All Across the Spectrum


Book Description




Dying and Disabled Children


Book Description

In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child’s serious illness. Ethical decision making, learning to recognize the child’s suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.




Farewell, My Forever Child


Book Description

No one is ever prepared to lose a child. It is the most painful loss any parent can ever experience. But when that child is developmentally disabled, the trauma is compounded. It becomes complicated grief. Kalila Smith is a Certified Gestalt & NLP Therapist and author who experienced first hand such a loss when her daughter, Stephanie, died unexpectedly at only twenty-nine years old. Finding no resources for parents who had lost special needs children,she set out to help herself and others find peace and healing after such a traumatic loss.




A Time to Grieve


Book Description

A Time to Grieve Parent Grief for Handicapped Children When a child is born into a family, there are high expectations of life, love, and happiness. If the child is born with handicapping conditions, those dreams come crashing to the ground. How and if a parent survives this trauma depends on how he or she handles the grief. This book sets out to carry the parent on that journey of grief, pain, anger, and hopelessness with enough information to survive and come out whole for the benefit of the parent, child, and family. Until now, very little has been written on this unending grief.




Parenting Matters


Book Description

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.




Loss and Grief Recovery


Book Description

The grief reaction is often similar for many diverse circumstances and situations. This book focuses heavily on caring for children with disabilities, chronic or terminal illness, dealing with the loss, and the recovery process.




Lessons from My Child


Book Description

Every expectant parent dreams of having a healthy, perfect baby. But for some, those expectations are shattered forever with the arrival of a disabled child. Long-cherished hopes must now be set aside as these parents begin to deal with a new, unwelcome reality and take the first tentative steps on a long and challenging life journey. 'Lessons from my Child' is a collection of stories gathered from parents of special-needs children from around the world. In their own words, these parents speak openly and honestly about raising a child with intellectual or physical disabilities the sleepless nights, the long periods of sadness, the tiny triumphs and the ongoing battle to ensure that their child assumes his or her rightful place in the world. The stories are grouped into chapters that reflect the main stages of many parents journeys as they move from grief, denial and anger to a point where they can accept their situation, and perhaps see their child's disability as embodying a profound life lesson. Each chapter begins with an expert psychological commentary on what parents may be experiencing at that stage. These accounts from parents allow rare insights into the challenges of their world and reveal the extraordinary rollercoaster of emotions many face daily. What emerges is a testament to human determination and a powerful reaffirmation of the strength of love.




The Grief Process


Book Description




Lessons from My Child


Book Description

Every expectant parent dreams of having a healthy, 'perfect' baby. But for some, those expectations are shattered forever with the arrival of a disabled child. Long-cherished hopes must now be set aside as these parents begin to deal with a new, unwelcome reality and take the first tentative steps on a long and challenging life journey. Lessons from my Child is a collection of stories gathered from parents of special-needs children from around the world. In their own words, these parents speak openly and honestly about raising a child with intellectual or physical disabilities - the sleepless nights, the long periods of sadness, the tiny triumphs and the ongoing battle to ensure that their child assumes his or her rightful place in the world. The stories are grouped into chapters that reflect the main stages of many parents' journeys as they move from grief, denial and anger to a point where they can accept their situation, and perhaps see their child's disability as embodying a profound life lesson. Each chapter begins with an expert psychological commentary on what parents may be experiencing at that stage. These accounts from parents allow rare insights into the challenges of their world and reveal the extraordinary rollercoaster of emotions many face daily. What emerges is a testament to human determination and a powerful reaffirmation of the strength of love.