Supporting People Living with Dementia in Black, Asian and Minority Ethnic Communities


Book Description

Focusing on individual Black, Asian and Minority Ethnic (BAME) communities such as Irish, Caribbean, South Asian, Chinese and Jewish, this accessible guide brings together key information on the impact of living with dementia in BAME communities into a single comprehensive resource for front-line staff as well as an information source for families and carers. The book sets out personal case studies and examines how to provide bespoke support and information to raise awareness and lower levels of stigma. With diagnoses among minority communities set to increase, this much-needed handbook is the perfect companion for care home workers, social workers, doctors and nurses who may lack experience in communicating with and caring for people from BAME backgrounds. It is also a valuable resource for family carers and those living with dementia.




Dementia, Culture and Ethnicity


Book Description

With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.




Reducing the Impact of Dementia in America


Book Description

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.




Critical Perspectives on Racial and Ethnic Differences in Health in Late Life


Book Description

In their later years, Americans of different racial and ethnic backgrounds are not in equally good-or equally poor-health. There is wide variation, but on average older Whites are healthier than older Blacks and tend to outlive them. But Whites tend to be in poorer health than Hispanics and Asian Americans. This volume documents the differentials and considers possible explanations. Selection processes play a role: selective migration, for instance, or selective survival to advanced ages. Health differentials originate early in life, possibly even before birth, and are affected by events and experiences throughout the life course. Differences in socioeconomic status, risk behavior, social relations, and health care all play a role. Separate chapters consider the contribution of such factors and the biopsychosocial mechanisms that link them to health. This volume provides the empirical evidence for the research agenda provided in the separate report of the Panel on Race, Ethnicity, and Health in Later Life.




Communication Skills for Effective Dementia Care


Book Description

Effective communication is critical for everyone, and this insightful book teaches the skills needed by healthcare staff in their day-to-day interactions with people with dementia and their families. Often when people with dementia exhibit behaviour that challenges, it is an indication that their needs are not being met. The authors illustrate the key aspects of communication for the development of a skilled and confident workforce, capable of providing thoroughly effective care that reduces levels of agitation in people with dementia. The first six chapters describe the CAIT (Communication and Interaction Training) framework established by the authors. This is followed by chapters contributed by experts on the Positive Care ApproachTM, appropriate touch and communication with people in the late stages of dementia. Accessible and practical, it will help caregivers develop and articulate existing skills as well as gain new ones, allowing them to overcome the challenges faced when caring for people with dementia.




Communities in Action


Book Description

In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.




A Namaste Care Activity Book


Book Description

"I open the garden gate, which creaks on old, worn hinges. The rose garden is peaceful but not silent. Bird song and the buzz of bees provide nature's melody. Somewhere in the distance, gentle music is playing and it relaxes me." Namaste Care offers compassionate care to people with advanced dementia through sensory input, comfort and pleasure, combining music, therapeutic touch, colour, food and scents. With ready-to-use structured sensory stories that are specially designed for people with advanced dementia, A Namaste Care Activity Book invites you to enhance your care through storytelling and sensory stimuli. Early chapters give an overview of the approach, exploring the effects of sensory stimulation in improving quality of life. With contributions from professionals across the field, chapters describe ways to engage the different senses, including aromatherapy, food and memory and therapeutic use of lighting. These are followed by a selection of themed stories, with ideas for sensory activities to support each one. In addition to guides for Namaste Care sessions, the book provides a starting point for writing your own stories tailored to the person for whom you are caring. Inspiring creativity and confidence in delivering Namaste Care, the activities provide valuable guidance in caring for and improving the lives of people with advanced dementia.




Engaging Black and Minority Ethnic Groups in Health Research


Book Description

This crucial contribution exposes the misconception that health research and health services are equally effective for all and highlights their failures in reaching Black and Minority Ethnic (BAME) groups. It provides essential case study examples on recruitment, engagement and partnerships with BAME groups in research and public engagement.




Dementia Care


Book Description

Ideal for quick reference, this pocket-sized guide puts all the crucial information on caring for patients with dementia at your fingertips. All you need to know on: Person-centered dementia care Communication and managing behaviour Pain assessment Nutrition and medication Advanced care plans And much more . . .




The International Handbook of Black Community Mental Health


Book Description

This international handbook addresses classic mental health issues, as well as controversial subjects regarding inequalities and stereotypes in access to services, and misdiagnoses. It addresses the everyday racism faced by Black people within mental health practice.