The Ethics and Politics of Community Engagement in Global Health Research


Book Description

Drawing on a growing consensus about the importance of community representation and participation for ethical research, community engagement has become a central component of scientific research, policy-making, ethical review, and technology design. The diversity of actors involved in large-scale global health research collaborations and the broader ‘background conditions’ of global inequality and injustice that frame the field have led some researchers, funders, and policy-makers to conclude that community engagement is nothing less than a moral imperative in global health research. Rather than taking community engagement as a given, the contributions in this edited volume highlight how processes of community engagement are shaped by particular local histories and social and political dynamics, and by the complex social relations between different actors involved in global public health research. By interrogating the everyday politics and practices of engagement across diverse contexts, the book pushes conversations around engagement and participation beyond their conventional framings. In doing so, it raises radical questions about knowledge, power, expertise, authority, representation, inclusivity, and ethics and to make recommendations for more transformative, inclusive, and meaningful community engagement. This book was originally published as a special issue of the Critical Public Health journal.




Global Health Research in an Unequal World


Book Description

This title is available as an Open Access eBook for free from CABI's eBook platform. Visit their website at www.cabi.org/cabebooks/ebook/20163308509. This book is a collection of fictionalized case studies of everyday ethical dilemmas and challenges encountered in the process of conducting global health research in places where the effects of political and economic inequality are particularly evident. It is a training tool to fill the gap between research ethics guidelines and their implementation "on the ground." The cases focus on "relational" ethics: ethical actions and ideas that continuously emerge through relations with others, rather than being determined by bioethics regulation. They are based on stories and experiences collected by a group of social anthropologists who have worked with leading transnational medical research organizations across Africa in the past decade. Accompanied by guidelines, discussion questions and selected further readings, the book provides a flexible resource for training and self-study for people engaged in health research with, universities, international collaborative sites and NGOs - and for everyone interested in the realities of global health research today.







Ethical Issues in Community and Patient Stakeholder–Engaged Health Research


Book Description

This book provides in-depth analyses of a wide range of topics surrounding ethical issues in community and patient stakeholder–engaged health research, and highlights where consensus exists, is emerging, or remains elusive. Topics in this book cover the history of stakeholder engagement in health research; how codes of ethics and regulations have (or have not) addressed stakeholder engagement; how to promote equitable collaboration; the ethical perspectives of different stakeholders; and the unique challenges posed by stakeholder- engaged research to the protection of human research participants and the research ethics review process. The book includes discussion of unique issues that arise in stakeholder engagement relevant to different populations, settings, and research designs. This book is relevant for anyone with a role or interest in stakeholder-engaged research, including patient and community research partners; academic researchers; research ethics scholars and educators; and funders.




Equity in Global Health Research


Book Description

This thoughtful book offers unique insights on global health research, drawing attention to the equity choices embedded in day-to-day patterns and assumptions that shape how people do, think about, and navigate research. It invites readers to position equity as the driving principle and purpose of this field and presents a plethora of examples that demonstrate how to navigate the complex work of centring equity in research. This book provides foundational content on the standards of guiding equity considerations in global health, with chapters adopting cross-disciplinary methods of engaging in equity thinking and doing. Chapters explore applications of six distinct elements of the CCGHR Principles for Global Health Research, including partnering authentically, embracing inclusion, sharing benefits, committing to the future, acting on causes of inequities and practicing humility. Each chapter is accompanied with engaging reflection questions. This book is a pivotal resource for those who perform, use or support global equity health research. It will appeal to students, researchers, policy makers, professionals and funders, as well as those with an interest in and commitment to centring equity in their approaches to doing, using, or supporting health research.




Global Mental Health and Neuroethics


Book Description

Global Mental Health and Neuroethics explores conceptual, ethical and clinical issues that have emerged with the expansion of clinical neuroscience into middle- and low-income countries. Conceptual issues covered include avoiding scientism and skepticism in global mental health, integrating evidence-based and value-based global medicine, and developing a welfarist approach to the practice of global psychiatry. Ethical issues addressed include those raised by developments in neurogenetics, cosmetic psychopharmacology and deep brain stimulation. Perspectives drawing on global mental health and neuroethics are used to explore a number of different clinical disorders and developmental stages, ranging from childhood through to old age. Synthesizes existing work at the intersection of global mental health and neuroethics Presents the work of leading practitioners of global mental health and neuroethics who address clinical issues Looks at clinical decision-making in settings with non-Western values and customs Covers patient empowerment, human rights, cognitive enhancement, and more




Pandemic, Governance and Communication


Book Description

This book focuses on what is arguably the most devastating phenomenon in the history of modern civilization, the COVID-19 pandemic. It shows how, on the one hand, the pandemic has exposed governments the world over to deal with a major health crisis; and, on the other, efforts by the ruling forces to enforce surveillance on people and disciplining them by maneuvering cutting-edge digital technology in the name of security and safety. Second, it explores how the mainstream versions of crisis communication and risk communication face huge challenges during a pandemic. Finally, it analyses how the pandemic propels an extraordinary expansion of infodemic — rapid spread of excessive quantities of misinformation and disinformation of the fake and false variety — and how social media in particular becomes its main tool in causing subversion of the prevalent information order. Engaging, comprehensive and accessible, this book will be of immense importance to scholars and researchers of politics, especially governance and political communication, communication studies, and public health management. It will be vital for public policy professionals, experts in thinktanks, career bureaucrats, and non-governmental organizations.




The Routledge Handbook of Anthropology and Global Health


Book Description

The Routledge Handbook of Anthropology and Global Health provides an overview of the complex relationship between anthropology and global health. The book brings together a diverse group of scholars who consider the intersection of anthropological concerns with health and disease as understood and intervened upon by the field of global health. The book is structured around five sections: (1) social, cultural, and political determinants of health; (2) knowledge production in anthropology and global health; (3) persistent invisibilities in global health; (4) reimagining a critical global health; and (5) new horizons in anthropology and global health. Over these five themes a range of topics is explored, including: rare diseases medical pluralism universal global health protocols HIV health security indigenous communities (non)communicable diseases decolonizing global health The Routledge Handbook of Anthropology and Global Health is an essential resource for upper-level students and researchers in anthropology, global health, sociology, international development, health studies, and politics.




Introduction to Public Health


Book Description

An understanding of public health – the systems, policies and theories that influence the health of the population – is important for decision making across the continuum of care. Introduction to Public Health provides a solid introduction to the key concepts of public health for undergraduate health science students and those new to the public health environment. The text is divided into four sections, covering an overview of public health, the impact of policy and evidence, public health strategies and contemporary issues. With contributions from a multidisciplinary range of experts, this fifth edition has been updated to include emerging public health challenges such as COVID-19, the impact of globalisation, wellbeing and chronic illnesses, as well as a clear understanding of the multidisciplinary nature of public health. - Positions public health concepts within an Australian and global context - Fully updated to reflect current public health policy and environment - Concise and accessible; content is "chunked for easy navigation - Chapter case studies and examples to help illustrate key points - Reflection opportunities to deliver maximum learning - Written by experts from various public health specialties, providing a broad multidisciplinary perspective - Suitable for undergraduate health science courses and a range of postgraduate health science courses including Graduate Certificate, Diploma and Masters in Public Health, Health Service Management and Health Administration - Accompanied by a suite of video interviews with local experts to provide local public health contextStudent resources on Evolve: - Student quizInstructor resources on Evolve: - Case studies + reflection questions - Video interviews - Image bank - New chapter about infectious diseases and COVID-19 - Emerging public health issues including social and emotional wellbeing especially amongst young Australians, global health and contemporary challenges facing public health - Contemporary methods for planning and sustaining public health approaches




Living with Dementia


Book Description

This book addresses current issues in the neuroscience and ethics of dementia care, including philosophical as well as ethical legal, and social issues (ELSIs), issues in clinical, institutional, and private care-giving, and international perspectives on dementia and care innovations. As such, it is a must-read for anyone interested in a well-researched, thought-provoking overview of current issues in dementia diagnosis, care, and social and legal policy. All contributions reflect the latest neuroscientific research on dementia, either broadly construed or in terms of the etiologies and symptoms of particular forms of dementia. Given its interdisciplinary and international scope, its depth of research, and its qualitative emphasis, the book represents a valuable addition to the available literature on neuroethics, gerontology, and neuroscientific memory research.