Author : Greg Guest
Publisher : SAGE
Page : 833 pages
File Size : 17,57 MB
Release : 2015
Category : Medical
ISBN : 1452241333
Providing a comprehensive foundation for planning, executing, and monitoring public health research of all types, this book goes beyond traditional epidemiologic research designs to cover technology-based approaches emerging in the new public health landscape.
Author : Kali H. Trzesniewski
Publisher : American Psychological Association (APA)
Page : 264 pages
File Size : 49,52 MB
Release : 2011
Category : Psychology
ISBN :
This wide-ranging yet practical book shows how the analysis of secondary data can provide unique opportunities for advancing psychological science. --Book Jacket.
Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 385 pages
File Size : 18,37 MB
Release : 2014-04-01
Category : Medical
ISBN : 1587634333
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author : MIT Critical Data
Publisher : Springer
Page : 435 pages
File Size : 27,46 MB
Release : 2016-09-09
Category : Medical
ISBN : 3319437429
This book trains the next generation of scientists representing different disciplines to leverage the data generated during routine patient care. It formulates a more complete lexicon of evidence-based recommendations and support shared, ethical decision making by doctors with their patients. Diagnostic and therapeutic technologies continue to evolve rapidly, and both individual practitioners and clinical teams face increasingly complex ethical decisions. Unfortunately, the current state of medical knowledge does not provide the guidance to make the majority of clinical decisions on the basis of evidence. The present research infrastructure is inefficient and frequently produces unreliable results that cannot be replicated. Even randomized controlled trials (RCTs), the traditional gold standards of the research reliability hierarchy, are not without limitations. They can be costly, labor intensive, and slow, and can return results that are seldom generalizable to every patient population. Furthermore, many pertinent but unresolved clinical and medical systems issues do not seem to have attracted the interest of the research enterprise, which has come to focus instead on cellular and molecular investigations and single-agent (e.g., a drug or device) effects. For clinicians, the end result is a bit of a “data desert” when it comes to making decisions. The new research infrastructure proposed in this book will help the medical profession to make ethically sound and well informed decisions for their patients.
Author : Institute of Medicine
Publisher : National Academies Press
Page : 334 pages
File Size : 35,31 MB
Release : 2009-03-24
Category : Computers
ISBN : 0309124999
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Author : National Academies of Sciences, Engineering, and Medicine
Publisher : National Academies Press
Page : 126 pages
File Size : 39,24 MB
Release : 2015-09-18
Category : Science
ISBN : 0309378125
Sharing research data on public health issues can promote expanded scientific inquiry and has the potential to advance improvements in public health. Although sharing data is the norm in some research fields, sharing of data in public health is not as firmly established. In March 2015, the National Research Council organized an international conference in Stellenbosch, South Africa, to explore the benefits of and barriers to sharing research data within the African context. The workshop brought together public health researchers and epidemiologists primarily from the African continent, along with selected international experts, to talk about the benefits and challenges of sharing data to improve public health, and to discuss potential actions to guide future work related to public health research data sharing. Sharing Research Data to Improve Public Health in Africa summarizes the presentations and discussions from this workshop.
Author : Institute of Medicine
Publisher : National Academies Press
Page : 236 pages
File Size : 11,74 MB
Release : 2015-04-20
Category : Medical
ISBN : 0309316324
Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Author : Kahryn Hughes
Publisher : SAGE
Page : 253 pages
File Size : 20,6 MB
Release : 2019-12-02
Category : Social Science
ISBN : 1526482843
A comprehensive guide to carrying out Qualitative Secondary Analysis (QSA) that brings together expert advice and professional insight from leading researchers who have developed innovative theories and methods of QSA. Exploring crucial components of research and analysis—such as where to find resources, how to search within a resource, and working with both paper archives and non-textual data—each chapter offers insightful case studies, links to further reading and applied helpful hints and tips to help effectively apply these innovations to further the reader’s own research. A must read for Social Science students, early career researchers and researchers new to the field of QSA, this text will help readers through every aspect of a research process using QSA, from application to implications.
Author : John Goodwin
Publisher : SAGE
Page : 1409 pages
File Size : 11,45 MB
Release : 2012-07-23
Category : Reference
ISBN : 1446275949
One central and enduring image of the social science researcher is of an individual who commits a great deal of time to collecting original, primary data from a field of enquiry. This approach is often underpinned by a sincerely held belief that key research questions can only be explored by the collection of ever new, and ever greater amounts of data, or that already existing data are insufficient for researchers to test their ideas. Yet such an approach to social science research can be problematic not least because the collection of primary data can be an expensive, time-consuming, and even wasteful approach to social enquiry. Secondary analysis can serve many purposes, as well as being a valid approach in its own right. However, despite its widespread application, secondary analysis is often undervalued or perceived to be the preserve of only those interested in the re-use of large-scale survey data. Highlighting both the theory and practice of secondary analysis and the use of secondary sources, this collection considers the nature of secondary analysis as a research tool; reflects on the definitional debates surrounding terms such as secondary analysis, data re-use and restudies; illustrates how secondary analysis is used in social science research; and finally reviews the practical, methodological and ethical aspects of secondary analysis. Volume One: Using Secondary Sources and Secondary Analysis Volume Two: Quantitative Approaches to Secondary Analysis Volume Three: Qualitative Data and Research in Secondary Analysis Volume Four: Ethical, Methodological and Practical Issues in Secondary Analysis
Author : Cheryl Tatano Beck
Publisher : Routledge
Page : 200 pages
File Size : 20,30 MB
Release : 2019-01-15
Category : Medical
ISBN : 1351581058
Despite a long history in quantitative research, it is only recently that enthusiasm for secondary analysis of qualitative data has gained momentum across health and social science disciplines. Given that researchers have long known the inordinate amount of time and energy invested in conducting qualitative research, the appeal of secondary analysis of qualitative data is clear. Involving the use of an existing dataset to answer research questions that are different from those asked in the original study, this method allows researchers to once again make use of their hard-earned qualitative dataset and to listen to their participants’ voices to the best of their ability in order to improve care and promote understanding. As secondary qualitative data analysis continues to evolve, more methodological guidance is needed. This book outlines three approaches to secondary data analysis and addresses the key issues that researchers need to wrestle with, such as ethical considerations, voice, and representation. Intellectual and interpretive hazards that can jeopardize the outcome of these analyses are highlighted and discussed, as are the criteria for assessing their quality and trustworthiness. Written as a thought-provoking guide for qualitative researchers from across the health and social sciences, this text includes a review of the state of the science in nursing and a number of in-depth illustrative case studies.
