My Clicky Hips: a Story about a Brave Little Girl and Her Developmental Dysplasia of the Hip ( DDH ) Journey


Book Description

'My Clicky Hips' is a children's book about Developmental Dysplasia of the Hip (DDH). It was written with young children in mind and uses simple text and pictures to communicate what it is like to have DDH from a child's perspective. It was written by Fiona Dickson, whose own daughter Emily has had treatment for DDH, initially with a pavlik harness when she was a baby and then surgery (closed and open reduction, femoral osteotomy) and orthopaedic physiotherapy. Most books about DDH are written for an adult audience and tend to focus on medical symptoms and treatments or care for a child going through treatment as a parent. This book was written especially for kids aged 2-10 years old (or old enough to appreciate a picture book). 'My Clicky Hips' conveys a positive message about DDH. It focuses on the story of Emily's DDH journey - from visiting a hip doctor (orthopaedic consultant), being diagnosed with DDH, preparing for, and having an operation in hospital, wearing a spica cast and life after her spica cast removal. It is hoped that the book can be used as an introduction to DDH and then referred to at different stages of a child's treatment. It is ideal for parents who want to explain DDH to their children in a simple way and can help answer many of the questions they may have about how their life might be impacted i.e. can I still see my friends? Can I go to the park? Can I go to nursery/school? What does it feel like to wear a spica cast? It also covers some of the difficult things to explain to children. For example, it describes what it is like to have many of the common DDH procedures i.e. x-ray, general anaesthetic, removing a spica cast. The book does not mention the various types of operations (i.e. open reduction, closed reduction, pelvic osteotomy, femoral osteotomy etc.) as this could be confusing or scary for young children. Instead, it concentrates on the facts about DDH and what cast life might be like.




Hope the Hip Hippo


Book Description

To all the children who have embarked on a journey with hip dysplasia, we hope that you will be able to spread your wings far and wide, and soar farther then you ever imagined.




Shining Through: My Journey with Incontinentia Pigmenti


Book Description

Shining Through: My Journey with incontinentia pigmenti is a heartwarming children’s book about an eight-year-old little girl named Miah who was born with a rare skin condition that has impacted her life. It talks about her physical symptoms and the tests she gets regularly, and it also describes her developmental delays. This condition occurs mostly in females and is lethal in males. It is passed from mother to daughter but if passed to male, the pregnancy is likely to end in a miscarriage. Her mother does not have this gene and her a father cannot pass it to her. How was she born with it? There are many questions that run through her parent’s minds since her mom had an amazing pregnancy without any complications. With much research and education and many different doctors’ appointments, it has helped her parents ensure Miah is able to get the best care. Miah’s parents learn how unique she is, and they are extremely proud of her ability to stand out and very proud of who she is becoming. She demonstrates self-love, acceptance, and perseverance. Being different is not something to be ashamed of, embracing your uniqueness is powerful.




My Little Leg Grows Bigger


Book Description

A story of a journey a little girl takes to have her leg grow longer. It shows what she went through to reach her goal. She meets and makes friends with other children from all over the world who are having similar surgeries. This makes her very happy.




Journey of Her Heart


Book Description

There are few moments which equal the joy that surrounds bringing a baby into the world. It starts from the very beginning. When you hear her heartbeat for the first time, it makes your own heart skip a beat. When you get to see her little fingers and toes on ultrasound the screen, the miracle of life becomes so real. When you finally hold her in your arms for the first time, it takes your breath away. There are also few heartaches equal to finding out that something is not right with your baby girl. This comes in many different forms. In this story, it means she would have a congenital heart defect requiring surgical repair, as well as a diagnosis of Down Syndrome. This is her story.




A Little Girl's Dream


Book Description

This is the story of Ayana, an African American girl who was born with Cerebral Palsy. She dreams of becoming a famous singer, but fears that her appearance may limit her ability to achieve her dream. With her family's support, Ayana learns to embrace her differences. She now believes that she can reach beyond the stars.




Fixing My Crown


Book Description

Read along as Charlotte goes through her cranial therapy journey. This book walks through the process of getting a helmet and common situations for helmet babies and families. Although the journey may be challenging at times, this book helps bring a bit of humor and comfort to those going through their own helmet journey!




Naomi: A Story of a Young Girl with Osteogenesis Imperfecta


Book Description

Meet Naomi. She is 8 years old and has a mom, a dad, and a baby brother named Johnny. Naomi was born with Osteogenesis Imperfecta (OI), and that makes her bones as fragile as glass. This can make life difficult for Naomi when it comes to participating in activities or fitting in with others. But don't take my word for it. Let her tel you in her own words.




Addison, the Little Girl That Could


Book Description

Addison has just been told by her Cousin Daniel that she cannot play basketball because she is a girl, but with the help of her Grandmother, Addison teaches Cousin Daniel a valuable lesson and she learns a few lessons herself along the way. Join Addison on her journey to self-discovery and learning how to properly handle adversity.




The Girl with the Big Blue Eyes


Book Description

"On August 11, 2005, a hot summer day, there was born a beautiful baby girl. Her parents and four older sisters loved her, and she brought much joy to their world. She had big blue eyes, this girl her parents called Sadie, And they soon learned she was a very special little lady." This delightfully illustrated, rhyming children's book tells the story of Sadie Isabelle McCrary and her journey with epilepsy. Written and illustrated by Sadie's older sister Savannah Jane McCrary, a Christian homeschooled author and illustrator, with a special section by Sadie's mama, Debbie McCrary, this is a story showing how we're all loved by God and created in His image.