› › Ethical Issues In Human Genetics

Assessing Genetic Risks

Author : Institute of Medicine

Publisher : National Academies Press

Page : 353 pages

File Size : 12,79 MB

Release : 1994-01-01

Category : Medical

ISBN : 0309047986

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Book Description

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.



How to Practice Academic Medicine and Publish from Developing Countries?

Author : Samiran Nundy

Publisher : Springer Nature

Page : 475 pages

File Size : 13,81 MB

Release : 2021-10-23

Category : Medical

ISBN : 9811652481

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Book Description

This is an open access book. The book provides an overview of the state of research in developing countries – Africa, Latin America, and Asia (especially India) and why research and publications are important in these regions. It addresses budding but struggling academics in low and middle-income countries. It is written mainly by senior colleagues who have experienced and recognized the challenges with design, documentation, and publication of health research in the developing world. The book includes short chapters providing insight into planning research at the undergraduate or postgraduate level, issues related to research ethics, and conduct of clinical trials. It also serves as a guide towards establishing a research question and research methodology. It covers important concepts such as writing a paper, the submission process, dealing with rejection and revisions, and covers additional topics such as planning lectures and presentations. The book will be useful for graduates, postgraduates, teachers as well as physicians and practitioners all over the developing world who are interested in academic medicine and wish to do medical research.



Evaluating Human Genetic Diversity

Author : National Research Council

Publisher : National Academies Press

Page : 101 pages

File Size : 36,69 MB

Release : 1998-01-19

Category : Science

ISBN : 0309184746

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Book Description

This book assesses the scientific value and merit of research on human genetic differencesâ€"including a collection of DNA samples that represents the whole of human genetic diversityâ€"and the ethical, organizational, and policy issues surrounding such research. Evaluating Human Genetic Diversity discusses the potential uses of such collection, such as providing insight into human evolution and origins and serving as a springboard for important medical research. It also addresses issues of confidentiality and individual privacy for participants in genetic diversity research studies.



Ethics and Human Genetics

Author : Dorothy C. Wertz

Publisher : Springer Science & Business Media

Page : 564 pages

File Size : 22,51 MB

Release : 2012-12-06

Category : Medical

ISBN : 3642736564

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Book Description

Based in part on a survey of ethical decision-marking among 682 medical geneticists worldwide, this book includes a chapter authored by a geneticistand an ethicist in 19 nations, describing genetic services, counselling, screening, prenatal diagnosis, and major ethical problems and social controversies faced by geneticists. The concluding chapter describes ethical and policy issues that exist worldwide, and offerssome possible resolutions.



Human Genome Editing

Author : National Academies of Sciences, Engineering, and Medicine

Publisher : National Academies Press

Page : 329 pages

File Size : 29,55 MB

Release : 2017-08-13

Category : Medical

ISBN : 0309452880

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Book Description

Genome editing is a powerful new tool for making precise alterations to an organism's genetic material. Recent scientific advances have made genome editing more efficient, precise, and flexible than ever before. These advances have spurred an explosion of interest from around the globe in the possible ways in which genome editing can improve human health. The speed at which these technologies are being developed and applied has led many policymakers and stakeholders to express concern about whether appropriate systems are in place to govern these technologies and how and when the public should be engaged in these decisions. Human Genome Editing considers important questions about the human application of genome editing including: balancing potential benefits with unintended risks, governing the use of genome editing, incorporating societal values into clinical applications and policy decisions, and respecting the inevitable differences across nations and cultures that will shape how and whether to use these new technologies. This report proposes criteria for heritable germline editing, provides conclusions on the crucial need for public education and engagement, and presents 7 general principles for the governance of human genome editing.



Ethics and Genetics

Author : Guido de Wert

Publisher : Berghahn Books

Page : 168 pages

File Size : 43,38 MB

Release : 2003-05

Category : Law

ISBN : 9781571816009

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Book Description

Genetic information plays an increasingly important role in ourlives. As a result of the Human Genome Project, knowledge ofthe genetic basis of various diseases is growing, withimportant consequences for the role of genetics in clinicalpractice, health care systems and for society at large. In theclinical setting genetic testing may result in a better insightinto susceptibility for inheritable diseases, not only before orafter birth, but also at later stages in life. Besides prenataltesting and pre-conceptional testing, predictive testing hasresulted in new possibilities for the early detection, treatmentand prevention of inheritable diseases. However, not all inheritable diseases that can be predicted onthe basis of genetic information can be treated or cured.Should we offer genetic tests to people for untreatablediseases? Should we test every individual who wants to knowhis or her genetic status? Should we inform family membersabout the results of genetic tests of individuals, even whenthere are no possibilities for treatment? What, in such cases,is the role of the "right-not-to-know"? Should we informfamily members when there is only an increased risk of adisease? This book deals with the ethical issues of clinicalgenetics, as well as ethical issues that arise in geneticscreening, the research of populations, and the use of geneticinformation for access to insurance and the workplace.



Human Genetics and Ethics

Author : Justin Healy

Publisher :

Page : pages

File Size : 36,3 MB

Release : 2018-07

Category :

ISBN : 9781925339666

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Book Description

Each cell in the human body contains about 20,000 genes. Genes carry the information that determines the traits that are passed on to you, or inherited, from your parents. Genes are the instructions for the growth and development of our bodies, however mutations in a person's genome can result in a genetic condition or disease. How do the building blocks of the human body - DNA, genes and chromosomes - interrelate and interact with the environment, and contribute to a range of serious diseases? What are the dilemmas, risks and regulations associated with genetic testing and its related privacy and discrimination issues, the corporate patenting of people's genes, and the growing prospects of human genetic enhancement? What are the ethical implications of gene therapies and emerging biotechnology techniques like gene editing (CRISPR) in the manipulation of the human genome, such as the recent controversial development of three-parent babies? In this new era of personalised medicine are we as a species, going too far, or are we on a promising path to curing many deadly diseases? Does this all amount to scientific progress, or are we playing God with our own genes?



Ethical Issues of Human Genetic Databases

Author : Bernice Elger

Publisher : Routledge

Page : 333 pages

File Size : 17,11 MB

Release : 2016-05-13

Category : Law

ISBN : 1317141466

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Book Description

Following the boom in population databases in recent years there has been sustained and intense international debate about political processes and legal and ethical issues surrounding the protection and use of genetic data. As a result, several national and international organizations and committees have published widely differing guidelines and statements concerning genetic databases and biobanks. Ethical Issues of Human Genetic Databases compares the new area of biobanking with the tradition of ethically accepted classical research and highlights the distinctive features of existing databases and guidelines. The volume identifies areas of consensus and controversy while investigating the challenges posed to classical health research ethics by the existence of genetic databases, analyzing the reasons for such varying guidelines. The book will be essential to academics, biobankers, policy-makers and researchers in the field of medical ethics.



The Political Implications Of Human Genetic Technology

Author : Robert H. Blank

Publisher : Routledge

Page : 239 pages

File Size : 20,60 MB

Release : 2019-06-26

Category : Social Science

ISBN : 1000304604

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Book Description

Human genetic technology has advanced rapidly in recent years to the point where amniocentesis is commonplace and in vitro fertilization has been successful. On the horizon looms the specter of human cloning and genetic engineering, raising a storm of new moral and ethical questions. These questions, asserts the author, are not the only ones to be considered; the impact and role of public policy are equally critical. What part should the state play in human genetic intervention? To what extent does a democratic society have the duty to take steps to reduce genetic disease and improve the quality of life through genetic engineering? If society has such responsibility, at what stage does societal good preempt individual rights? What is society's obligation toward future generations and is genetic manipulation justifiable on these grounds? After surveying the state of the art, the author grapples with these questions, contending that decisions ultimately will not be based on ethical and moral grounds –they will be fought out in the political arena.



Human Genetics. Ethical and Social Concerns

Author : Shakeel Abid

Publisher : GRIN Verlag

Page : 10 pages

File Size : 17,40 MB

Release : 2024-06-28

Category : Medical

ISBN : 3389041567

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Book Description

Scientific Essay from the year 2024 in the subject Medicine - Human Genetics, , language: English, abstract: Challenging ethical issues are raised by new advances and emerging technologies in genetic research. These issues incorporate genetic uniqueness, privacy and discrimination, customized medicine, intellectual property and genetic testing. Investigating these complex issues emphasizes the need to modify ethical guidelines and direct ethics committees about the benefits and ethical apprehension of contemporary genetic research. This review gives an outlook of some major aspects of ethical concerns in human genetics.