Living with Polio


Book Description

Polio was the most dreaded childhood disease of twentieth-century America. Every summer during the 1940s and 1950s, parents were terrorized by the thought that polio might cripple their children. They warned their children not to drink from public fountains, to avoid swimming pools, and to stay away from movie theaters and other crowded places. Whenever and wherever polio struck, hospitals filled with victims of the virus. Many experienced only temporary paralysis, but others faced a lifetime of disability. Living with Polio is the first book to focus primarily on the personal stories of the men and women who had acute polio and lived with its crippling consequences. Writing from personal experience, polio survivor Daniel J. Wilson shapes this impassioned book with the testimonials of more than one hundred polio victims, focusing on the years between 1930 and 1960. He traces the entire life experience of the survivors—from the alarming diagnosis all the way to the recent development of post-polio syndrome, a condition in which the symptoms of the disease may return two or three decades after they originally surfaced. Living with Polio follows every physical and emotional stage of the disease: the loneliness of long separations from family and friends suffered by hospitalized victims; the rehabilitation facilitieswhere survivors spent a full year or more painfully trying to regain the use of their paralyzed muscles; and then the return home, where they were faced with readjusting to school or work with the aid of braces, crutches, or wheelchairs while their families faced the difficult responsibilities of caring for and supporting a child or spouse with a disability. Poignant and gripping, Living with Polio is a compelling history of the enduring physical and psychological experience of polio straight from the rarely heard voices of its survivors.




Limping through Life


Book Description

Limping through Life A Farm Boy’s Polio Memoir Jerry Apps “Families throughout the United States lived in fear of polio throughout the late 1940s and early 1950s, and now the disease had come to our farm. I can still remember that short winter day and the chilly night when I first showed symptoms. My life would never be the same.” —from the Introduction Polio was epidemic in the United States starting in 1916. By the 1930s, quarantines and school closings were becoming common, as isolation was one of the only ways to fight the disease. The Sauk vaccine was not available until 1955; in that year, Wisconsin’s Fox River valley had more polio cases per capita than anywhere in the United States. In his most personal book, Jerry Apps, who contracted polio at age twelve, reveals how the disease affected him physically and emotionally, profoundly influencing his education, military service, and family life and setting him on the path to becoming a professional writer. A hardworking farm kid who loved playing softball, young Jerry Apps would have to make many adjustments and meet many challenges after that winter night he was stricken with a debilitating, sometimes fatal illness. In Limping through Life he explores the ways his world changed after polio and pays tribute to those family members, teachers, and friends who helped him along the way.




Adverse Events Associated with Childhood Vaccines


Book Description

Childhood immunization is one of the major public health measures of the 20th century and is now receiving special attention from the Clinton administration. At the same time, some parents and health professionals are questioning the safety of vaccines because of the occurrence of rare adverse events after immunization. This volume provides the most thorough literature review available about links between common childhood vaccinesâ€"tetanus, diphtheria, measles, mumps, polio, Haemophilus influenzae b, and hepatitis Bâ€"and specific types of disorders or death. The authors discuss approaches to evidence and causality and examine the consequencesâ€"neurologic and immunologic disorders and deathâ€"linked with immunization. Discussion also includes background information on the development of the vaccines and details about the case reports, clinical trials, and other evidence associating each vaccine with specific disorders. This comprehensive volume will be an important resource to anyone concerned about the immunization controversy: public health officials, pediatricians, attorneys, researchers, and parents.




Three Minutes for a Dog


Book Description

Contrary to popular belief Polio is not extinct. This is the true story of an indomitable spirit afflicted with unimaginable physical and psychological challenges. Paul Alexander’s life is a saga that started in 1946 and has been profoundly shaped by the Polio epidemic of the early 1950’s. Survivors of the 1950’s Polio Epidemic in America are rare. Polio victims, like Paul Alexander, who require the assistance of an “Iron Lung” respirator for their life’s breath are even rarer. Paul Alexander has crafted his life against all odds and has a courageous and compelling story to share with us all. Victims of Polio, their families, friends and communities are struggling to cope with this obscure but still dangerous infectious disease. This book is a testimony to the strength of the human spirit and an affirmation of the need to continue efforts to eradicate the pestilence of Polio from the planet.




Seven Wheelchairs


Book Description

In 1959, seventeen-year-old Gary Presley was standing in line, wearing his favorite cowboy boots and waiting for his final inoculation of Salk vaccine. Seven days later, a bad headache caused him to skip basketball practice, tell his dad that he was too ill to feed the calves, and walk from barn to bed with shaky, dizzying steps. He never walked again. By the next day, burning with the fever of polio, he was fastened into the claustrophobic cocoon of the iron lung that would be his home for the next three months. Set among the hardscrabble world of the Missouri Ozarks, sizzling with sarcasm and acerbic wit, his memoir tells the story of his journey from the iron lung to life in a wheelchair. Presley is no wheelchair hero, no inspiring figure preaching patience and gratitude. An army brat turned farm kid, newly arrived in a conservative rural community, he was immobilized before he could take the next step toward adulthood. Prevented, literally, from taking that next step, he became cranky and crabby, anxious and alienated, a rolling responsibility crippled not just by polio but by anger and depression, “a crip all over, starting with the brain.” Slowly, however, despite the limitations of navigating in a world before the Americans with Disabilities Act, he builds an independent life. Now, almost fifty years later, having worn out wheelchair after wheelchair, survived post-polio syndrome, and married the woman of his dreams, Gary has redefined himself as Gimp, more ready to act out than to speak up, ironic, perceptive, still cranky and intolerant but more accepting, more able to find joy in his family and his newfound religion. Despite the fact that he detests pity, can spot condescension from miles away, and refuses to play the role of noble victim, he writes in a way that elicits sympathy and understanding and laughter. By giving his readers the unromantic truth about life in a wheelchair, he escapes stereotypes about people with disabilities and moves toward a place where every individual is irreplaceable.




The Polio Paradox


Book Description

Although the threat of polio ended with the Salk vaccine in 1954, many polio survivors are now experiencing the onset of post-polio syndrome (PPS), a complication with new but related symptoms such as chronic fatigue and joint pain.




Managing Post-Polio


Book Description

We are pleased to offer this all new professional reference guide to living well with post-polio. The Second Edition provides all-new, contact and resource information, as well as updated medical content. Edited by Lauro S. Halstead, M.D., Managing Post-Polio provides a comprehensive overview on dealing with the medical, psychological, vocational, and many other challenges of living with post-polio syndrome. Written by 20 authorities in their fields, the majority of whom are polio survivors themselves, Managing Post-Polio distills and summarizes the wealth of information presented at conferences and published in the medical literature over the past 20 years. This information is supplemented with personal stories of seven individuals who provide eloquent testimony to the many ways people have prevailed in the face of ongoing disability. Managing Post-Polio was written by healthcare professionals who work with and counsel patients with post-polio syndrome and who need an up-to-date and quick reference, as well as a guide to living well for persons who have had polio, their families, friends, and loved ones. As Dr. Halstead, a polio survivor himself, observes in the introduction, "this book was written and edited partly to help me deal better with my own unique disability and to help the many thousands of other polio survivors in this country and around the world deal more effectively with their unique version of polio disability."




Polio and Its Aftermath


Book Description

In this book, Shell, himself a victim of polio, offers an inspired analysis of the disease. Part memoir, part cultural criticism and history, part meditation on the meaning of disease, Shell's work combines the understanding of a medical researcher with the sensitivity of a literary critic. He deftly draws a detailed yet broad picture of the lived experience of a crippling disease as it makes it way into every facet of human existence.




Polio


Book Description

In 1988, the World Health Organization launched a twelve-year campaign to wipe out polio. Thirty years and several billion dollars over budget later, the campaign grinds on, vaccinating millions of children and hoping that each new year might see an end to the disease. But success remains elusive, against a surprisingly resilient virus, an unexpectedly weak vaccine and the vagaries of global politics, meeting with indifference from governments and populations alike. How did an innocuous campaign to rid the world of a crippling disease become a hostage of geopolitics? Why do parents refuse to vaccinate their children against polio? And why have poorly paid door-to-door healthworkers been assassinated? Thomas Abraham reports on the ground in search of answers.




Post-polio Syndrome


Book Description

The effects of polio that occur decades after the disease has run its course -- weakness, fatigue, pain, intolerance to cold, difficulty with breathing and swallowing -- are often more devastating than the original disease. This book on the diagnosis and management of polio-related health problems is an essential resource for polio survivors and their families and health care providers. Dr. Julie K. Silver, who has both personal and professional experience with post-polio syndrome, begins the book by defining and describing PPS and providing a historical overview of its diagnosis and treatment. Chapters that follow discuss finding good medical care, dealing with symptoms, maintaining proper nutrition and weight, preventing osteoporosis and falls, and sustaining mobility. Dr. Silver reviews the latest in braces, shoes, assistive devices, and wheelchairs and scooters. She also explores issues involving managing pain, surgery, complementary and alternative medicine, safe and comfortable living environments, insurance and disability, and sex and intimacy.