Roll Models


Book Description

"I thought life was pretty much over." Paul Herman "I was afraid people wouldn''t see me for who I still was." Cathy Green "I didn''t need this to be a better person." Susan Douglas "I wasn''t sure I wanted to live ''this way.''" Kevin Wolitzky The above four people and 49 more just like them went on to find high levels of success and lead satisfying lives. Together they tell 53 stories of moving forward to meet all the challenges, fears, obstacles, and problems common to the life-altering circumstances after spinal cord injury, and doing it without benefit of wealth, large settlements or solid health coverage. Ranging in age from 21 to 67, disabled from three to 48 years they share 931 years of disability experience. Roll Models is a valuable new resource for recently injured people and their families, and for nurses, therapists, psychologists and all other professionals who treat, work with and care for people with spinal cord injury. Straight from the horse''s mouth, survivors explore their experiences with disability and answer many questions those in rehab are asking: Early Thoughts What were your thoughts immediately following injury? What were your initial thoughts and reactions regarding SCI and the future? The First Years What were your biggest fears during that first year or so? How did you get past those early fears? Changes, Obstacles and Solutions How much different are you now, compared to how you were before injury? What''s been the biggest obstacle? How did you address these obstacles? Finding What Works What have been the most difficult things for you to deal with since injury? What''s the worst thing about having an SCI and using a chair? What''s been your biggest loss due to injury? Is SCI the worst thing that ever happened to you? Tell me something about your problem solving skills. How do you deal with stress? What do you do to relieve stress? Salvations, Turning Points and More Was there any one thing that was your "salvation" or key to your success? Was there a turning point for you when you began to feel things were going to get better? What personal factors, habits and beliefs have helped you the most? SCI and Meaning Do you find any meaning, purpose or lessons in your disability? Did any positive opportunities come your way because of your injury? What''s your greatest accomplishment? What are you most proud of? "A wonderful roadmap with many alternate routes to living and thriving with SCI." Minna Hong, SCI survivor and Peer Support Coordinator/Vocational Liaison, Shepherd Center "Avoids the trap of providing a ''one size fits all mentality'' and provides solutions as varied as the individuals used as examples. Accentuates the positives while not sugar coating the difficulties. Essential reading." Jeff Cressy SCI survivor and Director of Consumer and Community Affairs, SCI Project, Rancho Los Amigos "A great resource for people as they venture out into the world, or search for meaning and a deeper, richer life. Filled with examples of real people and their real experiences." Terry Chase, ND, RN; SCI survivor; Patient & Family Education Program Coordinator, Craig Hospital "A wonderful tool for the newly spinal cord injured individual, as well as the therapists and counselors working with them. This certainly hits the mark in capturing important survival strategies." Jack Dahlberg, SCI survivor, Past President of the National Spinal Cord Injury Association "Artfully crafted and organized, Roll Models sensitively portrays life following spinal cord injury. Informative, creative, sensitive, as well as infused with humor and a kind heart. Recommended with my highest accolades."Lester Butt, Ph.D., ABPP, Director of the Department of Psychology, Craig Hospital




Spinal Cord Injury


Book Description

The authors created this self-help guide for those who have suffered a spinal cord injury because "Our experience ... tells us that recovery and successful living after injury go more smoothly when people know what to expect ..." The descriptions of each aspect of life following the injury, from what happens in the hospital and the emotional effects which accompany the trauma, to the new lives experienced afterwards, are supplemented with the personal stories of those who have suffered this injury. Of the three authors, two are psychologists and one is an MD affiliated with the rehabilitation program at Johns Hopkins University School of Medicine. A list of resources is included.




The Physical, Personal, and Social Impact of Spinal Cord Injury


Book Description

This compact book uniquely examines individual lived experience with spinal cord injury (SCI). It provides education and a clearer understanding of the many facets of a SCI -- medical, physical, psychological, cognitive, personal, and social -- in a single compact volume, so that readers learn the effect a SCI can have on a person. The contents also include resources for more specific exploration of information. SCI is a direct public health concern due to not only the cause of the injury itself, most often of violent origin, but also how the individuals perceive themselves after the injury and their participation in society, as well as how society welcomes them back. This compact book has four distinct chapters, each one addressing a different component of SCI with a set of resources to guide the individual with SCI, their family and their friends in the process. It first explores the physical as a means to provide an understanding of what body changes occur. From there, it goes on to examine what is the subjective meaning and lived experience of disability for persons with SCI. The brief ends with an examination of what organizations and programs exist to promote independence and a sense of community for persons with SCI. The Physical, Personal, and Social Impact of Spinal Cord Injury: From the Loss of Identity to Achieving a Life Worth Living is a book with broad appeal. It is written in such a way that it serves as a useful and accessible resource for people who work with persons with SCI, students and instructors with an interest in the subject, as well as persons with SCI themselves and their families.




Genesis, A Portrait of a Spinal Cord Injury


Book Description

Not long after Indiana University had won the NCAA championship in 1981, a young man of twenty was hurriedly riding his bicycle in order to make it on time for a tennis tournament. He had plans for returning to the game after having been sidetracked with the "college life." Although he expected to attend graduate school, he was hoping to play professional tennis one day. He never made it to that tournament. A head-on collision with an automobile had crushed his dreams and also his neck, resulting in a cervical spinal cord injury. As he lay in the intensive care unit unable to move, he listened to music on his Walkman to distract him from his terrible predicament. His favorite tape, "The Lamb" by Genesis, seemed to help keep his attitude positive and hopeful. The following months are torturous and frustrating and he prays for a miracle; near-death experiences that seem too mysterious to comprehend show him that there is life beyond human existence. Then, after finally making it to the rehabilitation unit, he meets other young men in similar situations and they all struggle together to increase their functional abilities. In this rare and candid memoir, Stephen Thompson shares his many tribulations as he experiences new beginnings, both physical and spiritual, and strives for the ultimate goal of any spinal cord injury victim: to walk again.




Wheeling and Dealing


Book Description

Before his motorcycle accident, Travis saw himself becoming a pro football player. Now, paralyzed from the nipple down, he says, "At times it's a pain in the ass-literally and figuratively. But it allows me to not be as threatening to some people [the way I was when] I was still an athlete. Because a lot of times male interaction is done on the basis of pissing contests: I'm bigger, I'm tougher, I'm stronger, I'm smarter. When you're in a chair, they don't look at you like that." At the same time, Travis complains that many people are uncomfortable interacting with him because of his disability. "I would rather you make a mistake and deal with me than not deal with me at all." Meghan is a high-level quadriplegic, living alone, who uses a power wheelchair and requires daily attendant care. She laments, "There are so many people who think we're asexual, we're not pretty, and we're creeps and weirdoes." To dispel this myth, she envisions a fashion show of women in wheelchairs parading down a runway. Meghan has been involved in a number of sexual relationships since sustaining her injury. While she doesn't think her disability has diminished her sexual pleasure, she feels that it has affected her sexual performance: "Well, you can't move it. You can't, like, bump and grind." In 32 unusually frank in-depth interviews like these, the men and women in this book freely discuss their sex lives, their beliefs about God, how they want others to treat them, and whether they want to walk again. In each chapter the author presents their complex voices and comprehensive research about different facets of spinal cord injury (SCI). Wheeling and Dealing explores the extent to which people with spinal cord injury locate their challenges in their physical impairments or in the social environment. Some disagree with those disability activists who focus almost exclusively on the latter, but the author examines this issue in depth. Topics include: --Physical health from degrees of loss of function to problems like pressure sores, temperature regulation, and bladder control. --The stages of psychological adjustment and rehabilitation. --Obstacles to sexual intimacy, treatment of erectile dysfunction, and new sources of sexual pleasure and emotional intimacy. --Religion and spirituality. --Social and political beliefs, with those with SCI weighing in on everything from welfare services to embryonic stem cell research. --Dating, marriage, and parenting. --Friendship networks and social supports; concerns about transportation and accessibility; stigma. --Education, employment, and economic consequences. This book is the recipient of the 2004 Norman L. and Roselea J. Goldberg Prize from Vanderbilt University Press for the best project in the area of medicine.




Spinal Cord Injury


Book Description

A comprehensive approach to complex challenges Here’s the foundational knowledge, skills, and understanding physical therapists need to develop and implement rehabilitation programs for persons living with spinal cord injuries. From coverage of pathology and the pathological repercussions through medical and rehabilitative management to patient and family education, students will be prepared to be effective members of the rehabilitation team. They’ll also understand the importance of psychosocial adaptation and develop insights into their roles in the process.




Spinal Cord Injuries


Book Description

Spinal Cord Injuries: Psychological, Social, and Vocational Adjustment focuses on the process of adjustment to spinal cord injuries, including rehabilitation, medical intervention, and examination of the daily life of persons with this kind of injury. The book first discusses the consequences of spinal cord injury and rehabilitation as a behavior change process, including physical symptoms of spinal cord injury; rehabilitation process and treatment systems; approach to the concept of adjustment; and suicide and self-neglect. The manuscript also deals with the psychological factors in the adjustment to spinal cord injury. Topics include emotional reactions at onset of spinal cord injury; personality characteristics of persons with spinal cord injury; and factors associated with adjustment to spinal cord injury. The publication takes a look at the social factors in the adjustment to spinal cord injury, as well as the social implications of disability, family relationships, recreation, aging, and task of socialization. The book also reviews the variables related with productivity following spinal cord injury and sexuality and spinal cord injury. The effect of the treatment environment on adjustment to spinal cord injury and therapeutics techniques are discussed. The manuscript is a dependable reference for readers interested in the psychological, social, and productivity implications of spinal cord injuries.