Cancer Rights Law


Book Description




A New Deal for Cancer


Book Description

An unprecedented constellation of experts—leading cancer doctors, policymakers, cutting-edge researchers, national advocates, and more—explore the legacy and the shortcomings from the fifty-year war on cancer and look ahead to the future. The longest war in the modern era, longer than the Cold War, has been the war on cancer. Cancer is a complex, evasive enemy, and there was no quick victory in the fight against it. But the battle has been a monumental test of medical and scientific research and fundraising acumen, as well as a moral and ethical challenge to the entire system of medicine. In A New Deal for Cancer, some of today’s leading thinkers, activists, and medical visionaries describe the many successes in the long war and the ways in which our deeper failings as a society have held us back from a more complete success. Together they present an unrivaled and nearly complete map of the battlefield across dimensions of science, government, equity, business, the patient provider experience, and more, documenting our emerging understanding of cancer’s many unique dimensions and offering bold new plans to enable the American health care system to deliver progress and hope to all patients.







Poverty, Health and Law


Book Description

Not every illness has a biological remedy. Poverty, Health and Law presents health in the broader social context of people''s lives, providing insights into the advancement of health through legal advocacy and interdisciplinary solutions to complex social problems. Focusing on basic legal rights and their relation to health--income and employment, housing, education, legal status, and personal safety--the authors provide information and insight into how the law may be used as a tool to improve health and how health care providers and lawyers can work together to invoke more effective and preventive remedies for patients and clients. As America prepares for major reform of its health care system, Poverty, Health and Law brings to the forefront the need to address the root causes of illness and poor health, particularly among vulnerable populations, by exploring remedies and innovations both within and outside of the health care system. "[T]his book is a helpful resource for existing and emerging MLPs that is sure to inspire improved care for the poor." -- World Medical & Health Policy "This book is intended to be used in at least three ways: (1) as a teaching tool primarily for legal and medical educators; (2) as a guidebook for newer or contemplated MLP programs; and (3) as a resource and reference work for MLP practitioners. It succeeds in each of these categories. ...The chief pedagogical goal, whose attainment is likely to be aided immeasurably by this volume, is not to get physicians and attorneys to think alike, but rather to teach members of each profession how and why the other professional thinks as he or she does. ...Taking on an ambitious and provocative agenda, they have done an excellent job of preparing future and current medical and legal practitioners to work collaboratively on behalf of patients/clients who need their joint advocacy. Any reader interested in the ways in which law and medicine might intersect on behalf of consumers'' well-being will benefit from attention to ''the'' book on the current achievements and future promise of MLPs." -- Journal of Law, Medicine & Ethics, Marshall B. Kapp, J.D., M.P.H., Director of the Florida State University Center for Innovative Collaboration in Medicine & Law "[This book] is an invaluable compendium of collective wisdom concerning the theory and practice of MLP--a gift. Those new to the field, whether practitioners, students, academics or bureaucrats, will scarcely believe their luck that such an impressive resource now exists; an exhaustive treatment of MLP from the foundations up. But Poverty, Health and Law isn''t just an edited collection of pieces from legal and medical practitioners from around the States--it is a thoughtful and strategic treatment of the subject with a unified structure and consistent educative approach. Intended as both a teaching tool and a resource for those engaged or interested in MLP, the book boasts numerous valuable features...[w]hether you are beginning to explore MLP or wanting to supercharge an existing partnership or alliance, Poverty, Health and Law will prove to be an indispensible reference." -- Peter Noble, Advocacy Health Alliances blog "Poverty, Health and Law is a valuable resource to enhance understanding of the non-medical factors that affect health. Garnering the expertise of authors from healthcare and law, Poverty, Health and Law is intentionally written to be accessible to students across disciplines of medicine, law, social work and public health. It is a crucial step in advancing the medical-legal partnership model and will also serve as a catalyst to stimulate further research about addressing the social determinants of health." -- David R. Williams, Ph.D., M.P.H., Florence Sprague Norman and Laura Smart Norman Professor of Public Health, Professor of African and African American Studies and of Sociology, Harvard University "This ground-breaking work shows how doctors and lawyers across the country can work together to protect the health of our most vulnerable populations. A comprehensive collection of compelling essays written by national experts, this volume is an invaluable teaching tool for the next generation of legal and health professionals to help guide and inspire such innovative interdisciplinary collaborations in the future. It is also a must-read for practitioners and policy-makers alike who want to understand how real health reform can happen at the grass-roots level." -- Charity Scott, J.D., Professor of Law and Director of the Center for Law, Health & Society, Georgia State University College of Law "Medical-legal partnerships unite the medical and legal professions in a common goal and create the ideal team to serve the healthcare and legal needs of vulnerable populations including children, cancer patients, senior citizens, and HIV/AIDS patients. Not only do they provide critical direct services to patients, they also promote systemic advocacy efforts that have an enormously positive impact on healthcare policies and practices. Poverty, Health and Law is an important guide that could not have been published at a more vital time." -- Steven B. Scudder, J.D., Committee Counsel, ABA Standing Committee on Pro Bono and Public Service







The Immortal Life of Henrietta Lacks


Book Description

#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.




Trade and Health


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Integrating health objectives and international trade policies.




Enforcing the ADA


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Research Handbook on Global Health Law


Book Description

The effect of Globalization on health has attracted the attention of scholars and policy makers across multiple disciplines. A key concern is the regulation of international health protection, and in particular the use of international health instruments and the complex interaction between international law and health considerations. For the first time, a group of law and policy scholars have analysed these issues, drawing on knowledge from their respective fields. The resulting book provides comprehensive coverage of contemporary issues in global health law and governance.




Malignant


Book Description

This book tells the stories of seven people with a distinct perspective on cancer. Experts on medical ethics, personal experience showed them how little they knew about the real world of serious illness. In this book, they describe cancer's teachings on ethics, medicine, and the experience of illness.