Living with Spina Bifida


Book Description

It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.




Children with Spina Bifida


Book Description

Provides parents of children with spina bifida information on prenatal diagnosis, health concerns, treatments, therapies, and causes.




Wheelz on the Moon


Book Description

Welcome to the Adventures of Mike Believe. This children's book series will change your child's life by igniting the part of their imagination that helps to create the future of their dreams. The first book, "Wheelz On The Moon," will show them how to activate their imagination through visualization. The next book will show them how to turn that visualization into feelings that will shape their actual reality through love and an unbreakable belief in themselves. Aaron Fotheringham and Mike Dolman are on a mission to change the way kids use their thoughts and feelings to create their future, support one another, and not let anything stop them on their journey to making their dreams come true. KIDS ARE THE ILLUSTRATORS OF THIS BOOK! They can draw right inside the book!Join us in changing the world. If you think being in a wheelchair isn't fun, you've never met Aaron Fotheringham, a.k.a Wheelz. Wheelz is a 'Professional' WCMX (Wheelchair Motocross) athlete. He was born with Spina bifida, a birth defect of the spinal chord that causes limited usage of his legs. But that doesn't stop Wheelz from showing the world that a wheelchair is not just a medical device, but rather, an extreme sports machine! Synopsis: Mike Believe reveals his dream of becoming the first kid to ever skateboard on the moon! But Mike's mom want's him to skateboard less and focus more on school. Mike's best friend, Aaron Dreams, a.k.a. "WHEELZ," is living proof that anything is possible. Born with Spina Bifida, a birth defect of the spinal cord, Wheelz has limited usage of his legs, but this doesn't stop him from using his wheelchair every day to chase his dreams!Wheelz starts to see that there are no limits to what he can achieve in life when his father teaches him the power of his imagination. When Mike Believe's classmate, Perscilla Pout, doubts his ability to get to the moon, Mike loses faith in himself. But Wheelz won't let him give up on his dream. Wheelz teaches Mike how to activate his imagination, and suddenly, getting to the moon seems possible after all! Will Mike Believe's imagination be strong enough to visualize a way to the moon? Or will his dream be crushed by his doubts and fears...On their incredible journey to the moon, the boys learn that they aren't alone. Someone is leading them to discover what an open mind is truly capable of. But first, they must let go of their limiting beliefs of whats possible, and strengthen their imaginations. Join Mike Believe, and Wheelz, on their journey to unlocking limitless imagination, true friendship, and maybe even other worlds!




Spina Bifida


Book Description

The aim of this book to promote a multidisciplinary approach to Spina Bifida, providing the three main specialists categories involved – neurosurgeon, orthopedic surgeons, and urologists – with a concise reference that explains the main clinical problems to be faced in everyday clinical practice. The book also provides the busy specialist with an updated overview of surgical approaches.




Born Twice


Book Description

Why is this happening? Why him? Why us? I can't count the number of times those words echoed through my mind over the course of the summer of 2017. There is no more powerless feeling for a parent than being forced to watch as their child battles for his health & well being. At my wife's 20 week ultrasound, we expected to learn the sex of our second munchkin, but instead our world was crumbled. Words like Spina Bifida, Arnold Chiari Malformation, Myelomeningocele & Hydrocephalus destroyed the excitement we held and replaced it with more uncertainty than we knew existed. The next weeks & months were a whirlwind as we met with specialists and flew across the country so that my wife could undergo fetal surgery to close the opening in my son's back, as well as give him the best chance for a life of worthwhile quality. We would remain there for 4 months, away from our oldest son & our home. Our little Loxley Poet had our hearts from the beginning, so it was never a question as to if we would do all in our power to give him the best chance. It was only a matter of how and when? The amazing people in our lives, our friends & family, made sure we had everything we needed, support in all shapes and sizes. Our journey being what it was, I decided that I could look at it as a burden or as an opportunity. Instead of asking ourselves 'why, ' perhaps we should have been asking ourselves, 'why not?' So, thats what we did. We would handle this and we would thrive, because thats what families do. That's how we survive. That's how we live. This book is for my little warrior, all of his twice born brothers & sisters, as well as their selfless families willing to sacrifice some so that their children may have it all.




Living with Spina Bifida


Book Description

Larry Appelmann talks about his experiences, including the past surgeries he has had. He also mentions his family and how important they are to him. Living with Spina Bifida: Speaking Out About My Disability contains 13 chapters, including a prologue and a bibliography, which you normally would not see in an autobiography but he included one because there were a lot of things related to his disability that he wanted to include in his autobiography. Click here to read a special message from the author.




Spina Bifida and Craniosynostosis


Book Description

This book is a comprehensive overview of spina bifida and craniosynostosis with emphasis on new trends in the management of these diseases. Chapters on spina bifida cover such topics as the etiology and pathophysiology of caudal neural tube defects, the overall management of pediatric patients with spina bifida, surgical treatment, and urological and orthopedic care. The chapters on craniosynostosis present new technologies of surgical treatment, craniomaxillofacial corrective surgery, and telescoping techniques with multiple cranial osteotomies.




Golem Girl


Book Description

The vividly told, gloriously illustrated memoir of an artist born with disabilities who searches for freedom and connection in a society afraid of strange bodies “Golem Girl is luminous; a profound portrait of the artist as a young—and mature—woman; an unflinching social history of disability over the last six decades; and a hymn to life, love, family, and spirit.”—David Mitchell, author of Cloud Atlas WINNER OF THE BARBELLION PRIZE • FINALIST FOR THE NATIONAL BOOK CRITICS CIRCLE AWARD FOR AUTOBIOGRAPHY • NAMED ONE OF THE BEST BOOKS OF THE YEAR BY KIRKUS REVIEWS What do we sacrifice in the pursuit of normalcy? And what becomes possible when we embrace monstrosity? Can we envision a world that sees impossible creatures? In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark—it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits—inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she’s been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity. With the author's magnificent portraits featured throughout, this memoir invites us to stretch ourselves toward a world where bodies flow between all possible forms of what it is to be human. “Not your typical memoir about ‘what it’s like to be disabled in a non-disabled world’ . . . Lehrer tells her stories about becoming the monster she was always meant to be: glorious, defiant, unbound, and voracious. Read it!”—Alice Wong, founder and director, Disability Visibility Project




Fetal MRI


Book Description

This is the most comprehensive book to be written on the subject of fetal MRI. It provides a practical hands-on approach to the use of state-of-the-art MRI techniques and the optimization of sequences. Fetal pathological conditions and methods of prenatal MRI diagnosis are discussed by organ system, and the available literature is reviewed. Interpretation of findings and potential artifacts are thoroughly considered with the aid of numerous high-quality illustrations. In addition, the implications of fetal MRI are explored from the medico-legal and ethical points of view. This book will serve as a detailed resource for radiologists, obstetricians, neonatologists, geneticists, and any practitioner wanting to gain an in-depth understanding of fetal MRI technology and applications. In addition, it will provide a reference source for technologists, researchers, students, and those who are implementing a fetal MRI service in their own facility.




Koko Ken


Book Description

In the early '80s, recovering from my divorce, I moved from Ketchum, Idaho, to Palo Alto, California, to live temporarily with my sister Martin and her family, the other Martins, until I found an apartment. My brother-in-law was and still is a pastor in the Nazarene church. Also attending the church were two college mates of mine and the Martins, Jan and Doug Burgesen and their two children (the two kids, Stevie and Cindy, not Doug and Jan) who could not pronounce "Uncle Ken." It came out "Koko Ken." Soon, very soon, I was known to the whole church (even to my niece Jennifer and my two nephews, Todd and Gabe) as Koko Ken, which gave me the title of this book. Because of a birth defect, spina bifida (the definition's in the book), I wasn't expected to live past six weeks. As of this writing, October 1, 2012, I'm six weeks shy of sixty-two years old. I've lived a very fortunate life. I've hiked up two volcanoes, Lassen and Diamond Head. I've ten speeded down Mt. Haleakala. I played Chopin's, King Faruk's, and Carnegie Hall's pianos. Read my book. It's funny. It's sad. It's me. I'm almost a George Plimpton.