Parents and Families of Children with Disabilities


Book Description

Parents and Families of Children with Disabilities: Providing Effective School Based Support Services provides educators and paraprofessionals with the necessary motivation, research-based practices, skills, and resources to collaborate effectively with families to develop family-centered schools. The book challenges educators to rethink the traditional roles and responsibilities of public schools, training teachers and paraprofessionals how to achieve effective stress management, child advocacy, and transition planning, as well as how to provide academic intervention for the families of children with disabilities and the diverse communities that surround them. Highlights of this book include: Communication and Collaboration Tips provide practical suggestions and examples to professionals that help foster partnership and trust A groundbreaking chapter on Providing Supports for Siblings of children with disabilities (Chapter 2) A chapter on providing Educational Support Services to Assist Parents and Families in Designing and Implementing Positive Behavior Interventions (Chapter 9) A realistic focus on the personal stories of the families of students with disabilities through case study Perspectives and a concluding chapter on Family Stories Illustrating School Based Support A wide variety of pedagogical features in every chapter, including: Learning Objectives, chapter opening Vignettes revisited again at the chapter conclusion, Summary Statements, Questions for Discussion, Reflection Activities, and annotated web link Resources




Special Children, Challenged Parents


Book Description

Dr. Robert A. Naseef, a psychologist and father of a son with autism, details the daily blessings and challenges of raising a child with disabilities, offering sensitive, real-world advice along the way.




We've Got This


Book Description

How do two parents who are blind take their children to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We’ve Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people’s attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, ‘Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit – disabled parents exist.’ Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein. We’ve Got This will appeal to readers of Growing Up Disabled in Australia and other titles in the Growing Up series.




Parenting Matters


Book Description

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.




Children of Disabled Parents


Book Description

This text explores the impact of parental disability on children, especially where lack of support to families results in significant restrictions to children's day to day lives. It reviews the literature on parental disability and its impact on children; considers why concern for the children of disabled parents has emerged at this particular juncture of history; explores whether the presence of parental disability affects the self-reported health and well-being of children; discusses how children's strengths as well as their vulnerabilities can be identified and promoted; and suggests how more effective social care services can be delivered to children in families affected by disability or chronic illness.




Parents of Children with Disabilities


Book Description

"I simply could not put this book down! It is very well written and makes me feel like I am sitting in Press and Gena's living room talking about their experiences. I love the Chapter Take Aways and the stories from other families. Readers will feel inspired with new direction. I only wish this was available years ago as our family began our journey caring for our son with autism." Didi Zaryczny Chairperson, disAbility Resource Network "As a parent of a disabled child, I find this book to be an immensely valuable resource. The Barnhills offer practical help for navigating the emotional and relational pitfalls common to those in our situation. Their advice is concrete, realistic, and encouraging." Andrew Dunks Pastor and father of a teenage son with brittle-bone disease




A Celebration of Family


Book Description

"A Celebration of Family: Stories of Parents with Disabilities" contains the stories of thirty families. In every family, one or both parents have disabilities: physical, mental, sensory, and/or intellectual. The stories illustrate the infinite variety of the American family. It is that variety that gives the family both its strength and its beauty. Like individuals, no two families are the same.In the course of discussing their family experiences, the parents cover a number of topics. Most stories concern having children through birth, but there are also stories about fostering and adopting. Four stories concern single parenthood. Many parents talk about adaptations and accommodations they made to be effective parents, but even more talk about how wonderfully adaptive their children were to their disabilities. Many parents talk about individual discrimination and societal bias they have faced. A number of stories highlight the decision-making process to have children when the possibility exists of passing on an inheritable condition. Parents are included that had children before they acquired a disability and they relate how that acquired disability affected their family. Several stories discuss legal and policy issues around parenting with a disability. The stories contain humor, compassion, and gratitude. They are proof that one thing you can get any parent to talk about is their children. As one parent in the book puts it, "if you suck as a person, you are going to suck as a parent, whether you have a disability or not. If you are compassionate and caring and nurturing as a person, you will be like that as a parent, too.




Working with Families of Children with Special Needs


Book Description

The importance of partnerships between professionals and the parents of children with special needs/disability is well established in childcare legislation. But is it reflected in practice? Written for practitioners and those in training, this book recognises that forming partnerships can be a fraught process involving dissent as well as cooperation. Naomi Dale draws on case histories from her own experience to examine key partnership issues such as consent, confidentiality and diagnosis delivery. She combines up-to-date theory and research with practice to provide a wealth of suggestions and ideas for effective family work. Working with Families of Children with Special Needs features useful exercises with each chapter, making it an excellent resource book and practice manual for multidisciplinary professionals.




Parents and Professionals Partnering for Children With Disabilities


Book Description

Cultivate effective partnerships between parents and professionals through honest, respectful and skillful communication The authors draw upon the metaphor of "dance" to better understand the complexities and possibilities of forming partnerships between educators, administrators, early childhood providers, therapists, support staff, other professionals, and parents of children with disabilities. This revised edition of Do You Hear What I Hear? Parents and Professionals Working Together for Children With Special Needs is rich with stories, examples, and practical insights. This book, written from both the parent′s and the professional′s points of view, provides a developmental approach to understanding and forging positive adult relationships, while also providing concrete ways to advocate for children. The authors′ years of experience as successful consultants, trainers, and educators lends this helpful resource a deep sense of realism and compassion. They remind the reader of how essential the parent-professional partnership is—and why it IS a dance that matters. Key features include: Practical insights and evidence-based approaches to forming partnerships Easy-to-read, non-technical language that speaks to both the heart and the mind Sample letters and other forms of communication shared between professionals and parents Stories and examples of real-world conversations between parents and professionals Effective ways to handle difficult situations Rich with humor and heart, this highly readable book offers helpful steps for self reflection, personnel preparation, and parent-professional training. Educators and parents will find expert guidance for listening to each other′s music, trying out each other′s dance steps, and working toward a new dance that includes contributions from all—with the ultimate reward of seeing children achieve their highest potential.




Including Families of Children with Special Needs


Book Description

More than 6.5 million children in the US receive special education services; in any given community, approximately one child out of every six will get speech therapy, go to counseling, attend classes exclusively with other children with disabilities, or receive some other service that allows him or her to learn. This new revised edition is a step-by-step guide to serving children and youth with disabilities as well as the family members, caregivers, and other people involved in their lives. The authors show how staff can enable full use of the library’s resources by integrating the methods of educators, medical and psychological therapists, social workers, librarians, parents, and other caregivers. Widening the scope to address the needs of teens as well as preschool and school-age children, this edition also discusses the needs of Spanish-speaking children with disabilities and their families, looking at cultural competency as well as Spanish-language resources. Enhanced with checklists, stories based on real experiences, descriptions of model programs and resources, and an overview of appropriate internet sites and services, this how-to gives thorough consideration to Partnering and collaborating with parents and other professionals Developing special collections and resources Assessing competencies and skills Principles underlying family-centered services and resource-based practices The interrelationship of early intervention, special education, and library service This manual will prove valuable not only to children’s services librarians, outreach librarians, and library administrators, but also early intervention and family support professionals, early childhood and special educators, childcare workers, daycare and after school program providers, and policymakers.