Post-Diagnosis Support for Children with Autism Spectrum Disorder, Their Families and Carers


Book Description

Occasional Paper No. 35 consists of two reports on post-diagnosis support for children with Autism Spectrum Disorder. The first report, Post-diagnosis support for children with Autism Spectrum Disorder, their families and carers, by kylie valentine and Marianne Rajkovic, with Brooke Dinning and Denise Thompson, focuses on younger children. The second report, Post-diagnosis support for children with Autism Spectrum Disorder, their families and carers: older children and young people, by Marianne Rajkovic, Denise Thompson and Kylie Valentine, focuses on older children and young people. The reports are based on literature reviews addressing the experiences of diagnosis, treatment and support for families with children who are diagnosed with Autism Spectrum Disorder. They focus on the impact of Autism Spectrum Disorder on families and on their perceptions of the benefits of the treatment received and support models provided, as well as intervention studies and programs that assist transitions from school. The reports are also based on interviews with parents and Autism Spectrum Disorder service providers across Australia.




Post-diagnosis Support for Children with Autism Spectrum Disorder


Book Description

"The paper consists of two reports on post-diagnosis support for children with Autism Spectrum Disorder. The first report focuses on younger children, and the second on older children. The reports are based on literature reviews addressing the experiences of diagnosis, treatment and support for families with children who are diagnosed with Autism Spectrum Disorder. They focus on the impact of Autism Spectrum Disorder on families and on their perceptions of the benefits of the treatment received and support models provided, as well as intervention studies and programs that assist transitions from school. The reports are also based on interviews with parents and Autism Spectrum Disorder service providers across Australia."--FaHCSIA website.




Autism and the Family: Understanding and Supporting Parents and Siblings


Book Description

Ready-to-implement resources and approaches for effective professional care in school and clinical settings. The reverberations of autism spectrum disorders among parents and siblings can be complex. Parents may grapple with the impact of their child's initial diagnosis, wrestle with the tension between their professional ambitions and family obligations, and labor to maintain a healthy union with their partners. Brothers and sisters may be given less attention, asked to assume a more adult role than they feel ready for, or strive for meaningful connection and communication with their sibling and parents. Although the energy of clinicians, teachers, and other professionals working with individuals with autism spectrum disorder is often focused intensively on the child who is diagnosed, the practitioner can also be an invaluable resource for the child's family. Drawing upon clinical research and firsthand family interviews, this book helps clinicians understand the experiences of parents and siblings of a child with ASD from the time of diagnosis through adulthood. It provides clear recommendations for sensitive, informed professional support. Step-by-step in each chapter, Fiske elucidates such vital subjects as: Understanding the experience of diagnosis Recognizing patterns of parent stress over time Appreciating and navigating the effects of ASD on relationships between parents Involving and providing support for siblings Integrating grandparents and other extended family in care and treatment Understanding a family's culture Identifying and developing effective coping strategies Building a strong rapport with parents and family Guiding parents in the treatment of autism And many more, including key takeaways for assisting families in managing feelings of grief and guilt, navigating support options, treatment resources, and related financial concerns, and calibrating the division of labor in the home. Autism and the Family supplies all the foundations necessary for professionals to understand the full impact of ASD on the child, siblings, and parents and cultivate an empathic, supportive approach to treatment for the entire family.




Developmental and Behavioral Pediatrics


Book Description

All-new clinical resource for managing children with developmental and behavioral concerns. Developed by leading experts in developmental and behavioral pediatrics, the all-new AAP Developmental and Behavioral Pediatrics gives one place to turn for expert recommendations to deliver, coordinate, and/or monitor quality developmental/behavioral care within the medical home. The one resource with all the essentials for pediatric primary care providers. Evaluation and care initiation: Interviewing and counseling, Surveillance and screening, Psychoeducational testing, Neurodevelopment.




Living with Autistic Spectrum Disorders


Book Description

′The layout and presentation of the material are very "user friendly" and the book is, therefore, easy to read. Those with less direct experience of living or working with children who are autistic, including teachers and learning support assistants, who require some help in appreciating the complex range of behaviours and responses such children present, will find this little book illuminating′ - Support for Learning "This is a really practical tool........ the structure of the book is clear and uncomplicated for the reader to access. This book is based on a wealth of experience of working closely both with individuals with Autism and their families. It will be a revelation to professionals interested in this area and a comfort to carers who live the experience. Most importantly, it reminds us of the barriers to positive parent/professional partnership and challenges us to build supportive bridges to effective intervention for the individual with Autism. Autism NI (PAPA) was created out of such a dynamic approach and therefore welcomes this significant commentary on this critical issue." By giving a concise account of what life may be like following the diagnosis of autistic spectrum disorders (ASDs) in the family, this book examines service provision at different stages, and provides information for parents, carers and practitioners′ - Arlene Cassidy, Chief Executive, Autism NI Parents want support and advice during and after a diagnosis of ASDs, and professionals want to be able to give the right answers. This book will meet the needs of both. Issues dealt with include: " how to help the family " how to help brothers and sisters " preparing children with ASDs for the world outside " keeping expectations high " how to work together with schools and other agencies " finding community links ′In my view it would be a good read for relatives, friends and teachers in training to enable them to understand many of the issues associated with children who have an autism spectrum disorder (ASD). It points up the various facets of having and living with a child with autism - as far as possible from a positive point of view. The authors, from their obvious extensive experience, have identified many problems and circumstances that parents/carers are likely to meet and that can be tackled in a wide variety of ways. The book is designed to raise these for consideration - and this it does well′ - Support for Learning, Volume 22, Number 2




Supporting the Families of Children with Autism


Book Description

The pressures, strains and sometimes joys of looking after a child with autism are increasingly recognized in professional and academic circles. This book presents key findings from a research study conducted by the Family Assessment Unit that involved many long discussions with the parents and siblings of children and young people with autism. The authors provide * a unique approach dealing specifically with the needs of families * informed interventions for helping the family units The authors demonstrate how autism affects parents, siblings and carers. They provide case studies that examine their experiences as individuals and as family units over the life course of their son or daughter, brother or sister with autism. They identify various stressors from this study and an examination of previous research in this area. For example, families often face enormous stress in having the disorder diagnosed. There is also the complex stress associated with increasing social and behavioural difficulties, and guilt arising from others labelling the parents mismanagement of the children. The authors examine the diagnostic process from the viewpoint of parents and primary carers and chart the developments that have taken place in research and practice with families. They develop strategies for supporting and empowering families to better assist their children with autism, including contingency management approaches. Supporting the Families of Children with Autism is a valuable resource for a wide range of professionals who work with autistic children and their families, including health visitors, specialist teachers, social workers and paediatricians. It will be of interest to educational psychologists and families of children with autism.







Talking Together about an Autism Diagnosis


Book Description

At The National Autistic Society we are often asked about how best to talk to someone about their autism diagnosis. We feel that a person with autism has the right to know their diagnosis. Wanting to protect someone from their diagnosis can feel like the kindest thing to do, but in reality it often gets harder the longer it is delayed. There are definite advantages to talking about the diagnosis, but these vary between individuals. Many people have commented that they would like to have known earlier because knowing their diagnosis came as a relief and a source of comfort. This book offers a wealth of advice and guidance. Aimed primarily at parents and carers of younger children, it includes helpful information also for schools and for people working with adults with autism.




Hints and Tips for Helping Children with Autism Spectrum Disorders


Book Description

If you have a child on the autism spectrum who struggles with the challenges of daily life, then this book is for you! Hints and Tips... is peppered with vignettes and stories of real-life situations and successes, and offers clever ideas for tackling everyday difficulties, such as bathing, bedtime, school trips, and selecting the right child minder. Dion E. Betts and Nancy J. Patrick provide creative, practical strategies to help parents and caregivers to support their child, and to enable their child to develop the social skills needed to manage and enjoy daily life to the fullest. The book is split into five parts: home life, hygiene, community, medical, and schools and organizations. Common problem areas are also tackled in a toolkit section, which includes checklists, ‘to do’ lists, visual schedules, and mnemonics to aid memory and retrieval. Hints and Tips for Helping Children with Autism Spectrum Disorders is an essential aid for parents and carers to make small and simple changes that result in big improvements in the quality of life of children, their families, and carers.




A Friend's and Relative's Guide to Supporting the Family with Autism


Book Description

When a child is diagnosed with an autism spectrum disorder (ASD), what the family really need, and often lack, is positive reassurance and understanding from those closest to them. This book is packed with advice on how extended family members and friends can provide the necessary support. Explaining the diagnosis and characteristics of ASD, this helpful guide uses examples from real families to illustrate the complex feelings that parents and each member of the family are likely to go through after a child is diagnosed. It gives practical tips on help that might be needed most, details the possible changes that will take place as the family adjusts and concludes with a comprehensive guide to other useful sources of information. This book will help strengthen relationships between parents and their extended family and friends, enabling a reliable support system to develop which will remain crucial to the child throughout their life.