Incurable and Intolerable


Book Description

Terminal illness and the pain and anguish it brings are experiences that have touched millions of people in the past and continue to shape our experience of the present. Hospital machines that artificially support life and monitor vital signs beg the question: Is there not anything that medical science can offer as solace? Incurable and Intolerable looks at the history of incurable illness from a variety of perspectives, including those of doctors, patients, families, religious counsel, and policy makers. This compellingly documented and well-written history illuminates the physical, emotional, social, and existential consequences of chronic disease and terminal illness, and offers an original look at the world of palliative medicine, politics, religion, and charity. Revealing the ways in which history can shed new light on contemporary thinking, Jason Szabo encourages a more careful scrutiny of today's attitudes, policies, and practices surrounding "imminent death" and its effects on society.




Physician-Assisted Death


Book Description

Physician-Assisted Death is the eleventh volume of Biomedical Ethics Reviews. We, the editors, are pleased with the response to the series over the years and, as a result, are happy to continue into a second decade with the same general purpose and zeal. As in the past, contributors to projected volumes have been asked to summarize the nature of the literature, the prevailing attitudes and arguments, and then to advance the discussion in some way by staking out and arguing forcefully for some basic position on the topic targeted for discussion. For the present volume on Physician-Assisted Death, we felt it wise to enlist the services of a guest editor, Dr. Gregg A. Kasting, a practicing physician with extensive clinical knowledge of the various problems and issues encountered in discussing physician assisted death. Dr. Kasting is also our student and just completing a graduate degree in philosophy with a specialty in biomedical ethics here at Georgia State University. Apart from a keen interest in the topic, Dr. Kasting has published good work in the area and has, in our opinion, done an excellent job in taking on the lion's share of editing this well-balanced and probing set of essays. We hope you will agree that this volume significantly advances the level of discussion on physician-assisted euthanasia. Incidentally, we wish to note that the essays in this volume were all finished and committed to press by January 1993.




Voluntarily Stopping Eating and Drinking


Book Description

Many people who are experiencing unacceptable suffering or deterioration in the present, or who fear them in the near future, do not know their full range of options to hasten death. This is particularly true if they live in jurisdictions that do not allow a physician assisted death - over forty jurisdictions in the U.S. and most countries across the world. Though VSED is readily available, and not illegal, most people are unaware of it as an option. The informationin this book is vital to those considering their options either hypothetically or in real time, providing an integrated, balanced, and nuanced exploration of VSED with contributions from legal, medical, and ethical experts.




Euthanasia: Searching for the Full Story


Book Description

This open access book has been written by ten Belgian health care professionals, nurses, university professors and doctors specializing in palliative care and ethicists who, together, raise questions concerning the practice of euthanasia. They share their experiences and reflections born out of their confrontation with requests for euthanasia and end-of-life support in a country where euthanasia has been decriminalized since 2002 and is now becoming a trivial topic.Far from evoking any militancy, these stories of life and death present the other side of a reality needs to be evaluated more rigorously.Featuring multidisciplinary perspectives, this though-provoking and original book is intended not only for caregivers but also for anyone who questions the meaning of death and suffering, as well as the impact of a law passed in 2002. Presenting real-world cases and experiences, it highlights the complexity of situations and the consequences of the euthanasia law.This book appeals to palliative care providers, hematologists, oncologists, psychiatrists, nurses and health professionals as well as researchers, academics, policy-makers, and social scientists working in health care. It is also a unique resource for those in countries where the decriminalization of euthanasia is being considered. Sometimes shocking, it focuses on facts and lived experiences to challenge readers and offer insights into euthanasia in Belgium.




The Woman Who Walked into the Sea


Book Description

A groundbreaking medical and social history of a devastating hereditary neurological disorder once demonized as “the witchcraft disease” When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington’s chorea, and today it is known as Huntington's disease. This book is the first history of Huntington’s in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington’s as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to “belong to the disease”; the emergence of Huntington’s chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease.







Chronic Disease in the Twentieth Century


Book Description

Chronic Disease in the Twentieth Century challenges the conventional wisdom that the concept of chronic disease emerged because medicine's ability to cure infectious disease led to changing patterns of disease. Instead, it suggests, the concept was constructed and has evolved to serve a variety of political and social purposes. How and why the concept developed differently in the United States, an United Kingdom, and France are central concerns of this work. While an international consensus now exists, the different paths taken by these three countries continue to exert profound influence. This book seeks to explain why, among the innumerable problems faced by societies, some problems in some places become viewed as critical public issues that shape health policy. -- from back cover.




The War Within - Between Good and Evil


Book Description

The human has always prided himself as an exceptional ‘moral species’ but has always been haunted by two questions: ‘Why am I not good when I want to be; ‘why do I do bad when I don’t want to’. This is at the heart of what scriptures and sages have long alluded to as the eternal internal struggle-between good and evil - that wages in the human consciousness. The book posits that much of our confusion and angst stems from our inability to recognize the ramifications of this ‘war’ between two sides of our own ‘self’. It is because we are ignoring this ‘war’ between two sides of our own ‘self’. It is because we are ignoring this war that we are losing all other wars of the world. That ignorance is the primary source of all the horrors, malevolence, and violence that fill us with so much dread. But a ‘favorable’ outcome is possible only if the forces of goodness are aided to get an upper hand consistently - and that calls for two cathartic changes: consciousness-change by inducing a turn from the mind to the heart; and contextual-change, by radically reconstructing the roles of morality, money, and mortality in our everyday lives. The book offers a menu of insights and options we all can use to tilt the scales in the war waging inside each of us.




The Cancer Problem


Book Description

The Cancer Problem offers the first medical, cultural, and social history of cancer in nineteenth-century Britain. It begins by looking at a community of doctors and patients who lived and worked in the streets surrounding the Middlesex Hospital in London. It follows in their footsteps as they walked the labyrinthine lanes and passages that branched off Tottenham Court Road; then, through seven chapters, its focus expands to successively include the rivers, lakes, and forests of England, the mountains, poverty, and hunger of the four nations of the British Isles, the reluctant and resistant inhabitants of the British Empire, and the networks of scientists and doctors spread across Europe and North America. The Cancer Problem: Malignancy in Nineteenth-Century Britain argues that it was in the nineteenth century that cancer acquired the unique emotional, symbolic, and politicized status it maintains today. Through an interrogation of the construction, deployment, and emotional consequences of the disease's incurability, this book reframes our conceptualization of the relationship between medicine and modern life and reshapes our understanding of chronic and incurable maladies, both past and present.




Jane Brody's Guide to the Great Beyond


Book Description

From the beloved New York Times columnist, trusted authority on health, and bestselling author comes this complete guide to everything you need to know–emotionally, spiritually, and practically–to prepare for the end of life. An invaluable road map to putting your affairs in order–or helping your loved ones do the same–this comprehensive book will answer every question you might have about what does and does not help smooth the transition between life and the Great Beyond. Wise, practical, and characteristically straightforward throughout, Brody advises on • the intricacies of a well-thought-out (and fully spelled-out) living will that health care practitioners readily understand–and how to designate a health care proxy. • planning a funeral or memorial to ensure your wishes are followed, including tips on how to reduce expenses. • discussing prognoses and treatment options with doctors. • your options for controlling pain, shortness of breath, bed sores, and other physical symptoms–plus the facts on feeding tubes. • receiving the support you need through hospice care–and suggestions for loved ones and friends who want to help. • lightening and enlightening your trials by incorporating spirituality into your life. • understanding what happens, physically and mentally, when death is imminent, and recognizing when hand-holding and reassurance, not food or drink or an oxygen mask or CPR, is the proper course of action. • easing your way through the journey of grief by admitting the reality of the loss, showing your emotions, and allowing yourself the time you feel you need. No matter your age or current health, preparing for the inevitable when you are still fully in control of your faculties ensures that you’ll be in a far better position to enjoy the time you have left. As Brody notes, “From the start, consider the finish.”