Rare Diseases and Orphan Products


Book Description

Rare diseases collectively affect millions of Americans of all ages, but developing drugs and medical devices to prevent, diagnose, and treat these conditions is challenging. The Institute of Medicine (IOM) recommends implementing an integrated national strategy to promote rare diseases research and product development.




Freedom's Orphans


Book Description

Has contemporary liberalism's devotion to individual liberty come at the expense of our society's obligations to children? Divorce is now easy to obtain, and access to everything from violent movies to sexually explicit material is zealously protected as freedom of speech. But what of the effects on the young, with their special needs and vulnerabilities? Freedom's Orphans seeks a way out of this predicament. Poised to ignite fierce debate within and beyond academia, it documents the increasing indifference of liberal theorists and jurists to what were long deemed core elements of children's welfare. Evaluating large changes in liberal political theory and jurisprudence, particularly American liberalism after the Second World War, David Tubbs argues that the expansion of rights for adults has come at a high and generally unnoticed cost. In championing new "lifestyle" freedoms, liberal theorists and jurists have ignored, forgotten, or discounted the competing interests of children. To substantiate his arguments, Tubbs reviews important currents of liberal thought, including the ideas of Isaiah Berlin, Ronald Dworkin, and Susan Moller Okin. He also analyzes three key developments in American civil liberties: the emergence of the "right to privacy" in sexual and reproductive matters; the abandonment of the traditional standard for obscenity prosecutions; and the gradual acceptance of the doctrine of "strict separation" between religion and public life.




The Great Arizona Orphan Abduction


Book Description

In 1904, New York nuns brought forty Irish orphans to a remote Arizona mining camp, to be placed with Catholic families. The Catholic families were Mexican, as was the majority of the population. Soon the town's Anglos, furious at this "interracial" transgression, formed a vigilante squad that kidnapped the children and nearly lynched the nuns and the local priest. The Catholic Church sued to get its wards back, but all the courts, including the U.S. Supreme Court, ruled in favor of the vigilantes. The Great Arizona Orphan Abduction tells this disturbing and dramatic tale to illuminate the creation of racial boundaries along the Mexican border. Clifton/Morenci, Arizona, was a "wild West" boomtown, where the mines and smelters pulled in thousands of Mexican immigrant workers. Racial walls hardened as the mines became big business and whiteness became a marker of superiority. These already volatile race and class relations produced passions that erupted in the "orphan incident." To the Anglos of Clifton/Morenci, placing a white child with a Mexican family was tantamount to child abuse, and they saw their kidnapping as a rescue. Women initiated both sides of this confrontation. Mexican women agreed to take in these orphans, both serving their church and asserting a maternal prerogative; Anglo women believed they had to "save" the orphans, and they organized a vigilante squad to do it. In retelling this nearly forgotten piece of American history, Linda Gordon brilliantly recreates and dissects the tangled intersection of family and racial values, in a gripping story that resonates with today's conflicts over the "best interests of the child."




Orphan Trains


Book Description

"From 1850 to 1930 America witnessed a unique emigration and resettlement of at least 200,000 children and several thousand adults, primarily from the East Coast to the West. This 'placing out,' an attempt to find homes for the urban poor, was best known by the 'orphan trains' that carried the children. Holt carefully analyzes the system, initially instituted by the New York Children's Aid Society in 1853, tracking its imitators as well as the reasons for its creation and demise. She captures the children's perspective with the judicious use of oral histories, institutional records, and newspaper accounts. This well-written volume sheds new light on the multifaceted experience of children's immigration, changing concepts of welfare, and Western expansion. It is good, scholarly social history."—Library Journal




Nelson Vs. the United States of America


Book Description

The book recounts day by day how the FBI investigators somehow centered the entire extortion plot around Nelson and another innocent man whose only mistake was to spend fifteen minutes chatting by the lake, and then to stop at a fast food restaurant for a hamburger. Nelson fit the profile that the FBI had in mind - a long pony tail, a cellular phone, and a red Corvette which he liked to drive fast. From this harmless set of facts grew an inconsistent FBI surveillance log, incredibly biased misstatements of the truth, and wholly contrived witness statements, all elaborately tailored to inplicate Nelson. Other evidence of Nelson's innocence and the unreliability of the existing evidence was simply ignored, including an FBI wiretap conversation between the real extortionist and his accomplice discussing the extortion plot in detail. The real extortionist admitted that he had no idea who the FBI had arrested. Nevertheless, Nelson was indeed arrested with his photo plastered all over the Phoenix newspapers. Nelson's life would never be the same.




United States Reports


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The American State Reports


Book Description