Ido in Autismland


Book Description

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant sixteen year old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations. Ido spent the first half of his life locked internally, in silence, trapped in a remedial educational system that presumed he lacked the most basic comprehension, and unable to show the world that he understood everything. But at the age of seven, Ido was finally able to show that he had an intact mind and could understand. This led to the quest to find a system of communication that he could use despite his impaired motor control. Through the use of a letter board, and now an iPad, Ido has triumphed communicatively, enabling him to flourish in a regular high school in all general education classes. But Ido has a larger goal. He does not want to be seen as an isolated autistic exception with miraculously advanced cognitive and communication abilities. He wants people to see that thousands of other severely autistic individuals have the same capacity, but remain trapped and locked-in, as he was, unable to show their true capacities. These individuals desperately need new theories and new methods to help them break free too. Of importance to neuro-researchers, educators, psychologists, doctors, parents, friends, family and people with autism, Ido in Autismland will change our collective understanding of severe autism. PRAISE FOR Ido in Autismland "There are doubtless many Idos in this world, unable to speak, yet possessing good intellectual ability and, most certainly, a rich emotional life. And yet, precisely because they cannot communicate, nonverbal individuals with autism are nearly always consigned to the junk heap of mental deficiency, branded as incapable of understanding language or even having feelings... We need to help change things for this terribly neglected group... Reading Ido's book is a good beginning." - Portia Iversen, Co-founder, Cure Autism Now and the Autism Genetic Resource Exchange Gene Bank. Author of Strange Son "Ido is a brilliant communicator. His words bring us inside the world of autism. His gift of writing enlightens, inspires, educates. Every person who loves or works with someone with autism - educator, therapist, karent, grandparent, neighbor - should read Ido in Autismland." - Elaine Hall, Author of Now I See the Moon, co-author of Seven Keys to Unlock Autism. Featured in Autism: The Musical "Ido's book touches any heart, not only because it is well written, but because it reveals a mind that has learned how to speak to the world through spelling every word on a letter board and keyboard. His book is indeed a great gift to the world. Thank you, Ido." - Soma Mukhopadhyay, Executive Director of Education, HALO, Author of Understanding Autism through Rapid Prompting Method




Ido in Autismland. Climbing Out of Autism's Silent Prison


Book Description

What is autism? Is it a long list of behaviors, or is it more? Experts looked at my outside deficits--eye contact impairment, hand flapping and social delay-and concluded that my inside was equally impaired. They assumed I did not understand language, recognize my parents or have a thought more advanced than a toddler's. They supposed my brain could be molded in increments by drilling me on names and basic nouns, or by telling me to jump, or sit, or touch my nose--over and over. This was the educational model I grew up with. Now, I am telling you what I couldn't tell my experts when I was stuck in my silent prison for so many years: you were wrong. Worse, you were treating the wrong symptoms.In my essays I explain autism from the inside out. It is my dream that my book will help my friends and so many other non-verbal autistic people to be liberated, as I was. I want a cure and I want communication now for all those still trapped in silence. Thank you for listening to a silent boy no more.-- Ido Kedar, at age 13




Let Me Hear Your Voice


Book Description

She was a beautiful doelike child, with an intense, graceful fragility. In her first year, she picked up words, smiled and laughed, and learned to walk. But then Anne-Marie began to turn inward. And when her little girl lost some of the words she had acquired, cried inconsolably, and showed no interest in anyone around her, Catherine Maurice took her to doctors who gave her a devastating diagnosis: autism. In their desperate struggle to save their daughter, the Maurices plunged into a medical nightmare of false hopes, "miracle cures," and infuriating suggestions that Anne-Marie's autism was somehow their fault. Finally, Anne-Marie was saved by an intensive behavioral therapy. Let Me Hear Your Voice is a mother's illuminating account of how one family triumphed over autism. It is an absolutely unforgettable book, as beautifully written as it is informative. "A vivid and uplifting story . . . Offers new strength to parents who refuse to give up on their autistic children." -- Kirkus Reviews "Outstanding . . . Heartfelt . . . A lifeline to families in similar circumstances." -- Library Journal




Fall Down 7 Times Get Up 8


Book Description

From the author of the bestselling The Reason I Jump, an extraordinary self-portrait of a young adult with autism “Essential reading for parents and teachers of those with autism who remain nonverbal.”—Temple Grandin Naoki Higashida was only thirteen when he wrote The Reason I Jump, a revelatory account of autism from the inside by a nonverbal Japanese child, which became an international success. Now, in Fall Down 7 Times Get Up 8, he shares his thoughts and experiences as a young man living each day with severe autism. In short, powerful chapters, Higashida explores school memories, family relationships, the exhilaration of travel, and the difficulties of speech. He also allows readers to experience profound moments we take for granted, like the thought-steps necessary for him to register that it’s raining outside. Acutely aware of how strange his behavior can appear to others, he aims throughout to foster a better understanding of autism and to encourage society to see people with disabilities as people, not as problems. With an introduction by the bestselling novelist David Mitchell, Fall Down 7 Times Get Up 8 also includes a dreamlike short story Higashida wrote especially for the U.S. edition. Both moving and of practical use, this book opens a window into the mind of an inspiring young man who meets every challenge with tenacity and good humor. However often he falls down, he always gets back up. Praise for Fall Down 7 Times Get Up 8 “[Naoki Higashida’s] success as a writer now transcends his diagnosis. . . . His relative isolation—with words as his primary connection to the outside world—has allowed him to fully develop the powers of observation that are necessary for good writing, and he has developed rich, deep perspectives on ideas that many take for granted. . . . The diversity of Higashida’s writing, in both subject and style, fits together like a jigsaw puzzle of life put in place with humor and thoughtfulness.”—The Japan Times “Profound insights about what the struggle of living with autism is really like . . . Once again, the invitation to step inside Higashida’s mind is irresistible.”—London Evening Standard “Naoki Higashida’s lyrical and heartfelt account of his condition is a gift to anyone involved with the same challenges. . . . Higashida shows a delicate regard for the difficulties his condition creates . . . and is adept at explaining his experiences in language that makes sense to neurotypicals.”—The Guardian




Underestimated


Book Description

The incredibly moving and inspiring story about a quest to finally be heard. In Underestimated: An Autism Miracle, Generation Rescue’s cofounder J.B. Handley and his teenage son Jamison tell the remarkable story of Jamison’s journey to find a method of communication that allowed him to show the world that he was a brilliant, wise, generous, and complex individual who had been misunderstood and underestimated by everyone in his life. Jamison’s emergence at the age of seventeen from his self-described “prison of silence” took place over a profoundly emotional and dramatic twelve-month period that is retold from his father’s perspective. The book reads like a spy thriller while allowing the reader to share in the complex emotions of both exhilaration and anguish that accompany Jamison’s journey for him and his family. Once Jamison’s extraordinary story has been told, Jamison takes over the narrative to share the story from his perspective, allowing the world to hear from someone who many had dismissed and cast aside as incapable. Jamison’s remarkable transformation challenges the conventional wisdom surrounding autism, a disability impacting 1 in 36 Americans. Many scientists still consider nonspeakers with autism—a full 40 percent of those on the autism spectrum—to be “mentally retarded.” Is it possible that the experts are wrong about several million people? Are all the nonspeakers like Jamison? Underestimated: An Autism Miracle will touch your heart, inspire you, remind you of the power of love, and ultimately leave you asking tough questions about how many more Jamisons might be waiting for their chance to be freed from their prison of silence, too. And, for the millions of parents of children with autism, the book offers a detailed description of a communication method that may give millions of people with autism back their voice.




Strange Son


Book Description

Strange Son is the powerful tale of two mothers from opposite sides of the world who, united by their fierce determination to help their severely autistic sons, have challenged everything we thought we knew about autism. Tito Mukhopadhyay, an autistic boy from India who spends most of his time flapping his fingers in front of his eyes, has an IQ of 185. He favors the writings of Wordsworth and Ibsen. He loves philosophy, reads People, and worries about conflict in the Middle East. He also writes beautiful poetry.That Tito can communicate at all is due to his mother, Soma, who single-handedly developed a revolutionary method of teaching him in their one-room apartment in Bangalore, a "classroom" that lacked even running water. Iversen weaves the twin stories of Soma and Tito (and how Soma's methods mystified experts) together with her own story of how she and her family came to understand Dov. The result is a book suffused with uplifting human drama.




Understanding Autism Through Rapid Prompting Method


Book Description

Soma has dedicated her life to teaching her revolutionary Rapid Prompting Method to hundreds of autistic children and adults throughout the world. Somas work proves what many parents have suspected: that students with autism are capable of learning at academic levels previously thought unattainable. The power of an academic education improves the lives of all people, and the Rapid Prompting Method is the key to providing the gift of education and communication to students with autism. This groundbreaking book describes Somas innovative technique, and for the first time in print, offers parents and educators a step-by-step guide to implementing this life-changing teaching methodology.




In Two Worlds


Book Description

Seven-year-old Anthony has autism. He flaps his hands. He makes strange noises. He can't speak or otherwise communicate his thoughts. Treatments, therapies, and theories about his condition define his daily existence. Yet Anthony isn't improving much. Year after year his remedial lessons drone on. Anthony gets older and taller, but his speech remains elusive and his school lessons never advance. Life seems to be passing him by. Until one day, everything changes. In Two Worlds is a compelling tale, rich with unforgettable characters who are navigating their way through the multitude of theories about autism that for decades have dictated the lives of thousands of children and their families. This debut work of fiction sheds light on the inner and outer lives of children with nonspeaking autism, and on their two worlds. As one of the only works of fiction written by a person with non-speaking autism, it offers readers an unprecedented insider's point-of-view into autism and life in silence, and it does so with warmth, humor and a wickedly sharp intellect.




I Have Been Buried Under Years of Dust


Book Description

A remarkable memoir by a mother and her autistic daughter who’d long been unable to communicate—until a miraculous breakthrough revealed a young woman with a rich and creative interior life, a poet, who’d been trapped inside for more than two decades. “I have been buried under years of dust and now I have so much to say.” These were the first words twenty-five-year-old Emily Grodin ever wrote. Born with nonverbal autism, Emily’s only means of communicating for a quarter of a century had been only one-word responses or physical gestures. That Emily was intelligent had never been in question—from an early age she’d shown clear signs that she understood what was going on though she could not express herself. Her parents, Valerie and Tom, sought every therapy possible in the hope that Emily would one day be able to reveal herself. When this miraculous breakthrough occurred, Emily was finally able to give insight into the life, frustrations, and joys of a person with autism. She could tell her parents what her younger years had been like and reveal all the emotions and intelligence residing within her; she became their guide into the autistic experience. Told by Valerie, with insights and stories and poetry from Emily, I Have Been Buried Under Years of Dust highlights key moments of Emily’s childhood that led to her communication awakening—and how her ability rapidly accelerated after she wrote that first sentence. As Valerie tells her family’s story, she shares the knowledge she’s gained from working as a legal advocate for families affected by autism and other neurological disorders. A story of unconditional love, faith in the face of difficulty, and the grace of perseverance and acceptance, I Have Been Buried Under Years of Dust is an evocative and affecting mother-daughter memoir of learning to see each other for who they are.




Anatomy of Autism


Book Description

"Trust me, I want to talk to you. My inability to speak is confused for my intelligence." Diego Pena is a sharp-witted 9 year old boy whose goal is to deliver a message that shatters misconceptions about autism. Only Diego cannot yet speak. By pointing to letters on a laminated letter board and typing on a keyboard, he breaks through his silence to express his inner-thoughts in Anatomy of Autism. In this pocket guide for individuals who support autistic students, Diego concisely articulates the challenges and dilemmas he faces with his sensory system, communication, and motor system. He thoughtfully explores the implications and possibilities of these challenges as a primary school student. His experiences nudge educators, therapists, parents, and students to rethink their approaches to supporting individuals who are autistic and non-speaking. Diego's words reveal a disarming truth. The real experts of autism are actually autistic themselves. Anatomy of Autism adds to the emerging generation of autistic voices-from Ido Kedar in Ido in Autismland to Naoki Higashida in The Reason I Jump-challenging us to listen and consider their perspectives about what it means to have autism and complex communication challenges in a world that has yet to fully realize their capabilities. But as Diego reminds us, they have incredible potential given the proper opportunities and supports. In the foreword to Anatomy of Autism, bestselling author Ido Kedar praises Diego for his advocacy and leadership at such a young age: "The insights found in these pages reflect my experiences and those of other people with autism clearly and succinctly. I am proud of Diego for undertaking this task to help improve the lives of those with autism and their loving families."