Reducing the Impact of Dementia in America


Book Description

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.




Health Promotion in Health Care – Vital Theories and Research


Book Description

This open access textbook represents a vital contribution to global health education, offering insights into health promotion as part of patient care for bachelor’s and master’s students in health care (nurses, occupational therapists, physiotherapists, radiotherapists, social care workers etc.) as well as health care professionals, and providing an overview of the field of health science and health promotion for PhD students and researchers. Written by leading experts from seven countries in Europe, America, Africa and Asia, it first discusses the theory of health promotion and vital concepts. It then presents updated evidence-based health promotion approaches in different populations (people with chronic diseases, cancer, heart failure, dementia, mental disorders, long-term ICU patients, elderly individuals, families with newborn babies, palliative care patients) and examines different health promotion approaches integrated into primary care services. This edited scientific anthology provides much-needed knowledge, translating research into guidelines for practice. Today’s medical approaches are highly developed; however, patients are human beings with a wholeness of body-mind-spirit. As such, providing high-quality and effective health care requires a holistic physical-psychological-social-spiritual model of health care is required. A great number of patients, both in hospitals and in primary health care, suffer from the lack of a holistic oriented health approach: Their condition is treated, but they feel scared, helpless and lonely. Health promotion focuses on improving people’s health in spite of illnesses. Accordingly, health care that supports/promotes patients’ health by identifying their health resources will result in better patient outcomes: shorter hospital stays, less re-hospitalization, being better able to cope at home and improved well-being, which in turn lead to lower health-care costs. This scientific anthology is the first of its kind, in that it connects health promotion with the salutogenic theory of health throughout the chapters. the authors here expand the understanding of health promotion beyond health protection and disease prevention. The book focuses on describing and explaining salutogenesis as an umbrella concept, not only as the key concept of sense of coherence.




Dementia Beyond Disease


Book Description

From the internationally acclaimed author of the groundbreaking and award-winning book Dementia Beyond Drugs comes another eye-opening exploration of how to improve the lives of people with dementia and those who care for them. In this revised edition-including updated facts, studies, and terminology-Dr. G. Allen Power demonstrates how to achieve sustainable success in dementia care by changing the caregiving lens to focus on well-being and the ways in which it can be enhanced in people living with dementia. Revealing how drug-based interventions as well as completely holistic approaches consistently fall short of addressing and meeting the needs of people with dementia, this book offers a proactive approach-one that challenges widely accepted dementia care practices and provides a compelling new framework to guide care decisions. Through in-depth examinations of seven domains of well-being, readers will discover how current care practices erode them, and the transformative approaches that can restore them, plus, how to apply a well-being approach to the everyday care of people living with dementia, a highly adaptable framework that can be adopted in any living environment, valuable insight on overcoming physical and operational barriers to well-being, a wealth of person-centered, strengths-based approaches to care, Filled with true stories that demonstrate the power of a well-being approach to greatly improve the lives of people with dementia as well as those who care for them, this book presents methods that promise a new and hopeful vision for achieving the best possible outcomes for every person living with cognitive changes. Readers will be challenged, motivated, and profoundly inspired. Book jacket.







Enhancing Health and Wellbeing in Dementia


Book Description

Every person living with dementia is entitled to the highest standards of wellbeing and health and social care services. This in-depth, evidence-based book identifies how outstanding quality integrated care might be achieved, whether in residential or home-based settings. Experienced dementia researcher Dr Shibley Rahman highlights the key contemporary underpinnings of integrated care that are required for wellbeing for living with dementia, including technology, staff performance, leadership, and intelligent regulation of services. The book addresses the major challenges to promoting person-centred care, and tackles difficult conversations around spirituality, sexuality and dying well. The crucial importance of promoting physical and mental health is emphasised. Taking into account recent developments in NICE guidelines and Cochrane reviews for dementia, this book presents an opportunity for all those involved in the provision of care for people with dementia to maintain a focus on delivering the best care possible, and to engage with the wider issues surrounding wellbeing. This book will be especially useful to commissioners following the NHS 'new models of care' "vanguards".




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




Dementia Rehabilitation


Book Description

Rehabilitation helps individuals maintain and optimize independence. Historically, people with dementia have received little rehabilitation and the focus has been on care to replace lost function. Dementia Rehabilitation is a resource for health and social professionals, service planners, policy makers, and academics. The book makes a compelling case for rehabilitation for people with dementia, including the views of people with dementia and the research evidence. For each area of function, the research evidence and relevant theory is summarized, followed by practical information on clinical assessment, and delivery of therapies. Identifies rehabilitation as a human right for people with dementia. Reviews functions affected by dementia, including cognition, communication, and physical function. Outlines evidence-based strategies to maintain function and to delay decline. Describes how to maintain activities of daily living and leisure activities. Includes techniques to maintain self-identity and mood. Recognizes the importance of environment and care partners in supporting rehabilitation. Summarizes models of care for rehabilitation.




An Extra Pair of Hands


Book Description

'Inspiring' GUARDIAN 'Heartbreaking' INDEPENDENT 'I loved it' ADAM KAY 'Beautiful' MATT HAIG 'Luminous' NICCI GERRARD 'Essential reading' MADELEINE BUNTING 'A celebration' CHRISTIE WATSON ----- A Best Book for Summer in The Times, Guardian and The i Independent Book of the Month ----- Caring is an issue that affects us all - as bestselling novelist Kate Mosse knows all too well. Kate has cared in turn for her father and mother, and for Granny Rosie, her 90-year-old mother-in-law. Along the way she has experienced the joys, challenges and frustrations shared by an invisible army of carers. At the heart of this care lie everyday acts of love, and the realisation that, sooner or later, most of us will come to rely on an extra pair of hands. ----- 'Lifts the spirits without pulling punches' IAN RANKIN 'Irresistible' RACHEL JOYCE 'Questions how and why we fetishise independence when the reality of human experience is always interdependence' GUARDIAN, BOOK OF THE DAY 'Heartfelt, funny and at times heartbreaking. 10/10' INDEPENDENT 'Utterly beautiful' FRANCESCA SEGAL




Living with Dementia


Book Description

This book addresses current issues in the neuroscience and ethics of dementia care, including philosophical as well as ethical legal, and social issues (ELSIs), issues in clinical, institutional, and private care-giving, and international perspectives on dementia and care innovations. As such, it is a must-read for anyone interested in a well-researched, thought-provoking overview of current issues in dementia diagnosis, care, and social and legal policy. All contributions reflect the latest neuroscientific research on dementia, either broadly construed or in terms of the etiologies and symptoms of particular forms of dementia. Given its interdisciplinary and international scope, its depth of research, and its qualitative emphasis, the book represents a valuable addition to the available literature on neuroethics, gerontology, and neuroscientific memory research.