Navigating Life with Dementia


Book Description

Caregiving for a loved one with Alzheimer's disease or dementia is hard but with this book, you and your family will successfully face the challenges that these diseases present. Dementia is a very common neurological disease of aging affecting millions of people in complex ways. There are multiple forms of the dementia, including Alzheimer's Disease, Lewy Body Dementia, Frontotemporal Dementia, and vascular dementia, among others, and many share features of slowly progressive and profound changes affecting memory, thinking, behavior, and personality. The disease often introduces personal and even financial strains, which can be at times hard to understand. Unfortunately, most forms of dementia have no definitive treatments to prevent, slow, or stop the progression, but there is a concerted effort in the scientific community to change this. There is a consistent hope that there will soon be a new era of scientific breakthroughs impacting dementia. Now, and in the future, patients with dementia, their friends, and their families need resources to successfully face the challenges introduced by the disease. Navigating Life with Dementia is designed as a handbook including tools to manage both day-to-day issues and to anticipate the long-term impact of the disease for dementia patients as well as their friends and families. This volume will help families in all stages of dementia care, beginning with the earliest hints of cognitive problems through advanced stages. In easily understood language, the book thoroughly covers the complexities of the dementias, the establishment of a diagnosis, what to expect throughout the stages of disease, and how to best anticipate and manage common problems.




I Know You by Heart


Book Description

In the U.S. today, over 5.8 million Americans are living with Alzheimer's Disease or related dementia. Each of these individuals has a story. And each one has caregivers, with stories of their own.You have questions - so many questions about what is happening now, and what is to come. How do I cope with this new manifestation of the disease? How do I prepare for an uncertain future?This is especially true when just navigating your way through each day can be overwhelming.Contained within these pages are answers to some of your questions as well as strategies for your future. In navigating this journey, it is important to remember two essential truths. The first is that the body may fail, and the mind may wander, but the spirit - the person inside - remains intact. The caregiver's role is to maximize the remaining strengths of the person they care for.The second is that you are not alone. Caregiving is often an isolating experience.Stories from the lives of others let us know that our experiences are not unique. Be assured that many have gone before, and others are walking the same road today.This is "I Know You by Heart: Navigating the Dementia Journey"




Navigating Life with Dementia


Book Description

"Since you have opened this book, you or a close friend or family member have likely been impacted by the upsetting and frightening diagnosis of dementia. You may have been told about this diagnosis in a number of different ways. Either the term dementia was used, or other words associated with or more specific than dementia, such as Alzheimer's disease, vascular dementia, Lewy Body disease, frontotemporal dementia, or Pick's disease, were used. You may even have been misinformed at first and told that you were simply facing the normal changes of aging, such as forgetfulness or mild depression. Sometimes these terms are relatable based on others we know who have been affected by them. But they can be shocking to hear and hard to understand when talking about yourself or a loved one. Even more difficult is that none of the most common forms of dementia currently have treatments that can cure or slow the disease"--




Living in the Moment


Book Description

A renowned geriatrician shares tips on how families and individuals can live happy, engaged lives after a dementia diagnosis.




Navigating Life with Multiple Sclerosis


Book Description

Navigating Life with Multiple Sclerosis will serve as a practical guide for meeting the challenges of this life-long disease. MS may cause a myriad of symptoms and varies greatly from person to person. The authors demystify MS and offer practical solutions and guidance based upon their extensive combined clinical and research experience. The book tackles many of the common symptoms experienced by the person with MS and looks into the future to explore where research is headed. If you are newly diagnosed or have been living with MS for years, this book is an invaluable guide.




It's Not That Simple: Helping Families Navigate the Alzheimer's Journey


Book Description

This book helps to relieve the fear, anxiety and confusion family member experience when a loved one is diagnosed with dementia. This 3-hour read provides detailed help with skills, tips and guidance based on 14 years of dementia experience.




Navigating Life with Amyotrophic Lateral Sclerosis


Book Description

Navigating Life with Amyotrophic Lateral Sclerosis provides accessible, comprehensive, and up-to-date information about the challenges patients, family members, and caregivers face when confronted by ALS. This guide covers all aspects of managing ALS, from the onset of symptoms, diagnosis, treatments, and coping strategies, to the use of home health care or hospice, and new research in the field. The book also sheds lights on difficult topics, such as end-of-life care and managing legal affairs. Formatted in a question-and-answer style, peppered throughout with patient stories, and with sections devoted to family members and caregivers, this compassionate resource provides guidance to those seeking to understand how to live with this disease.




Dementia Reimagined


Book Description

The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.




When Your Loved One Has Dementia


Book Description

The result is a guide that integrates the practicalities of caregiving with the human emotions that accompany it.




How Do I Know You?


Book Description

Caring for someone with dementia presents different challenges than caring for others with health care issues.People with dementia don't "play by the rules" that signify approaching death from disease or old age. This booklet outlines the issues and progress that a person with dementia will probably follow.The aim of this booklet is to provide information regarding approaching end of life to those people, family and significant others, who are making decisions for and caring for someone with dementia. It would be given to the family upon admission to the Palliative Care program or to any family that is having to address the eating and not eating dilemma.Like it's companions, Gone From My Sight and The Eleventh Hour, How Do I Know You? is short, written in large print, and the information is conveyed in a simple, direct yet gentle manner.