The All Home Care Matters Official Family Caregivers' Guide


Book Description

EMBARK ON A COMPASSIONATE JOURNEY THROUGH YOUR LOVED ONE'S TWILIGHT YEARS At the heart of every family is the profound bond shared with our aging parents, a bond that becomes both clearer and more delicate as the sunset of their lives approaches. "The All Home Care Matters Official Family Caregivers' Guide" is a beacon of wisdom, meant to guide you through the complexities and emotional tides of becoming a caregiver. This pivotal guide is your ally, from witnessing the early signs of your parents needing assistance to managing the crescendo of their medical and emotional needs. Delve into Chapter 1, "Recognizing the Shifts," where you'll learn to spot the early indicators pointing to your parents' need for care, setting the stage to initiate that all-important conversation with empathy and foresight. Transitioning to Chapter 2, "The Basics of Caregiving," equips you with the knowledge to understand your role and set expectations that honor both you and your parents. Legal and financial planning steps appear in Chapter 3, presenting essential documents and benefit navigation as pillars of your caregiving foundation. Discover within Chapter 4 the heart and soul of the caregiver's emotional journey, as you learn to gracefully handle role reversals and resistance. The practical wisdom flows into health and medical needs in Chapter 5, ensuring routine care and emergency response become second nature to you. The valuable At-Home Care Strategies of Chapter 6 offer actionable advice for creating a safe and nurturing home environment. As the pages turn, you'll be methodically prepared for the eventuality of assisted living, home care, and end-of-life considerations, and-most importantly-maintaining your well-being through the chapters dedicated to avoiding burnout, seeking support, and staying connected. With comprehensive resource directories and checklists, this book is not merely a guide but a companion on your journey. Empathetic and empowering, "The All Home Care Matters Official Family Caregivers' Guide" is your transformative guide for honoring your parent's golden years with dignity, love, and unwavering support. Embrace the path ahead with confidence - your odyssey of care awaits.




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)


Book Description

The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD




Dancing with Memories


Book Description

Dancing with Memories is a children's picture book about living well with dementia. Lucy lives with dementia - she wishes she didn't, but she does. S She is full of life and determination and although less competent than before, Lucy but can still do a lot. "My brain has changed", she says, "but I am still Lucy." Lucy knows her brain doesn't work like it used to, but doesn't always understand the implications. This leads to adventures and challenges. One adventure happens the day of her granddaughter's wedding. Lucy is to be picked up for the wedding by her daughter but decides to make her own way on the bus. Lucy becomes lost and confused on her way to the wedding. She is in danger of missing the wedding altogether! After a frustrating few hours, she finds her way home through the kindness and attentiveness of people in her community, including ten-year-old Reuben and his kelpie, Rejy. Lucy does make it to her granddaughter's wedding. Dancing with Memories focuses on wellbeing rather than deficit. It re-envisions what's possible by enjoying people living with dementia, more than fixating on what is lost. It is generative, not despairing; it informs and empowers. It centres on a community aware of the respectful support people living with dementia need and deserve - a dementia-friendly community, where people take time to notice, listen and act. Supported by Professor Ralph Martins' Q&A and Maggie Beer's healthy lunchboxes, Dancing with Memories provides a platform to raise awareness, alleviate fears and facilitate conversation with children around brain health. It highlights the importance of a life-long healthy diet and lifestyle, and empowers children to engage with hope and intent in the growing social challenge of dementia.




The Common Sense Guide to Dementia For Clinicians and Caregivers


Book Description

The Common Sense Guide to Dementia for Clinicians and Caregivers provides an easy-to-read, practical, and thoughtful approach to dementia care. Written by two specialists who have cared for thousands of patients with dementia and their families, this ground-breaking title unifies the perspectives of neurology and psychiatry to meet a variety of caregiver needs. It spotlights many real-world concerns not typically covered in standard textbooks, while simultaneously presenting a more detailed medical perspective than typical caregiver manuals. This handy title offers expert guidance for the clinical management of dementia and compassionate support of patients and families. Designed to enhance the physician-caregiver interaction and liberally illustrated with case examples, The Common Sense Guide espouses general principles of dementia care that apply across the stages and spectrum of this illness, including non-Alzheimer's types of dementia, in addition to Alzheimer's disease. Clinicians, family members, and other caregivers will find this volume useful from the moment that symptoms of dementia emerge. The authors place an emphasis on caring for the caregiver as well as the patient. Essential topics include how to find the right clinician, make the most of a doctor's visit, and avert a crisis - or manage one that can't be avoided. Sometimes difficult considerations, such as driving, financial management, legal matters, long-term placement, and end-of-life care, are faced head-on. Tried, true, and time-saving tips are explained in terms of what works - and what doesn't - with regard to clinical evaluation, medications, behavioral measures, and alternate therapies. Medical, nursing, and allied health care professionals will undoubtedly turn to this unique overview as a vital resource and mainstay of clinical dementia care, as well as a valuable recommendation for family caregivers.




Age-Friendly Health Systems


Book Description

According to the US Census Bureau, the US population aged 65+ years is expected to nearly double over the next 30 years, from 43.1 million in 2012 to an estimated 83.7 million in 2050. These demographic advances, however extraordinary, have left our health systems behind as they struggle to reliably provide evidence-based practice to every older adult at every care interaction. Age-Friendly Health Systems is an initiative of The John A. Hartford Foundation and the Institute for Healthcare Improvement (IHI), in partnership with the American Hospital Association (AHA) and the Catholic Health Association of the United States (CHA), designed Age-Friendly Health Systems to meet this challenge head on. Age-Friendly Health Systems aim to: Follow an essential set of evidence-based practices; Cause no harm; and Align with What Matters to the older adult and their family caregivers.




The Caregiving Journey: Information. Guidance. Inspiration.


Book Description

Our world is currently experiencing a global Caregiving Crisis. If you, like so many others, are increasingly concerned about your loved one's needs as they age, then ask yourself the following questions: How does your loved one see their life playing out? Where do they want to live as they age (in their own home vs. assisted living)? What kind of health do they aspire to be in? What kinds of activities do they want to engage in? If and when your loved one can no longer live independently, what is their preference (i.e., paid in-home help, assisted living or nursing facility)? Is their preference realistic considering their financial situation, and if not, what are the feasible alternatives? The Caregiving Journey goes far beyond the basics of wills and logistical funeral plans-basics many people have in place (especially where children are involved). Rather, you'll be guided and supported to create a well-thought-out plan for those three, five or even 10 or more years when your loved one needs your help because they can no longer live on their own. With the inspiration, practical steps, support, and tools provided inside these pages, you'll be well-equipped to guide your family members and loved ones to the end of their lives with love, ease and grace.Bringing together her 30+ years as a professional market analyst and her personal experience as a live-in caregiver for her mom, author Debbie Howard has integrated her experiences-along with the journeys of over 200 other caregivers-into this book to help you choose your best way forward. Learn more at www.theCaregivingJourney.com.




Reducing the Impact of Dementia in America


Book Description

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.




Juggling Life, Work, and Caregiving


Book Description

One in four American adult face the challenges of caring for an adult friend or relative. Although caregiving can be a richly rewarding and joyful experience, the role comes with enormous responsibilities-- and pressures. This gentle guide provides practical resources and tips that are easy to find when you need them, whether you're caregiving day to day, planning for future needs, or in the middle of a crisis. Goyer offers insight, inspiration, and poignant stories and experiences of caregivers, including her own as a live-in caregiver for her parents.




Home Hospice Navigation


Book Description

Take the guesswork out of home hospice caregiving! HOME HOSPICE NAVIGATION: THE CAREGIVER'S GUIDE offers a clear roadmap, guidance, and support for anyone who has to navigate the caregiving maze. It is sparkled with personal anecdotes and tips by the author, a healthcare professional, nurse, case manager and loving daughter. The book is also an integral resource for healthcare professionals and students working with hospice patients and caregivers.Clearly written and well organized, it is a comprehensive resource for those with a life-threatening illness and individuals wishing to open the end-of-life discussion with a loved one. The book helps you understand best practices so you can make better choices. Addresses hospice misconceptions and allays fears and anxieties of what to expect Provides clear and concise caregiving information and pertinent resources How to interact with the various hospice professionals