Finding Meaning in the Experience of Dementia


Book Description

This groundbreaking book is based on the findings of the first major study on spiritual reminiscence work with people with dementia. Carried out over a decade, the study confirmed spiritual reminiscence to be an effective means of helping people with dementia to find meaning in their own experience, and interact in meaningful ways with others. The authors present the evidence for the efficacy of spiritual reminiscence with this group, and drawing on examples demonstrate its many benefits, as revealed by the study, including the affirmation of identity and worth whilst promoting resilience and transcendence; reducing levels of depression; and giving people with dementia a voice with which to express grief, despair, joy, wisdom, insight and humour. Specific practice issues are addressed, including how to maximise communication and nurture connections during sessions; the role of symbol, ritual and liturgy and how to design an effective spiritual reminiscence program. Transcripts of sessions are included throughout the book as examples, providing unprecedented insight into how people with dementia experience spiritual reminiscence, and encouraging reflective practice. The book closes with a set of suggested questions and discussion topics which can be used as the basis of a six week program. Providing theory and the latest research as well as a wealth of practical information and examples to guide practice, this book will be of interest to dementia care practitioners and activity coordinators, pastoral carers, aged care chaplains, practical theologians, students, academics and researchers.




Finding Meaning in the Experience of Dementia


Book Description

This groundbreaking book reveals the findings of the first major study on spiritual reminiscence with people with dementia. The authors present evidence for the efficacy of spiritual reminiscence with this group, and drawing on examples demonstrate its many benefits, as revealed by the study.




Loving Someone Who Has Dementia


Book Description

Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.







In Later Years


Book Description

A Unitarian Universalist minister and chaplain at a large senior residence community leads us on a journey through the stories and experiences of elders, offering insights into navigating this unique stage of life. Drawing on scores of personal interviews, this straightforward yet introspective volume of real-life accounts provides a felt sense of the challenges and blessings of aging. Unlike many books on the topic, In Later Years focuses particularly on older seniors--those in their late seventies, eighties, and nineties. Interviewees thoughtfully share their joys, regrets, accomplishments, and things left unfinished, while also considering the ways they cope with diminishing physical and mental abilities. Weaving these personal reflections and accounts together, Marshall explores questions of meaning and spirituality that ultimately reveal larger themes and hold up the opportunities for discovery, connection, and renewal available to us in advanced age. The book also serves as an invaluable resource for family members and caregivers, suggesting ways to understand and help with the issues that attend growing old. Detailed appendices provide tips and a simple curriculum for gathering and facilitating group discussions.







Creating Joy and Meaning for the Dementia Patient


Book Description

According to recent estimates, more than five million Americans suffer from dementia or Alzheimer’s disease, a number predicted to grow as Baby Boomers continue to age. Although staggering, these statistics only tell half of the story. As caregivers are thrust into situations they never could have predicted, the emotional, physical, and financial strains are enormous and cannot be overestimated. As the number of dementia patients continues to increase, so will the number of caregivers searching for answers and advice. Creating Joy and Meaning for the Dementia Patient offers a positive and innovative approach to dementia care that focuses on the caregiver’s power to create an atmosphere of joy and peace for both the patient and themselves, breathing fresh air into the topic of dementia care. As the disease progresses, the patient’s world grows smaller and smaller. Time for them no longer consists of weeks, days, or even hours. Eventually their cognitive life is reduced to small increments of time, mere moments of memory. By understanding this and seeing the world through the eyes of a sufferer, the caregiver is better able to create an environment of mutual joy and contentment. Based on ten years of caregiving experience, the techniques offered here honor the patient’s individuality, interests, and previous accomplishments. This approach is fresh and inspirational, and recounts a personal journey, filled with relatable experiences that readers will find uplifting and brimming with hope. It teaches family members and other caregivers how to stay connected with their loved one for as long as possible. But most importantly, it honors the unique individual that still resides deep inside every dementia patient by offering techniques enabling them to continue to experience the simple joys of everyday life.




Dementia


Book Description

This study juxtaposes philosophical analysis and clinical experience to present an overview of the issues surrounding dementia. It conveys a strong ethical message, arguing in favour of treating people with dementia with all the dignity they deserve as human beings.




Making Sense and Finding Meaning


Book Description

This research examines narratives about the quality of everyday life with dementia. The aim of the study is to compare and contrast differing perspectives about the impact of ageing and dementia upon the lives of older people with dementia. A total of 50 interviews with six older people with dementia and ten family and paid carers were conducted over a two-year period. Narrative analysis was used to examine the content and structure of their accounts to understand their perspectives on what matters most to people living with dementia. This in-depth analysis enabled an exploration of different social concepts and narrative constructions that people draw upon in making sense of their experiences of caring and living with dementia. The analysis demonstrated that older people incorporate ageing and dementia into a continuing sense of self. Positive constructions of living with dementia involve the ability to lead a meaningful life that supports pre-existing social roles and relationships and active engagement within the family and community. The emphasis is on living an ordinary life while responding to the challenges associated with cognitive impairment and social stigma. For family and paid carers, perceptions of a meaningful life depend on how the identity of the older person with dementia is positioned relative to past social roles and relationships. Positive constructions assume continuity as opposed to focusing on disruption in the person's identity and life. Carer perspectives are also influenced by how the person is perceived to conform to social standards of normality. The narratives of older people with dementia reflect their active struggle to find meaning in terms of realising their sense of self within a social world that largely defines them as different and out of the ordinary. The narratives of carers resonate with emotional difficulty, reflecting their struggle to make sense of a life that is not represented as essentially normal. These findings show that, for all, finding meaning in everyday life depends upon making sense of that life as normal and ordinary.




Will I Still Be Me?


Book Description

What does a dementia diagnosis mean for an individual's sense of self? Christine Bryden shares her insider view on living with dementia and explains how a continuing sense of self is possible after diagnosis and as the condition develops. Encouraging a deeper understanding of how individuals live meaningfully with dementia, the book challenges the dominant story of people with dementia 'fading away' to eventually become an 'empty shell'. It explores what it means to be an embodied self with feelings and emotions, how individuals can relate to others despite cognitive changes and challenges to communications, and what this means for the inclusion of people with dementia in society.