow readers to take a more informed and active role in their loved one's care. Contributors: Marissa Barrera, Frederick DiCarlo, Lea Kaploun, Elizabeth Roberts, Teresa Signorelli Pisano




A Caregiver's Guide to Communication Problems from Brain Injury or Disease


Book Description

Providing answers to common questions, definitions of complex medical terms, and lists of helpful resources, this book also:; touches on expected, age-related changes in communication, memory, swallowing, and hearing abilities, to name a few; offers practical strategies for caregivers to cope with speech, language, and voice problems and to maximize their loved one's ability to communicate; reveals how caregivers can assist their loved ones with swallowing challenges to maintain good nutrition and hydration ; provides crucial information on how caregivers can handle grief and take care of themselves during the caregiving process; explains how to incorporate the arts, as well as a loved one's hobbies and interests, into their communication or memory recoveryThis comprehensive book will allow readers to take a more informed and active role in their loved one's care.Contributors: Marissa Barrera, Frederick DiCarlo, Lea Kaploun, Elizabeth Roberts, Teresa Signorelli Pisano




Coping with Concussion and Mild Traumatic Brain Injury


Book Description

A comprehensive guide for improving memory, focus, and quality of life in the aftermath of a concussion. Often presenting itself after a head trauma, concussion— or mild traumatic brain injury (mTBI)— can cause chronic migraines, depression, memory, and sleep problems that can last for years, referred to as post concussion syndrome (PCS). Neuropsychologist and concussion survivor Dr. Diane Roberts Stoler is the authority on all aspects of the recovery process. Coping with Concussion and Mild Traumatic Brain Injury is a lifeline for patients, parents, and other caregivers.




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




The Traumatized Brain


Book Description

Useful information and real hope for patients and families whose lives have been altered by traumatic brain injury. A traumatic brain injury is a life-changing event, affecting an individual’s lifestyle, ability to work, relationships—even personality. Whatever caused it—car crash, work accident, sports injury, domestic violence, combat—a severe blow to the head results in acute and, often, lasting symptoms. People with brain injury benefit from understanding, patience, and assistance in recovering their bearings and functioning to their full abilities. In The Traumatized Brain, neuropsychiatrists Drs. Vani Rao and Sandeep Vaishnavi—experts in helping people heal after head trauma—explain how traumatic brain injury, whether mild, moderate, or severe, affects the brain. They advise readers on how emotional symptoms such as depression, anxiety, mania, and apathy can be treated; how behavioral symptoms such as psychosis, aggression, impulsivity, and sleep disturbances can be addressed; and how cognitive functions like attention, memory, executive functioning, and language can be improved. They also discuss headaches, seizures, vision problems, and other neurological symptoms of traumatic brain injury. By stressing that symptoms are real and are directly related to the trauma, Rao and Vaishnavi hope to restore dignity to people with traumatic brain injury and encourage them to ask for help. Each chapter incorporates case studies and suggestions for appropriate medications, counseling, and other treatments and ends with targeted tips for coping. The book also includes a useful glossary, a list of resources, and suggestions for further reading.




Cerebral Palsy


Book Description

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.




After Brain Injury


Book Description

This workbook has been developed specifically for survivors of brain injury and blast injury. Based on journaling workshops for survivors of traumatic brain injury, it is filled with journaling exercises that guide the user through examining and expressing the many ways that the brain injury has affected and altered their lives. Vignettes by individuals give it a personal touch and also serve as examples of journaling. Users may go through the workbook from front to back or they may select chapters and activities most relevant to their lives and stage of recovery.Sections explore¿¿changing sense of self¿loss, memory and resilience¿altered relationships with family and friends¿anger and emotions¿grief and loss¿facing the future¿building hope¿moving forwardJournaling is a proven therapeutic tool used to explore one¿s inner self by expressing emotions, confronting fears, relieving anxiety, coping with stress, celebrating successes, and preparing for new challenges. By writing for only a few minutes at a time, journalers can heal and cope with crises due to illness, death, or any life-altering event. This is the first journaling workbook developed specially for adults with acquired brain injuries, and it can be used by individuals or facilitated groups. Families will find it helpful as an outlet and coping mechanism for survivors. Clinicians will find it a useful cognitive tool for building communication skills of reading, writing and comprehension. Families and clinicians will find it helpful for promoting insight, self-awareness and goal setting.




Neuropalliative Care


Book Description

This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Hill-Burton Is...


Book Description