Women's Experiences with HIV/AIDS


Book Description

Meet the women behind the statistics!Women's Experiences with HIV/AIDS: Mending Fractured Selves examines the impact of HIV/AIDS on women, the fastest-growing subgroup of the HIV-infected population of the United States. Based on interviews with HIV-infected women, the book gives voice to their experiences. This powerful text offers a firsthand view of what it is like to live day-to-day as a woman with the added burden of HIV/AIDS.Women's Experiences with HIV/AIDS is a powerful and compelling look at the day-to-day struggles of 37 women infected with HIV. Their stories detail their ongoing effortswith varying degrees of successto come to grips with the disease as they try to rebuild their lives. Through qualitative analysis, the book demonstrates the importance of relational resources, such as AIDS activism, support groups, and social support. It also addresses potential problems for women associated with caregiving and presents ethnographic research findings on the complex factors that affect women with HIV (socioeconomic status, sexual preference, lifestyle differences). Women's Experiences with HIV/AIDS also addresses research topics such as: how HIV infection affects a woman's sense of self how women repair disruption and restore identities the limits to women's coping strategies and whether those strategies still work if women become functionally impaired or develop AIDS how women's structural and social environments facilitate or impede repair the role of women's informal networks in biological disruption and repair A rare look at the experience of women infected with HIV (most studies focus on male samples), Women's Experiences with HIV/AIDS is an invaluable academic resource as a course supplement in the fields of medical sociology, women's studies, public health, and community health, and is an enlightening read for everyone interested in HIV/AIDS research.




Women, Motherhood and Living with HIV/AIDS


Book Description

There are about 34 million people worldwide living with HIV/AIDS. Half are women. There has been a dramatic global increase in the rates of women living with HIV/AIDS. Among young women, especially in developing countries, infection rates are rapidly increasing. Many of these women are also mothers with young infants. When a woman is labeled as having HIV, she is treated with suspicion and her morality is being questioned. Previous research has suggested that women living with HIV/AIDS can be affected by delay in diagnosis, inferior access to health care services, internalized stigma and a poor utilization of health services. This makes it extremely difficult for women to take care of their own health needs. Women are also reluctant to disclose their HIV-positive status as they fear this may result in physical feelings of shame, social ostracism, violence, or expulsion from home. Women living with HIV/AIDS who are also mothers carry a particularly heavy burden of being HIV-infected. This unique book attempts to put together results from empirical research and focuses on issues relevant to women, motherhood and living with HIV/AIDS which have occurred to individual women in different parts of the globe. The book comprises chapters written by researchers who carry out their projects in different parts of the world, and each chapter contains empirical information based on real life situations. This can be used as evidence for health care providers to implement socially and culturally appropriate services to assist individuals and groups who are living with HIV/AIDS in many societies. The book is of interest to scholars and students in the domains of anthropology, sociology, social work, nursing, public health & medicine and health professionals who have a specific interest in issues concerning women who are mothers and living with HIV/AIDS from cross-cultural perspective.




Birth in the Age of AIDS


Book Description

Birth in the Age of AIDS is a vivid and poignant portrayal of the experiences of HIV-positive women in India during pregnancy, birth, and motherhood at the beginning of the 21st century. The government of India, together with global health organizations, established an important public health initiative to prevent HIV transmission from mother to child. While this program, which targets poor women attending public maternity hospitals, has improved health outcomes for infants, it has resulted in sometimes devastatingly negative consequences for poor, young mothers because these women are being tested for HIV in far greater numbers than their male spouses and are often blamed for bringing this highly stigmatized disease into the family. Based on research conducted by the author in India, this book chronicles the experiences of women from the point of their decisions about whether to accept HIV testing, through their decisions about whether or not to continue with the birth if they test HIV-positive, their birthing experiences in hospitals, decisions and practices surrounding breast-feeding vs. bottle-feeding, and their hopes and fears for the future of their children.




Counselling for Maternal and Newborn Health Care


Book Description

The main aim of this practical Handbookis to strengthen counselling and communication skills of skilled attendants (SAs) and other health providers, helping them to effectively discuss with women, families and communities the key issues surrounding pregnancy, childbirth, postpartum, postnatal and post-abortion care. Counselling for Maternal and Newborn Health Careis divided into three main sections. Part 1 is an introduction which describes the aims and objectives and the general layout of the Handbook. Part 2 describes the counselling process and outlines the six key steps to effective counselling. It explores the counselling context and factors that influence this context including the socio-economic, gender, and cultural environment. A series of guiding principles is introduced and specific counselling skills are outlined. Part 3 focuses on different maternal and newborn health topics, including general care in the home during pregnancy; birth and emergency planning; danger signs in pregnancy; post-abortion care; support during labor; postnatal care of the mother and newborn; family planning counselling; breastfeeding; women with HIV/AIDS; death and bereavement; women and violence; linking with the community. Each Session contains specific aims and objectives, clearly outlining the skills that will be developed and corresponding learning outcomes. Practical activities have been designed to encourage reflection, provoke discussions, build skills and ensure the local relevance of information. There is a review at the end of each session to ensure the SAs have understood the key points before they progress to subsequent sessions.




Reducing the Odds


Book Description

Thousands of HIV-positive women give birth every year. Further, because many pregnant women are not tested for HIV and therefore do not receive treatment, the number of children born with HIV is still unacceptably high. What can we do to eliminate this tragic and costly inheritance? In response to a congressional request, this book evaluates the extent to which state efforts have been effective in reducing the perinatal transmission of HIV. The committee recommends that testing HIV be a routine part of prenatal care, and that health care providers notify women that HIV testing is part of the usual array of prenatal tests and that they have an opportunity to refuse the HIV test. This approach could help both reduce the number of pediatric AIDS cases and improve treatment for mothers with AIDS. Reducing the Odds will be of special interest to federal, state, and local health policymakers, prenatal care providers, maternal and child health specialists, public health practitioners, and advocates for HIV/AIDS patients. January




Stigma, Discrimination and Living with HIV/AIDS


Book Description

Up until now, many articles have been written to portray stigma and discrimination which occur with people living with HIV/AIDS (PLWHA) in many parts of the world. But this is the first book which attempts to put together results from empirical research relating to stigma, discrimination and living with HIV/AIDS. The focus of this book is on issues relevant to stigma and discrimination which have occurred to individuals and groups in different parts of the globe, as well as how these individuals and groups attempt to deal with HIV/AIDS. The book comprises chapters written by researchers who carry out their projects in different parts of the world and each chapter contains empirical information based on real life situations. This can be used as an evidence for health care providers to implement socially and culturally appropriate services to assist individuals and groups who are living with HIV/AIDS in many societies. The book is of interest to health care providers who have their interests in working with individuals and groups who are living with HIV/AIDS from a cross-cultural perspective. It will be useful for students and lecturers in courses such as anthropology, sociology, social work, nursing, public health and medicine. In particular, it will assist health workers in community health centres and hospitals in understanding issues related to HIV/AIDS and hence provide culturally sensitive health care to people living with HIV/AIDS from different social and cultural backgrounds. The book is useful for anyone who is interested in HIV/AIDS-related stigma and discrimination in diverse social and cultural settings.




Holding on


Book Description

In "Holding On," anthropologist Alyson O Daniel analyzes the abstract debates about health policy for the sickest and most vulnerable Americans as well as the services designated to help them by taking readers into the daily lives of poor African American women living with HIV at the advent of the 2006 Treatment Modernization Act. At a time when social support resources were in decline and publicly funded HIV/AIDS care programs were being re-prioritized, women s daily struggles with chronic poverty, drug addiction, mental health, and neighborhood violence influenced women s lives in sometimes unexpected ways. An ethnographic portrait of HIV-positive black women and their interaction with the U.S. healthcare system, "Holding On" reveals how gradients of poverty and social difference shape women s health care outcomes and, by extension, women s experience of health policy reform. Set among the realities of poverty, addiction, incarceration, and mental illness, the case studies in "Holding On" illustrate how subtle details of daily life affect health and how overlooking them when formulating public health policy has fostered social inequality anew and undermined health in a variety of ways."




Positively Women


Book Description

Profiles the lives of twelve women with AIDS, explores the effects HIV/AIDS has on women's lives, and offers resources for women with the disease




Remaking a Life


Book Description

In the face of life-threatening news, how does our view of life change—and what do we do it transform it? Remaking a Life uses the HIV/AIDS epidemic as a lens to understand how women generate radical improvements in their social well being in the face of social stigma and economic disadvantage. Drawing on interviews with nationally recognized AIDS activists as well as over one hundred Chicago-based women living with HIV/AIDS, Celeste Watkins-Hayes takes readers on an uplifting journey through women’s transformative projects, a multidimensional process in which women shift their approach to their physical, social, economic, and political survival, thereby changing their viewpoint of “dying from” AIDS to “living with” it. With an eye towards improving the lives of women, Remaking a Life provides techniques to encourage private, nonprofit, and government agencies to successfully collaborate, and shares policy ideas with the hope of alleviating the injuries of inequality faced by those living with HIV/AIDS everyday.




Workable Sisterhood


Book Description

Workable Sisterhood is an empirical look at sixteen HIV-positive women who have a history of drug use, conflict with the law, or a history of working in the sex trade. What makes their experience with the HIV/AIDS virus and their political participation different from their counterparts of people with HIV? Michele Tracy Berger argues that it is the influence of a phenomenon she labels "intersectional stigma," a complex process by which women of color, already experiencing race, class, and gender oppression, are also labeled, judged, and given inferior treatment because of their status as drug users, sex workers, and HIV-positive women. The work explores the barriers of stigma in relation to political participation, and demonstrates how stigma can be effectively challenged and redirected. The majority of the women in Berger's book are women of color, in particular African Americans and Latinas. The study elaborates the process by which these women have become conscious of their social position as HIV-positive and politically active as activists, advocates, or helpers. She builds a picture of community-based political participation that challenges popular, medical, and scholarly representations of "crack addicted prostitutes" and HIV-positive women as social problems or victims, rather than as agents of social change. Berger argues that the women's development of a political identity is directly related to a process called "life reconstruction." This process includes substance- abuse treatment, the recognition of gender as a salient factor in their lives, and the use of nontraditional political resources.