The Caregiver


Book Description

From the critically acclaimed author of This Burns My Heart comes a “luminous mother-daughter saga” (Entertainment Weekly) about a young woman who is forced to flee 1980s Brazil for California, and in doing so unearths the hidden life of her enigmatic mother. Mara Alencar’s mother Ana is her moon, her sun, her stars. Ana, a struggling voice-over actress, is an admirably brave and recklessly impulsive woman who does everything in her power to care for her little girl in perilous 1980s Rio de Janeiro. With no other family or friends her own age, Ana eclipses Mara’s entire world. They take turns caring for each other—in ways big and small. But who is Ana, really? As she grows older, Mara slowly begins to piece together the many facets of Ana’s complicated life—a mother, a rebel, and always, an actress. When Ana becomes involved with a civilian rebel group attempting to undermine the city’s cruel Police Chief, their fragile arrangement begins to unravel. Mara is forced to flee the only home she’s ever known, for California, where she lives as an undocumented immigrant, caregiving for a dying woman. It’s here that she begins to grapple with her turbulent past and starts to uncover vital truths—about her mother, herself, and what it means to truly take care of someone. A “lovely and heartbreaking” (People) story that is “simultaneously dreamlike and visceral” (The Atlantic), The Caregiver is “a beautiful testament to Samuel Park’s extraordinary talents as a storyteller…that reads, in some moments, like a thriller—and, in others, like a meditation on what it means to be alive…A ferocious page-turner with deep wells of compassion for the struggles of the living—and the sins of the dead” (Kirkus Reviews, starred review).




The Caregiver


Book Description

Aaron and Stella Alterra had been married for more than sixty years when Aaron began to notice puzzling lapses in his wife's memory. Innocuous at first, they became more severe and more alarming. After a series of appointments and tests, the Alterras were informed that Stella was one of the more than 4.5 million Americans with Alzheimer's disease. Combining medical research on the disease and often-painful anecdotes of memory loss, deteriorating motor functions, personality shifts, support-group and daycare experiences, and drug trials, Alterra chronicles his transformation from husband to caregiver after his wife's diagnosis. More than a chronology of one family's experience of Alzheimer's disease, The Caregiver is an intelligent, beautifully reflective testimony to how family members turned caregivers become the ultimate advocates for their loved ones in the face of a disease with no cure.




The Caregivers


Book Description

A moving, intimate, and compassionate book that chronicles the experiences of a group of long-term caregivers—spouses, parents, and friends of the elderly and ill—illuminating critical issues of old age, end-of-life care, medical reform, and social policy—and “providing comfort in the time-honored form of shared experience” (The Minneapolis Star-Tribune). In 2010, journalist Nell Lake began sitting in on the weekly meetings of a local hospital’s caregivers support group. Soon members invited her into their lives. For two years, she brought empathy, insight, and an eye for detail to understanding Penny, a fifty-year-old botanist caring for her aging mother; Daniel, a survivor of Nazi Germany who tends his ailing wife; William, whose wife suffers from Alzheimer’s; and others with whom all caregivers will identify. Witnessing acts of devotion and frustration, lessons in patience and in letting go, Lake illuminates the intimate exchanges of caregiving and care-receiving and considers important and timely social issues: How can we care for the aging, ill, and dying with skill and compassion, even as the costs and labors of care increase? How might the medical profession take into account the needs of caregivers as well as patients? In The Caregivers Nell Lake shares a thoughtful and tenderly reported depiction of the real-life predicaments that evoke these crucial questions. With more and more people spending their late years ill and frail, and 43 million Americans already caring for family members over age fifty, this is an important chronicle of a widely shared experience and a public concern. “The Caregivers is as elegantly constructed as a novel, but more than that, Lake writes about these people with such warmth and vividness that they feel as memorable as our favorite fictional characters. It is a beautifully written account” (The Boston Globe).




The Conscious Caregiver


Book Description

Linda Abbit, founder of Tender Loving Eldercare and a veteran of the caregiving industry, shares her advice on taking care of an older parent or loved one and how to handle everything that goes along with this dramatic life change. Being a caregiver can be a difficult role. It requires patience, tenderness, selflessness, and hard work. Providing care for someone, whether it’s a parent, a loved one, or as a professional requires a high level of self-love and self-care. But while it may be a rewarding experience to care for a loved one, the emotional and physical stress of caregiving can lead to burnout and exhaustion—causing caregivers to put themselves and their own well-being in the background. How can you fulfill your role as a caregiver without losing yourself? Conscious Caregiver teaches you how to navigate caring for your loved one, whether it’s full-time in-house caregiving or hiring support from outside services. With information on how to talk to your loved ones about the situation, handle the emotional stress, stay financially secure, and take the time to care for yourself, this guide can help you care for your loved one and yourself at the same time.




Neglected No More


Book Description

A NATIONAL BESTSELLER SHORTLISTED FOR THE BALSILLIE PRIZE FOR PUBLIC POLICY It took the coronavirus pandemic to open our eyes to the deplorable state of so many of the nation's long-term care homes: the inhumane conditions, overworked and underpaid staff, and lack of oversight. In this timely new book, esteemed health reporter André Picard reveals the full extent of the crisis in eldercare, and offers an urgently needed prescription to fix a broken system. When COVID-19 spread through seniors' residences across Canada, the impact was horrific. Along with widespread illness and a devastating death toll, the situation exposed a decades-old crisis: the shocking systemic neglect towards our elders. Called in to provide emergency care in some of the hardest-hit facilities in Ontario and Quebec, the military issued damning reports of what they encountered. And yet, the failings that were exposed--unappetizing meals, infrequent baths, overmedication, physical abuse and inadequate personal care--have persisted for years in these institutions. In Neglected No More, André Picard takes a hard look at how we came to embrace mass institutionalization, and lays out what can and must be done to improve the state of care for our elders, a highly vulnerable population with complex needs and little ability to advocate for themselves. Picard shows that the entire eldercare system--fragmented, underfunded and unsupported--is long overdue for a fundamental rethink. We need to find ways to ensure seniors can age gracefully in the community for longer, with supportive home care and respite for family caregivers, and ensure that long-term care homes are not warehouses of isolation and neglect. Our elders deserve nothing less.




This Burns My Heart


Book Description

In this "extraordinary" (Chicago Tribune) and compelling love story set in postwar Korea in the 1960s, an unhappily married woman struggles to give her daughter a good life and to find love in a society caught between ancient tradition and change. On the eve of her marriage, beautiful and strong-willed Soo-Ja Choi receives a passionate proposal from a young medical student. But caught up in her desire to pursue a career in Seoul, she turns him away, having impetuously chosen another man who she believes will let her fulfill her dreams. Instead, she finds herself tightly bound by tradition and trapped in a suffocating marriage, her ambition reduced to carving out a successful future for her only daughter. Through it all, she longs for the man she truly loves, whose path she seems destined to cross again and again. In This Burns My Heart, Samuel Parks has crafted a transcendent love story that vibrantly captures 1960s South Korea and brings to life an unforgettable heroine.




Heeding the Caregiver Call


Book Description

In the fall of 2015, Barbara Sr. called her only child to ask for her help. Unbeknownst to her family, Barbara Sr. was already in the grips of Alzheimer’s. This book tells the story of Barbara Jr.’s journey as her mother’s caregiver and shares insights into the physical, emotional, financial, and spiritual impacts of caregiving while fighting her own cancer. It also provides practical information to others who assume caregiving roles for their loved ones. Follow this mother and daughter’s journey through resentments and regrets, forgiveness and faith, laughter and love. Barbara Jr. promised her mother on her deathbed that she would tell her story. Here it is.




Chicken Soup for the Caregiver's Soul


Book Description

A dose of inspiration for caregiving professionals and the millions of souls who help care for family and friends.




NORMAL Doesn't Live Here Anymore


Book Description

What would happen if The Unthinkable blindsided you, requiring everything be put on hold to become a full time caregiver for a loved one? At the very least, it would reshape your life. Without a survival guide, it could even destroy it.Barb Owen delivers precisely that survival guide in NORMAL Doesn "t Live Here Anymore: An Inspiring Story of Hope for Caregivers. She weaves a story, through the first two parts of the book, based on her life-changing experience as primary caregiver for her elderly parents. Following each chapter a bit of wisdom gained from Barb "s experience is summarized as a Reflection. The third part of NORMAL Doesn "t Live Here Anymore addresses the critical need for self-care for the new and seasoned caregiver alike. Specific suggestions abound for Me Time ”how to find it ”what to do with it ”and how very important it is for sustaining oneself throughout the often arduous caregiving-marathon. This truly inspiring book is one part parable, one part autobiography and all survival guide, illuminating a path for the more than 65 million caregiving Americans. SEverything hinges on your ability to care for both yourself and your loved one, says Owen. SThis maxim is of great consequence ”heed it, and you will endure. Dismiss it, and you will have trouble surviving. Take care of yourself, your loved one and keep the faith, because you "re not alone. ----- EXCERPT FROM: NORMAL Doesn "t Live Here Anymore - Chapter 21; The morning after I brought my 90-year-old Dad home from the hospital, Mom called me to say that he was not feeling at all well. My nagging intuition insisted that I visit Dad and spend some private time with him. Finding Dad awake and resting in his bed, I struggled to find my voice. Sitting beside him, I asked, SHow are you feeling this morning? SOh, I "m so-so, he sighed, as a tear rolled from his eye on to the pillow that cradled his head. SReally tired of all of this and worried about your mother. She "s having a hard time with everything. We stayed there in silence ”just being together for a few moments.Holding his hand, the heavy words finally left my mouth. SYou know, Dad, you can trust me to be sure that Mom is okay. I will take care of her, no matter what. He responded quietly, SI know. Studying and caressing my dad "s hand, I knew there was one more important conversation that the voice in my heart insisted upon. SDad, I know that this is getting to be really tough for you. If staying here becomes too hard, it "s okay to let go... During the following few weeks I watched my 89 year old Mom experience a renewed sense of purpose and increased strength as she doted on my dad and met his needs, as best she could. Some days were better than others. Most nights were difficult when Dad "s heart pain was significantly worse and his level of anxiety escalated. Often my mom would pass the hours by reading to Dad. Although her eyesight was clouding, she still managed to read the newspaper, column by column, or inspirational short stories she found in the stack of magazines beside their bed. Amazingly, dawn nearly always brought ease and comfort for them both. And so the nights and days continued ----- REFLECTION; Difficult subjects sometimes need to be discussed. You might be asked by others to deliver bad news ”news of someone "s death, a life-altering diagnosis, or even the necessity for a change in residence. Each conversation carries the potential for unleashed emotions. My advice? No matter how difficult or emotional, don "t leave words left unsaid. People, if capable of understanding, deserve information. Often, they are much stronger than we realize.Words are powerful. They carry courage, condemnation, reassurance or permission. Choose them wisely as your words may be the ones that bring freedom from pain or suffering. It "s tough, but I know you can do it and if you listen to that voice inside, you will know exactly the right time and the right words.Be Strong!




Finding Grace in Caregiving


Book Description

Finding Grace in Caregiving arises out of Bradley Hanson’s quest for grace in caregiving his wife, Marion, who has Alzheimer’s Disease. Hanson knows from long experience that caregiving someone with dementia is very tiring and stressful. In search of spiritual practices that would foster patience and kindness, he turned to Scripture for guidance. The heart of the book is reflection on the qualities that St. Paul calls the fruit of the Spirit: love, joy, peace, patience, kindness, generosity, faithfulness, and gentleness. Drawing also on his personal interviews with others across the country who care for someone with some form of dementia, Hanson gives caregivers encouragement, guidance, and hope. Those of us who do long-term caring for someone with dementia, whether we are a family member or professional caregiver, generally try to be patient and kind. Yet the stress and fatigue of long-term caregiving may lead us at times to erupt with anger. Since caring for his beloved wife, Marion, since her Alzheimer’s diagnosis in 2010, Brad Hanson has looked to what St. Paul calls the fruit of the Spirit in strengthening his kindness.