Involving Patients and the Public


Book Description

Patient and public involvement in health and social care has become a key element of government policy, and the need to listen and act on the views of patients and the public is an increasingly integral part of the planning and delivery of healthcare. This new edition has been completely revised and updated, providing practical information on the new responsibilities under clinical governance and Health Improvement Programmes, including useful website links and contact details. It offers clear and straightforward practical advice and provides an introduction to the new structures and processes being set up to enable patients and the public to be more influential in designing and delivering healthcare services. This book is essential reading for all healthcare professionals including doctors, nurses and therapists, and those with management responsibilities, as well as policy shapers and patient organisations.




Beyond the HIPAA Privacy Rule


Book Description

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.




Integrating Social Care into the Delivery of Health Care


Book Description

Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health was released in September 2019, before the World Health Organization declared COVID-19 a global pandemic in March 2020. Improving social conditions remains critical to improving health outcomes, and integrating social care into health care delivery is more relevant than ever in the context of the pandemic and increased strains placed on the U.S. health care system. The report and its related products ultimately aim to help improve health and health equity, during COVID-19 and beyond. The consistent and compelling evidence on how social determinants shape health has led to a growing recognition throughout the health care sector that improving health and health equity is likely to depend â€" at least in part â€" on mitigating adverse social determinants. This recognition has been bolstered by a shift in the health care sector towards value-based payment, which incentivizes improved health outcomes for persons and populations rather than service delivery alone. The combined result of these changes has been a growing emphasis on health care systems addressing patients' social risk factors and social needs with the aim of improving health outcomes. This may involve health care systems linking individual patients with government and community social services, but important questions need to be answered about when and how health care systems should integrate social care into their practices and what kinds of infrastructure are required to facilitate such activities. Integrating Social Care into the Delivery of Health Care: Moving Upstream to Improve the Nation's Health examines the potential for integrating services addressing social needs and the social determinants of health into the delivery of health care to achieve better health outcomes. This report assesses approaches to social care integration currently being taken by health care providers and systems, and new or emerging approaches and opportunities; current roles in such integration by different disciplines and organizations, and new or emerging roles and types of providers; and current and emerging efforts to design health care systems to improve the nation's health and reduce health inequities.




Registries for Evaluating Patient Outcomes


Book Description

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.




The Future of the Public's Health in the 21st Century


Book Description

The anthrax incidents following the 9/11 terrorist attacks put the spotlight on the nation's public health agencies, placing it under an unprecedented scrutiny that added new dimensions to the complex issues considered in this report. The Future of the Public's Health in the 21st Century reaffirms the vision of Healthy People 2010, and outlines a systems approach to assuring the nation's health in practice, research, and policy. This approach focuses on joining the unique resources and perspectives of diverse sectors and entities and challenges these groups to work in a concerted, strategic way to promote and protect the public's health. Focusing on diverse partnerships as the framework for public health, the book discusses: The need for a shift from an individual to a population-based approach in practice, research, policy, and community engagement. The status of the governmental public health infrastructure and what needs to be improved, including its interface with the health care delivery system. The roles nongovernment actors, such as academia, business, local communities and the media can play in creating a healthy nation. Providing an accessible analysis, this book will be important to public health policy-makers and practitioners, business and community leaders, health advocates, educators and journalists.




Improving Healthcare Quality in Europe Characteristics, Effectiveness and Implementation of Different Strategies


Book Description

This volume, developed by the Observatory together with OECD, provides an overall conceptual framework for understanding and applying strategies aimed at improving quality of care. Crucially, it summarizes available evidence on different quality strategies and provides recommendations for their implementation. This book is intended to help policy-makers to understand concepts of quality and to support them to evaluate single strategies and combinations of strategies.




Engaging Patients in Healthcare


Book Description

This evidence-based guide provides the first comprehensive overview of patient engagement and participation in healthcare. It has been written for all those who want to understand the various ways in which patient and public engagement can contribute to better health outcomes. Angela Coulter explains the theories, models and policies at the heart of patient involvement as well as giving extensive practical examples to demonstrate the reality of involving patients. The book includes an examination of patients’ roles in respect of: Improving care processes Building health literacy Selecting treatments Strengthening self-care Ensuring safer care Participating in research Training professionals Shaping services Clearly written by a leading author in the field and well illustrated with data, examples and evidence, the book includes practical descriptions of real patient engagement, together with critical review and suggestions to guide future developments. This guide also brings together an extensive body of international evidence, making it the most current and original text on the market. Engaging Patients in Healthcare is essential reading for students and professionals working and studying in public health, health care management, health services and beyond. "This book is the roadmap we need to guide the creation of the healthcare system we’ve all dreamed about – one that truly taps the power of patient and professional wisdom." Susan Edgman-Levitan, PA, Executive Director, Stoeckle Center for Primary Care Innovation, Massachusetts General Hospital, USA "This book provides the building blocks from which healthcare professionals can try to engage people more, from consultation based practices, such as shared decision making and improved self management, to deeper changes in shaping services and training professionals." British Medical Journal, 2011 "Policy makers and practitioners will benefit from Angela Coulter's analysis of the challenges of securing effective engagement and the ideas she puts forward for overcoming these challenges." Chris Ham, Chief Executive of The King's Fund, London, UK "Angela Coulter has managed to de-mystify the concepts of patient engagement in health care in a readable, balanced, thought-provoking primer. A "must read" for students, educators, practitioners, managers, and policy makers needing a primer or update." Annette O’Connor, Emeritus Professor University of Ottawa, Canada "Committed doyenne, Coulter writes superbly about patients as the greatest untapped resource in healthcare. At a time when health services face so many challenges across the globe, there are solutions here that need urgent attention." Professor Glyn Elwyn BA MB BCh MSc FRCGP PhDDirector of Research, Department of Primary Care and Public Health, Clinical Epidemiology IRG, Cardiff University, UK "While politicians pay increasing obeisance to the notion of 'patient-centred care' patients often experience a service built around the needs of healthcare organisations and professionals. The challenge is to translate the often woolly rhetoric of “no decision about me without me” into practical steps that improve the quality of care, and keep it affordable as cost pressures mushroom. Those who are serious about taking on this challenge could do no better than study Dr Coulter’s crisp and cogent overview of the theory, evidence and practice of patient engagement. " Jeremy Taylor, Chief Executive, National Voices




Equity and excellence:


Book Description

Equity and Excellence : Liberating the NHS: Presented to Parliament by the Secretary of State for Health by Command of Her Majesty




Crossing the Quality Chasm


Book Description

Second in a series of publications from the Institute of Medicine's Quality of Health Care in America project Today's health care providers have more research findings and more technology available to them than ever before. Yet recent reports have raised serious doubts about the quality of health care in America. Crossing the Quality Chasm makes an urgent call for fundamental change to close the quality gap. This book recommends a sweeping redesign of the American health care system and provides overarching principles for specific direction for policymakers, health care leaders, clinicians, regulators, purchasers, and others. In this comprehensive volume the committee offers: A set of performance expectations for the 21st century health care system. A set of 10 new rules to guide patient-clinician relationships. A suggested organizing framework to better align the incentives inherent in payment and accountability with improvements in quality. Key steps to promote evidence-based practice and strengthen clinical information systems. Analyzing health care organizations as complex systems, Crossing the Quality Chasm also documents the causes of the quality gap, identifies current practices that impede quality care, and explores how systems approaches can be used to implement change.




Patient Engagement


Book Description

Patient-oriented approaches to healthcare management have been brought to the fore in recent years, yet this book underlines how even further change is needed in order to fully mobilise the experiential knowledge of patients, and ultimately improve our healthcare systems. With contributions from scholars and patients across the globe, this collection brings together a comprehensive overview of major achievements in patient engagement, analysing political, organizational and clinical contexts. By understanding the concept of care partnership, the authors explore how this patient revolution could transform, improve and innovate the ways in which care services are organized and delivered. Looking closely at the role of new technologies, this timely book will undoubtedly be of use to patients, managers and professionals within the healthcare industry, as well as those researching health policy and organization.