Demystifying Disability


Book Description

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more inclusive place ONE OF THE BEST BOOKS OF THE YEAR: NPR, Booklist • “A candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation . . . Emily makes the intimidating approachable and the complicated clear.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary, Resilient, Disabled Body People with disabilities are the world’s largest minority, an estimated 15 percent of the global population. But many of us—disabled and nondisabled alike—don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including: • How to appropriately think, talk, and ask about disability • Recognizing and avoiding ableism (discrimination toward disabled people) • Practicing good disability etiquette • Ensuring accessibility becomes your standard practice, from everyday communication to planning special events • Appreciating disability history and identity • Identifying and speaking up about disability stereotypes in media Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience. Praise for Demystifying Disability “Whether you have a disability, or you are non-disabled, Demystifying Disability is a MUST READ. Emily Ladau is a wise spirit who thinks deeply and writes exquisitely.”—Judy Heumann, international disability rights advocate and author of Being Heumann “Emily Ladau has done her homework, and Demystifying Disability is her candid, accessible cheat sheet for anyone who wants to thoughtfully join the conversation. A teacher who makes you forget you’re learning, Emily makes the intimidating approachable and the complicated clear. This book is a generous and needed gift.”—Rebekah Taussig, author of Sitting Pretty: The View from My Ordinary Resilient Disabled Body




The Future of Disability in America


Book Description

The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.




Being Heumann


Book Description

A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.







World Report on Disability


Book Description

The World Report on Disability suggests more than a billion people totally experience disability. They generally have poorer health, lower education and fewer economic opportunities and higher rates of poverty than people without disabilities. This report provides the best available evidence about what works to overcome barriers to better care and services.




Not So Different


Book Description

Not So Different offers a humorous, relatable, and refreshingly honest glimpse into Shane Burcaw’s life. Shane tackles many of the mundane and quirky questions that he’s often asked about living with a disability, and shows readers that he’s just as approachable, friendly, and funny as anyone else. Shane Burcaw was born with a rare disease called spinal muscular atrophy, which hinders his muscles’ growth. As a result, his body hasn’t grown bigger and stronger as he’s gotten older—it’s gotten smaller and weaker instead. This hasn’t stopped him from doing the things he enjoys (like eating pizza and playing sports and video games) with the people he loves, but it does mean that he routinely relies on his friends and family for help with everything from brushing his teeth to rolling over in bed. A Chicago Public Library Best Book of 2017




When Your Child Has a Disability


Book Description

With even more practical information and direct answers to families' questions, the second edition of this easy-to-read guide is a proven resource for helping parents meet the demands of raising a child with a disability. You'll get updated, expert advice on a wide range of medical and educational issues as well as detailed coverage of the daily and long-term care requirements of specific disabilities, including mental retardation autism hearing impairment Down syndrome visual impairment communication disorders seizure disorders spina bifida ADHD cerebral palsy genetic syndromes New to this edition are chapters exploring nutrition, dental care, legal rights and benefits, and the transition to adulthood, as well as information on development and commonly used medications. Answers to frequently asked questions follow the chapters, addressing common parent concerns like sleep, behavior, medication, and potential complications.




Nolo’s Guide to Social Security Disability


Book Description

A complete guide to Social Security disability benefits—everything you need to know, from qualifying and applying for your benefits to appealing the denial of a claim. Written by a former Social Security Administrative & doctor, this book provides a unique behind-the-scenes look at how, the SSA decides who is disabled and deserves benefits.




Disable Your Disability


Book Description

In Disable Your Disability, • Learn about Osteogenesis Imperfecta (brittle bones) and find out how Tony embraced it to save his life. • Learn how to take action towards living the healthy, high-powered, happy life you deserve! • Uncover and tackle mindset issues that hold you back. • Get sure-fire methods to make the changes necessary in your life to start living a healthy lifestyle. • Discover easy to implement eating and exercise techniques to start right now! Disable Your Disability is a journey into self-discovery, a look into the gift of embracing circumstances that hold us back, and powerful concepts with sure-fire methods for taking action toward living the healthy life we deserve. If you live with a physical disability, limited mobility, or something else that is holding you back from living a healthy lifestyle, Tony's personal story, coupled with his clear and concise methodology, will help you gain insight and confidence, and get you clear on what it will take for you to achieve your health and fitness goals. Because he was born with a rare bone disorder, Osteogenesis Imperfecta (brittle bones), Tony used a wheelchair and crutches through his childhood and into his early 20's. When he was 24 years old, he finally took his first unassisted steps and started walking. Because he was scared of breaking more bones and had always been told to 'be careful', Tony remained inactive through his 20's and 30's and his overall health suffered. At age 42, he found himself overweight, dealing with pain in his legs, hips, and back, and using medications to suppress daily heartburn. After a visit to the doctor, he knew something had to change. Tony finally embraced his disability and transformed his entire life! Within 8 months, he began doing things physically that he, and many others, never thought possible. Now, through his dedication to helping others, Tony is coaching, speaking, and building an unstoppable online presence to spread the word that everyone deserves to live a healthy and happy life!




Disability


Book Description

What is disability? Why terminate a pregnancy when disabling traits are diagnosed in the foetus? Can disability be part of a person’s identity? These are important questions in the current climate of increased pre-natal screening programmes designed to further reduce the numbers of children born with disabilities. This book looks at disablement from a philosophical perspective by examining these questions through a combination of critical review, discussion and narrative theory. Disability: definitions, value and identity provides practical and concise information for social care workers, counsellors, academics, students, genetics counsellors, and medical and healthcare ethicists. It will also be invaluable for disability pressure groups and policy makers.