Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




The Complete Caregiver Support Guide


Book Description

Family members, and sometimes close friends, are often called upon to act as caregivers to ill or aged people they care about or for whom they are responsible. Although there are many rewarding outcomes of the time spent between the courageous and dedicated caregiver and the care-receiver*, the caregivers are usually unprepared, untrained and unsupported. The caregivers are also often isolated. These factors can put a huge amount of stress on non-professional or family caregivers. Attending a caregiver support group focusing on specific issues is of great benefit for caregivers. Such groups can include those facilitated by professionals such as social workers, counselors and group facilitators, and those facilitated by lay persons, often themselves caregivers. The intention of Caregiver Support is to provide content for support group facilitators and caregivers that touches on crucial topics.







Already Toast


Book Description

The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.




Men As Caregivers


Book Description

Today, more and more caregivers are male. Despite this fact, the vast majority of research on caregiving has centered on the experience of the female caregiver. This volume addresses the fundamental gap in our knowledge and theories about the growing male subpopulation of caregivers. The authors identify the serious limitations that result from viewing men caregivers through the lens of women's experiences and call for an unbiased and fresh perspective in future research. Special consideration is given to men who care for a family member with dementia; fathers of adult children with mental retardation; gay male caregivers for partners with AIDS; and sons and parent care.




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




The Connected Child: Bring Hope and Healing to Your Adoptive Family


Book Description

"An extremely useful parenting handbook... truly outstanding ... strongly recommended." --Library Journal (starred review) "A tremendous resource for parents and professionals alike." --Thomas Atwood, president and CEO, National Council for Adoption The adoption of a child is always a joyous moment in the life of a family. Some adoptions, though, present unique challenges. Welcoming these children into your family--and addressing their special needs--requires care, consideration, and compassion. Written by two research psychologists specializing in adoption and attachment, The Connected Child will help you: Build bonds of affection and trust with your adopted child Effectively deal with any learning or behavioral disorders Discipline your child with love without making him or her feel threatened "A must-read not only for adoptive parents, but for all families striving to correct and connect with their children." --Carol S. Kranowitz, author of The Out-of-Sync Child "Drs. Purvis and Cross have thrown a life preserver not only to those just entering uncharted waters, but also to those struggling to stay afloat." --Kathleen E. Morris, editor of S. I. Focus magazine "Truly an exceptional, innovative work . . . compassionate, accessible, and founded on a breadth of scientific knowledge and clinical expertise." --Susan Livingston Smith, program director,Evan B. Donaldson Adoption Institute "The Connected Child is the literary equivalent of an airline oxygen mask and instructions: place the mask over your own face first, then over the nose of your child. This book first assists the parent, saying, in effect, 'Calm down, you're not the first mom or dad in the world to face this hurdle, breathe deeply, then follow these simple steps.' The sense of not facing these issues alone--the relief that your child's behavior is not off the charts--is hugely comforting. Other children have behaved this way; other parents have responded thusly; welcome to the community of therapeutic and joyful adoptive families." --Melissa Fay Greene, author of There is No Me Without You: One Woman's Odyssey to Rescue Africa's Children




Caregiver Support Groups in America


Book Description




Retooling for an Aging America


Book Description

As the first of the nation's 78 million baby boomers begin reaching age 65 in 2011, they will face a health care workforce that is too small and woefully unprepared to meet their specific health needs. Retooling for an Aging America calls for bold initiatives starting immediately to train all health care providers in the basics of geriatric care and to prepare family members and other informal caregivers, who currently receive little or no training in how to tend to their aging loved ones. The book also recommends that Medicare, Medicaid, and other health plans pay higher rates to boost recruitment and retention of geriatric specialists and care aides. Educators and health professional groups can use Retooling for an Aging America to institute or increase formal education and training in geriatrics. Consumer groups can use the book to advocate for improving the care for older adults. Health care professional and occupational groups can use it to improve the quality of health care jobs.




Cerebral Palsy


Book Description

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.