Already Toast


Book Description

The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




The Forgetting


Book Description

NATIONAL BESTSELLER A powerfully engaging, scrupulously researched, and deeply empathetic narrative of the history of Alzheimer’s disease, how it affects us, and the search for a cure. Afflicting nearly half of all people over the age of 85, Alzheimer’s disease kills nearly 100,000 Americans a year as it insidiously robs them of their memory and wreaks havoc on the lives of their loved ones. It was once minimized and misunderstood as forgetfulness in the elderly, but Alzheimer’s is now at the forefront of many medical and scientific agendas, for as the world’s population ages, the disease will touch the lives of virtually everyone. David Shenk movingly captures the disease’s impact on its victims and their families, and he looks back through history, explaining how Alzheimer’s most likely afflicted such figures as Jonathan Swift, Ralph Waldo Emerson, and Willem de Kooning. The result is a searing and graceful account of Alzheimer’s disease, offering a sobering, compassionate, and ultimately encouraging portrait.




Caring for Your Parents


Book Description

"Practical advice you can trust from the experts at AARP"--Cover.




Sharing the Caring


Book Description




Relatives Raising Children


Book Description

The rapid growth of kinship foster care--full-time parenting of children by relatives or other adults who have a kinship bond with a child--has caught many child welfare agencies off guard. This monograph presents information needed by professionals, agencies, institutions, communities, and organizations to develop and provide services to kinship caregivers, kinship families, children, and parents. The monograph contains discussions of common clinical issues, suggests intervention strategies, examines kinship care's legal implications, and offers policy and program recommendations. Chapter 1 compares relative or kinship care to traditional family foster care, and outlines the characteristics of kinship care that necessitate changes in outlook and practice. Chapter 2 analyzes the clinical issues that must be considered in serving children, parents, and kinship caregivers. Chapters 3 and 4 provide guidance on child welfare practice with kinship families. Chapter 5 considers the effect of culturally based child-rearing practices, gender roles, and hierarchy of authority on child welfare practice with kinship families, as well as the impact of parental incarceration, substance abuse, and HIV/AIDS. Chapter 6 looks at the legal rights, responsibilities, and status of kinship families, caregivers, parents, and children. Chapter 7 discusses federal and state issues for program and policy development; this chapter also examines the philosophy and values underlying provision of financial support to kinship families, the emerging federal role, state policy directions, and permanency planning. Contains 40 references. (KB)




Counting On Kindness


Book Description

Seattle mental health counselor Lustbader here compells attention to and sympathy for those who must rely on caregivers for their needs. Stories are related by patients themselves. From incapacitated men and women we learn of the humiliations caused by the loss of autonomy, of the frustrations at not being able to manage on one's own. Accounts from widely different sorts of patients and those who begrudgingly or willingly see to their care provide graphic lessons in sensitivity.




Caregiving


Book Description




Aging


Book Description