Health Research Practices in a Digital Context


Book Description

The current “generalized digitization” of society is influencing the health environment, healthcare organizations as well as actors. In this context, human and social sciences deconstruct, nuance and sometimes even challenge certain preconceived ideas and/or dominant discourses. In this book, researchers of four nationalities and three different disciplines have agreed to open the “black box” of their work. They display their scientific practices from the perspective of epistemology, ethics and methodology. They present and analyze their values and postulates but, also, what may have influenced the project, the definition of the object and objectives, as well as their approaches. In a contextual way, the first part presents some changes in environments and infocommunicational practices related to digital health. The second part opens space to reflect on ethics and deontology. Finally, postulating that scientific fact is not an essence but the result of a process, the last part discusses the methods implemented, which may be different from those initially envisaged. This book is dedicated to the researchers and postgraduate students in the human and social sciences as well as the health practitioners likely to collaborate with them.




Beyond the HIPAA Privacy Rule


Book Description

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.




Health Research Practices in a Digital Context


Book Description

The current “generalized digitization” of society is influencing the health environment, healthcare organizations as well as actors. In this context, human and social sciences deconstruct, nuance and sometimes even challenge certain preconceived ideas and/or dominant discourses. In this book, researchers of four nationalities and three different disciplines have agreed to open the “black box” of their work. They display their scientific practices from the perspective of epistemology, ethics and methodology. They present and analyze their values and postulates but, also, what may have influenced the project, the definition of the object and objectives, as well as their approaches. In a contextual way, the first part presents some changes in environments and infocommunicational practices related to digital health. The second part opens space to reflect on ethics and deontology. Finally, postulating that scientific fact is not an essence but the result of a process, the last part discusses the methods implemented, which may be different from those initially envisaged. This book is dedicated to the researchers and postgraduate students in the human and social sciences as well as the health practitioners likely to collaborate with them.




Participatory Visual and Digital Methods


Book Description

Gubrium and Harper describe how visual and digital methodologies can contribute to a participatory, public-engaged ethnography. These methods can change the traditional relationship between academic researchers and the community, building one that is more accessible, inclusive, and visually appealing, and one that encourages community members to reflect and engage in issues in their own communities. The authors describe how to use photovoice, film and video, digital storytelling, GIS, digital archives and exhibits in participatory contexts, and include numerous case studies demonstrating their utility around the world.




Social Science Research


Book Description

This book is designed to introduce doctoral and graduate students to the process of conducting scientific research in the social sciences, business, education, public health, and related disciplines. It is a one-stop, comprehensive, and compact source for foundational concepts in behavioral research, and can serve as a stand-alone text or as a supplement to research readings in any doctoral seminar or research methods class. This book is currently used as a research text at universities on six continents and will shortly be available in nine different languages.




Sharing Clinical Trial Data


Book Description

Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.




Digital and Social Media Marketing


Book Description

This book examines issues and implications of digital and social media marketing for emerging markets. These markets necessitate substantial adaptations of developed theories and approaches employed in the Western world. The book investigates problems specific to emerging markets, while identifying new theoretical constructs and practical applications of digital marketing. It addresses topics such as electronic word of mouth (eWOM), demographic differences in digital marketing, mobile marketing, search engine advertising, among others. A radical increase in both temporal and geographical reach is empowering consumers to exert influence on brands, products, and services. Information and Communication Technologies (ICTs) and digital media are having a significant impact on the way people communicate and fulfil their socio-economic, emotional and material needs. These technologies are also being harnessed by businesses for various purposes including distribution and selling of goods, retailing of consumer services, customer relationship management, and influencing consumer behaviour by employing digital marketing practices. This book considers this, as it examines the practice and research related to digital and social media marketing.




Ethics in Qualitative Research


Book Description

All social researchers need to think about ethical issues. Their salience has recently been increased by the pressures of ethical regulation, particularly in the case of qualitative research. But what are ethical issues? And how should they be approached? These are not matters about which there is agreement. Ethics in Qualitative Research explores conflicting philosophical assumptions, the diverse social contexts in which ethical problems arise, and the complexities of handling them in practice. The authors argue that the starting point for any discussion of research ethics must be the values intrinsic to research, above all the commitment to knowledge-production. However, the pursuit of inquiry is rightly constrained by external values, and the book focuses on three of these: minimising harm, respecting autonomy, and protecting privacy. These external values are shown to be far from unequivocal in character, often in conflict with one another (or with the commitments of research), and always subject to situational interpretation and practical judgment. Nevertheless, it is contended that in the present challenging times it is essential that qualitative researchers uphold research values. Martyn Hammersley is Professor of Educational and Social Research at The Open University. Anna Traianou is Senior Lecturer in the Department of Educational Studies, Goldsmiths, University of London.




Digital Tools for Qualitative Research


Book Description

Digital Tools for Qualitative Research shows how the research process in its entirety can be supported by technology tools in ways that can save time and add robustness and depth to qualitative work. It addresses the use of a variety of tools (many of which may already be familiar to you) to support every phase of the research process, providing practical case studies taken from real world research. The text shows you how to select and use technology tools to: engage in reflexivity collaborate with other researchers and stakeholders manage your project do your literature review generate and manage your data transcribe and analyse textual, audio and visual data and represent and share your findings. The book also considers important ethical issues surrounding the use of various technologies in each chapter. On the companion website, you′ll find lots of additional resources including video tutorials and activities. Whether you′re a novice or expert social researcher, this book will inspire you to think creatively about how to approach your research project and get the most out of the huge range of tools available to you.




The SAGE Handbook of Social Media Research Methods


Book Description

The SAGE Handbook of Social Media Research Methods spans the entire research process, from data collection to analysis and interpretation. This second edition has been comprehensively updated and expanded, from 39 to 49 chapters. In addition to a new section of chapters focussing on ethics, privacy and the politics of social media data, the new edition provides broader coverage of topics such as: Data sources Scraping and spidering data Locative data, video data and linked data Platform-specific analysis Analytical tools Critical social media analysis Written by leading scholars from across the globe, the chapters provide a mix of theoretical and applied assessments of topics, and include a range of new case studies and data sets that exemplify the methodological approaches. This Handbook is an essential resource for any researcher or postgraduate student embarking on a social media research project. PART 1: Conceptualising and Designing Social Media Research PART 2: Collecting Data PART 3: Qualitative Approaches to Social Media Data PART 4: Quantitative Approaches to Social Media Data PART 5: Diverse Approaches to Social Media Data PART 6: Research & Analytical Tools PART 7: Social Media Platforms PART 8: Privacy, Ethics and Inequalities