Vulnerability


Book Description

Alongside globalization, the sense of vulnerability among people and populations has increased. We feel vulnerable to disease as new infections spread rapidly across the globe, while disasters and climate change make health increasingly precarious. Moreover, clinical trials of new drugs often exploit vulnerable populations in developing countries that otherwise have no access to healthcare and new genetic technologies make people with disabilities vulnerable to discrimination. Therefore the concept of ‘vulnerability’ has contributed new ideas to the debates about the ethical dimensions of medicine and healthcare. This book explains and elaborates the new concept of vulnerability in today’s bioethics. Firstly, Henk ten Have argues that vulnerability cannot be fully understood within the framework of individual autonomy that dominates mainstream bioethics today: it is often not the individual person who is vulnerable, rather that his or her vulnerability is created through the social and economic conditions in which he or she lives. Contending that the language of vulnerability offers perspectives beyond the traditional autonomy model, this book offers a new approach which will enable bioethics to evolve into a global enterprise. This groundbreaking book critically analyses the concept of vulnerability as a global phenomenon. It will appeal to scholars and students of ethics, bioethics, globalization, healthcare, medical science, medical research, culture, law, and politics.




Vulnerability, Autonomy, and Applied Ethics


Book Description

Vulnerability is an important concern of moral philosophy, political philosophy and many discussions in applied ethics. Yet the concept itself—what it is and why it is morally salient—is under-theorized. Vulnerability, Autonomy, and Applied Ethics brings together theorists working on conceptualizing vulnerability as an action-guiding principle in these discussions, as well as bioethicists, medical ethicists and public policy theorists working on instances of vulnerability in specific contexts. This volume offers new and innovative work by Joel Anderson, Carla Bagnoli, Samia Hurst, Catriona Mackenzie and Christine Straehle, who together provide a discussion of the concept of vulnerability from the perspective of individual autonomy. The exchanges among authors will help show the heuristic value of vulnerability that is being developed in the context of liberal political theory and moral philosophy. The book also illustrates how applying the concept of vulnerability to some of the most pressing moral questions in applied ethics can assist us in making moral judgments. This highly innovative and interdisciplinary approach will help those grappling with questions of vulnerability in medical ethics—both theorists and practitioners—by providing principles along which to decide hard cases.







Afflicted


Book Description

How medical education and practice can move beyond a narrow focus on biological intervention to recognize the lived experiences of illness, suffering, and death. In Afflicted, Nicole Piemonte examines the preoccupation in medicine with cure over care, arguing that the traditional focus on biological intervention keeps medicine from addressing the complex realities of patient suffering. Although many have pointed to the lack of compassion and empathy in medical practice, few have considered the deeper philosophical, psychological, and ontological reasons for it. Piemonte fills that gap, examining why it is that clinicians and medical trainees largely evade issues of vulnerability and mortality and, doing so, offer patients compromised care. She argues that contemporary medical pedagogy and epistemology are not only shaped by the human tendency to flee from the reality of death and suffering but also perpetuate it. The root of the problem, she writes, is the educational and institutional culture that promotes reductionist understandings of care, illness, and suffering but avoids any authentic confrontation with human suffering and the fear and self-doubt that can come with that confrontation. Through a philosophical analysis of the patient-practitioner encounter, Piemonte argues that the doctor, in escaping from authentic engagement with a patient who is suffering, in fact “escapes from herself.” Piemonte explores the epistemology and pedagogy of medicine, examines its focus on calculative or technical thinking, and considers how “clinical detachment” diminishes physicians. She suggests ways that educators might cultivate the capacity for authentic patient care and proposes specific curricular changes to help students expand their moral imaginations.




What It Means to Be Human


Book Description

American law assumes that individuals are autonomous, defined by their capacity to choose, and not obligated to each other. But our bodies make us vulnerable and dependent, and the law leaves the weakest on their own. O. Carter Snead argues for a paradigm that recognizes embodiment, enabling law and policy to provide for the care that people need.




Vulnerability


Book Description

This volume breaks new ground by investigating the ethics of vulnerability. Drawing on various ethical traditions, the contributors explore the nature of vulnerability, the responsibilities owed to the vulnerable, and by whom.







Vulnerable Subjects


Book Description

"My primary concern is with the ethics of representing vulnerable subjects—persons who are liable to exposure by someone with whom they are involved in an intimate or trust-based relationship, unable to represent themselves in writing, or unable to offer meaningful consent to their representation by someone else.... Of primary importance is intimate life writing—that done within families or couples, close relationships, or quasi-professional relationships that involve trust—rather than conventional biography, which can be written by a stranger. The closer the relationship between writer and subject, the greater the vulnerability or dependency of the subject, the higher the ethical stakes, and the more urgent the need for ethical scrutiny."—from the Preface Vulnerable Subjects explores a range of life-writing scenarios-from the "celebrity" to the "ethnographic"—and a number of life-writing genres from parental memoir to literary case studies by Oliver Sacks. G. Thomas Couser addresses complex contemporary issues; he investigates the role of disability in narratives of euthanasia and explores the implications of the Human Genome Project for life-writing practices in any age when many regard DNA as a code that "scripts" lives and shapes identity. Throughout, his book is concerned with the ethical implications of the political and economic, as well as the mimetic, aspects of life writing.




Dictionary of Global Bioethics


Book Description

This Dictionary presents a broad range of topics relevant in present-day global bioethics. With more than 500 entries, this dictionary covers organizations working in the field of global bioethics, international documents concerning bioethics, personalities that have played a role in the development of global bioethics, as well as specific topics in the field.The book is not only useful for students and professionals in global health activities, but can also serve as a basic tool that explains relevant ethical notions and terms. The dictionary furthers the ideals of cosmopolitanism: solidarity, equality, respect for difference and concern with what human beings- and specifically patients - have in common, regardless of their backgrounds, hometowns, religions, gender, etc. Global problems such as pandemic diseases, disasters, lack of care and medication, homelessness and displacement call for global responses.This book demonstrates that a moral vision of global health is necessary and it helps to quickly understand the basic ideas of global bioethics.




Global Bioethics and Human Rights


Book Description

The ethical issues we face in health care, justice, and human rights extend beyond national boundaries—they are global and cross-cultural in scope. Editors Wanda Teays and Alison Dundes Renteln have assembled the works of a diverse interdisciplinary and international team of bioethics experts into a comprehensive, innovative, and accessible resource. Following a consideration of theoretical frameworks that inform a global bioethics, units on human rights, life and death, and public health form an in-depth look at contemporary issues in the field. Each unit includes cutting edge analyses and thought-provoking case studies, as well as discussion prompts. Topics range from torture and lethal injection to euthanasia, abortion, medical tourism, vulnerable human subjects, to health equity, vaccination programs, mental health, the ethics of surrogacy, and more. The second edition includes new essays on • bioethics and environmental ethics • medical tourism • torture and solitary confinement • institutional review boards • pediatric genomics • the abortion debate • the ethics of surrogacy • issues in global health ethics • revirgination surgery • global mental health • feminist perspectives on global aging • ethical considerations for vaccination programs