Chronic Complex Diseases of Childhood


Book Description

This new book is a practical guide for physicians and other professionals who care for children and adolescents with complex, chronic diseases. These disorders are a challenge because they require multiple services, the information about the disorders are scattered, and the exact treatments are not available in standard texts. To overcome these barriers, this book provides a summary of the clinical features, laboratory diagnosis, and the general and specific treatments needed for optimal care of these children. The key points are presented in a clear, succinct format, providing recommendations that can be implemented within the time span of an office or emergency room visit. Furthermore, pitfalls that are encountered are emphasized and alternatives are suggested. For example, this resource outlines: - Routine and special vaccines that are needed or contraindicated for these children - Interactions between drugs and diseases that could result in surprising adverse effects - Care of medical devices such as gastrostomy tube and nebulizer machine - Specific medical treatment with the appropriate medication dosage - Chronic wound care - Education and rehabilitation recommendations - Patient support groups This book not only provides a disease specific guide, but also instructions for creating a medical home, information on disease-drug interactions, and references for further study.




When Your Child Has a Chronic Medical Illness


Book Description

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.




Vital Directions for Health & Health Care


Book Description

What can be more vital to each of us than our health? Yet, despite unprecedented health care spending, the U.S. health system is substantially underperforming, especially with respect to what should be possible, given current knowledge. Although the United States is currently devoting 18% of its Gross Domestic Product to delivering medical care¿more than $3 trillion annually and nearly double the expenditure of other advanced industrialized countries¿the U.S. health system ranked only 37th in performance in a World Health Organization assessment of member nations. In Vital Directions for Health & Health Care: An Initiative of the National Academy of Medicine, the U.S. National Academy of Medicine (NAM, formerly the Institute of Medicine), which has long stood as the nation¿s most trusted independent source of guidance in health, health care, and biomedical science, has marshaled the wisdom of more than 150 of the nation¿s best researchers and health policy experts to assess opportunities for substantially improving the health and well-being of Americans, the quality of care delivered, and the contributions of science and technology. This publication identifies practical and affordable steps that can and must be taken across eight action and infrastructure priorities, ranging from paying for value and connecting care, to measuring what matters most and accelerating the capture of real-world evidence. Without obscuring the difficulty of the changes needed, in Vital Directions, the NAM offers an important blueprint and resource for health, policy, and leaders at all levels to achieve much better health outcomes at much lower cost.




Extreme Parenting


Book Description

[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.




A Compromised Generation


Book Description

The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.




Public Health Ethics: Cases Spanning the Globe


Book Description

This Open Access book highlights the ethical issues and dilemmas that arise in the practice of public health. It is also a tool to support instruction, debate, and dialogue regarding public health ethics. Although the practice of public health has always included consideration of ethical issues, the field of public health ethics as a discipline is a relatively new and emerging area. There are few practical training resources for public health practitioners, especially resources which include discussion of realistic cases which are likely to arise in the practice of public health. This work discusses these issues on a case to case basis and helps create awareness and understanding of the ethics of public health care. The main audience for the casebook is public health practitioners, including front-line workers, field epidemiology trainers and trainees, managers, planners, and decision makers who have an interest in learning about how to integrate ethical analysis into their day to day public health practice. The casebook is also useful to schools of public health and public health students as well as to academic ethicists who can use the book to teach public health ethics and distinguish it from clinical and research ethics.




The Infectious Etiology of Chronic Diseases


Book Description

In recent years, a number of chronic diseases have been linked, in some cases definitively, to an infectious etiology: peptic ulcer disease with Helicobacter pylori, cervical cancer with several human papillomaviruses, Lyme arthritis and neuroborreliosis with Borrelia burgdorferi, AIDS with the human immunodeficiency virus, liver cancer and cirrhosis with hepatitis B and C viruses, to name a few. The proven and suspected roles of microbes does not stop with physical ailments; infections are increasingly being examined as associated causes of or possible contributors to a variety of serious, chronic neuropsychiatric disorders and to developmental problems, especially in children. The Infectious Etiology of Chronic Diseases: Defining the Relationship, Enhancing the Research, and Mitigating the Effects, summarizes a two-day workshop held by the Institute of Medicine's Forum on Microbial Threats to address this rapidly evolving field. Participants explored factors driving infectious etiologies of chronic diseases of prominence, identified difficulties in linking infectious agents with chronic outcomes, and discussed broad-based strategies and research programs to advance the field.




Definition of Serious and Complex Medical Conditions


Book Description

In response to a request by the Health Care Financing Administration (HCFA), the Institute of Medicine proposed a study to examine definitions of serious or complex medical conditions and related issues. A seven-member committee was appointed to address these issues. Throughout the course of this study, the committee has been aware of the fact that the topic addressed by this report concerns one of the most critical issues confronting HCFA, health care plans and providers, and patients today. The Medicare+Choice regulations focus on the most vulnerable populations in need of medical care and other services-those with serious or complex medical conditions. Caring for these highly vulnerable populations poses a number of challenges. The committee believes, however, that the current state of clinical and research literature does not adequately address all of the challenges and issues relevant to the identification and care of these patients.




Pediatric Chronic Fatigue Syndrome


Book Description

Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.




Conquering Your Child's Chronic Pain


Book Description

From a renowned expert in the field, a parent's guide to managing their child's chronic pain—to give back normal life to the 1 in 5 children for whom pain is a serious problem. A child's chronic pain undermines school performance and social and emotional health, erodes finances, and devastates the family. This book reveals what parents can do to alleviate their child's pain on a daily basis. Dr. Zeltzer's clinic is renowned for treatment of pediatric pain stemming from headaches, arthritis, irritable bowel syndrome; fibromyalgia, and more, via a multidisciplinary approach including specialists in psychiatry, hypnotherapy, yoga, acupuncture, biofeedback, and others. Based on more than 30 years study, Dr. Zeltzer offers ways to take control of the pain and ultimately become pain-free. She explains how to tell if the pain has become chronic, soothe the nervous system, reactivate the body's natural pain control mechanisms, which medications are most effective, breathing, muscle relaxation and visualization techniques, how to reduce parents' guilt and much more. It is never too late to treat pain in children, no matter how long it has lasted, says Dr. Zeltzer. Her book offers help and hope to families desperately in need.