Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Caregiving 101


Book Description

“Suffering is a complex phenomenon. So is the experience of caring for people who are suffering, especially if they are loved ones. It is essential to have resources that allow us to better cope with such events and processes. This book is a great contribution in this line.”—Dr. Luis Cruz-Villalobos, author, clinical psychologist, PhD (VU Amsterdam) Nobody is ever ready. When her brother had a stroke, Taffy Cannon was thrust into the realm of caregiving: the medical lingo, the legal paperwork, the spiritual exhaustion. Caregiving 101 offers practical guidance from the author’s own experience, from the formation of a support team to the options for long-term care. Though caregiving decisions can be difficult, Cannon reassures caregivers that they are not alone. Taffy Cannon is also the author of 14 mystery novels.




The Caregiving Journey: Information. Guidance. Inspiration.


Book Description

Our world is currently experiencing a global Caregiving Crisis. If you, like so many others, are increasingly concerned about your loved one's needs as they age, then ask yourself the following questions: How does your loved one see their life playing out? Where do they want to live as they age (in their own home vs. assisted living)? What kind of health do they aspire to be in? What kinds of activities do they want to engage in? If and when your loved one can no longer live independently, what is their preference (i.e., paid in-home help, assisted living or nursing facility)? Is their preference realistic considering their financial situation, and if not, what are the feasible alternatives? The Caregiving Journey goes far beyond the basics of wills and logistical funeral plans-basics many people have in place (especially where children are involved). Rather, you'll be guided and supported to create a well-thought-out plan for those three, five or even 10 or more years when your loved one needs your help because they can no longer live on their own. With the inspiration, practical steps, support, and tools provided inside these pages, you'll be well-equipped to guide your family members and loved ones to the end of their lives with love, ease and grace.Bringing together her 30+ years as a professional market analyst and her personal experience as a live-in caregiver for her mom, author Debbie Howard has integrated her experiences-along with the journeys of over 200 other caregivers-into this book to help you choose your best way forward. Learn more at www.theCaregivingJourney.com.




Hope for the Caregiver


Book Description

There are 65.7 million caregivers in America, making up 29 percent of the U.S. adult population. Where does the caregiver turn when dealing with their own need for encouragement and renewal?




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




Juggling Life, Work, and Caregiving


Book Description

One in four American adult face the challenges of caring for an adult friend or relative. Although caregiving can be a richly rewarding and joyful experience, the role comes with enormous responsibilities-- and pressures. This gentle guide provides practical resources and tips that are easy to find when you need them, whether you're caregiving day to day, planning for future needs, or in the middle of a crisis. Goyer offers insight, inspiration, and poignant stories and experiences of caregivers, including her own as a live-in caregiver for her parents.




The Four Walls of My Freedom


Book Description

A riveting and redemptive family memoir, The Four Walls of My Freedom is Donna Thomson’s account of raising a son with cerebral palsy and a passionate appeal to change the way we think about “the good life.” Donna Thomson’s life was forever changed when her son Nicholas was born with cerebral palsy. A former actor, director, and teacher, Donna became his primary caregiver and embarked on a second career as a disability activist, author, and consultant. Thomson vividly describes her experience in treading delicately through daily care, emergencies, and medical bureaucracy as she and her family cope with her son’s condition while maintaining value and dignity (for Nicholas, too). She brilliantly demonstrates the vital contribution that people with disabilities make to our society and addresses the ethics and economics of giving and receiving care. Featuring an introduction by John Ralston Saul, and two new chapters, The Four Walls of My Freedom is a passionate appeal to change to the way we think about the “good life” that will touch anyone caring for the life of another.




I Love Jesus, But I Want to Die


Book Description

A compassionate, shame-free guide for your darkest days “A one-of-a-kind book . . . to read for yourself or give to a struggling friend or loved one without the fear that depression and suicidal thoughts will be minimized, medicalized or over-spiritualized.”—Kay Warren, cofounder of Saddleback Church What happens when loving Jesus doesn’t cure you of depression, anxiety, or suicidal thoughts? You might be crushed by shame over your mental illness, only to be told by well-meaning Christians to “choose joy” and “pray more.” So you beg God to take away the pain, but nothing eases the ache inside. As darkness lingers and color drains from your world, you’re left wondering if God has abandoned you. You just want a way out. But there’s hope. In I Love Jesus, But I Want to Die, Sarah J. Robinson offers a healthy, practical, and shame-free guide for Christians struggling with mental illness. With unflinching honesty, Sarah shares her story of battling depression and fighting to stay alive despite toxic theology that made her afraid to seek help outside the church. Pairing her own story with scriptural insights, mental health research, and simple practices, Sarah helps you reconnect with the God who is present in our deepest anguish and discover that you are worth everything it takes to get better. Beautifully written and full of hard-won wisdom, I Love Jesus, But I Want to Die offers a path toward a rich, hope-filled life in Christ, even when healing doesn’t look like what you expect.




Everything You Need to Know About Caregiving for Parkinson’s Disease


Book Description

Caregiving for those who suffer from Parkinson’s disease comes with many challenges, from how to deal with guilt and loneliness to avoiding burnout and figuring out what to expect from an unpredictable disease. When giving care, too often caregivers neglect their own well-being. Everything You Need to Know About Caregiving for Parkinson’s Disease is not just about caring for your loved one, but also about taking care of yourself. Lianna Marie served as her mother's caregiver for more than twenty years after she was diagnosed with Parkinson’s disease. Drawing on firsthand experience, her training as a nurse, and the many stories of others she has helped and counseled over the years, Marie shares her wisdom and advice—practical and emotional. Written accessibly and without jargon, Everything You Need to Know provides an essential resource full of useful information for all caregivers of those with Parkinson’s disease.




The Soul of Caregiving (Revised Edition): A Caregiver's Guide to Healing and Transformation


Book Description

2022 Revised Edition Who are the caregivers? We all are, for at the heart of being human is the capacity to care, to reach out to others and explore the relationships we build. The Soul of Caregiving is about us, and how we, as caregivers, serve, even sacrifice, for those in need. I invite you to explore with me how we can partake in a kind of sacred journey exploring our experiences as caregivers. Who will be your guide on this journey? Unlike other pilgrims who have a guide assigned to them, you will soon discover it is your own Soul guiding you. We may be professionally skilled to meet the needs of others, but we must also learn to stop and rest. It is not a waste of time, but rather, a necessity. We need time to ponder, reflect, and grow from our experiences. Not an easy endeavor amid a whirlwind of activity. We, as caregivers, experience vulnerability, helplessness, fears, and pain over the traumatic events we experience because we care. We care about those whom we are called to serve. Compassion fatigue arises because we care. Overview of the Chapters Chapter 1 begins by outlying the tension most caregivers experience: the tension their own needs and the needs of those they care for. I call this tension the Dance of Caregiving. Chapter 2 discusses the importance of discovering interior strengths and values where one discovers Soul. Chapter 3 emphasizes caregivers do not care in a vacuum, as there are broad cultural boundaries and expectations which affect them and shape their behaviors. Chapter 4 describes The Archetype of Caregiving, both its strengths and shadow sides. This archetype also relates to several other leadership archetypes, which are also discussed. Chapter 5 discusses hospitality. This chapter positions the caregiver as the host who experiences three different dimensions of hospitality: to host the stranger, to listen to the stories of the guest, and to reflect on their reactions and experiences. Chapter 6 address the frailty of humankind and the notion that we are wounded healers. Chapter 7 addresses the art of reflection as a fundamental skill for caregivers. Chapter 8 argues that the essential actions of a caregiver are spiritual. Chapter 9 explores how the ordinary becomes spiritual as inner strengths and values give birth to meaning, insight, and transformation. Chapter 10 explores compassion fatigue and its two sisters, secondary traumatic stress disorder and burnout. In this chapter, we learn how to recover from compassion fatigue and burnout by building compassion resilience. At the end of each chapter, the reader is invited to ponder and reflect. Your insights are the gold hidden beneath the sands of confusion. Mining these insights will lead to a greater understanding of your strengths and values. The questions at the end of each chapter help facilitate this process.