A Caregiver's Guide to Communication Problems from Brain Injury or Disease


Book Description

An all-in-one guide for helping caregivers of individuals with brain injury or degenerative disease to address speech, language, voice, memory, and swallowing impairment and to distinguish these problem areas from healthy aging. Advances in science mean that people are more likely to survive a stroke or live for many years after being diagnosed with a degenerative disease such as Parkinson's. But the communication deficits that often accompany a brain injury or chronic neurologic condition—including problems with speech, language, voice, memory, and/or swallowing—can severely impact quality of life. If you are a caregiver coping with these challenges, this all-in-one book can help you and your loved one. Written by a team of experts in speech-language pathology, each chapter focuses on a different aspect of caregiving and features relatable patient examples. Providing answers to common questions, definitions of complex medical terms, and lists of helpful resources, this book also: • touches on expected, age-related changes in communication, memory, swallowing, and hearing abilities, to name a few • offers practical strategies for caregivers to cope with speech, language, and voice problems and to maximize their loved one's ability to communicate • reveals how caregivers can assist their loved ones with swallowing challenges to maintain good nutrition and hydration • provides crucial information on how caregivers can handle grief and take care of themselves during the caregiving process • explains how to incorporate the arts, as well as a loved one's hobbies and interests, into their communication or memory recovery This comprehensive book will allow readers to take a more informed and active role in their loved one's care. Contributors: Marissa Barrera, Frederick DiCarlo, Lea Kaploun, Elizabeth Roberts, Teresa Signorelli Pisano







Neuropalliative Care


Book Description

This comprehensive guide thoroughly covers all aspects of neuropalliative care, from symptom-specific considerations, to improving communication between clinicians, patients and families. Neuropalliative Care: A Guide to Improving the Lives of Patients and Families Affected by Neurologic Disease addresses clinical considerations for diseases such as dementia, multiple sclerosis, and severe acute brain injury, as well discussing the other challenges facing palliative care patients that are not currently sufficiently met under current models of care. This includes methods of effective communication, supporting the caregiver, how to make difficult treatment decisions in the face of uncertainty, managing grief, guilt and anger, and treating the pain itself. Written by leaders in the field of neuropalliative care, this book is an exceptional, well-rounded resource of neuropalliative care, serving as a reference for all clinicians caring for patients with neurological disease and their families: neurologists and palliative care specialists, physicians, nurses, chaplains, social workers, as well as trainees in these areas.







Coping with Concussion and Mild Traumatic Brain Injury


Book Description

A comprehensive guide for improving memory, focus, and quality of life in the aftermath of a concussion. Often presenting itself after a head trauma, concussion— or mild traumatic brain injury (mTBI)— can cause chronic migraines, depression, memory, and sleep problems that can last for years, referred to as post concussion syndrome (PCS). Neuropsychologist and concussion survivor Dr. Diane Roberts Stoler is the authority on all aspects of the recovery process. Coping with Concussion and Mild Traumatic Brain Injury is a lifeline for patients, parents, and other caregivers.




After Brain Injury


Book Description

This workbook has been developed specifically for survivors of brain injury and blast injury. Based on journaling workshops for survivors of traumatic brain injury, it is filled with journaling exercises that guide the user through examining and expressing the many ways that the brain injury has affected and altered their lives. Vignettes by individuals give it a personal touch and also serve as examples of journaling. Users may go through the workbook from front to back or they may select chapters and activities most relevant to their lives and stage of recovery.Sections explore¿¿changing sense of self¿loss, memory and resilience¿altered relationships with family and friends¿anger and emotions¿grief and loss¿facing the future¿building hope¿moving forwardJournaling is a proven therapeutic tool used to explore one¿s inner self by expressing emotions, confronting fears, relieving anxiety, coping with stress, celebrating successes, and preparing for new challenges. By writing for only a few minutes at a time, journalers can heal and cope with crises due to illness, death, or any life-altering event. This is the first journaling workbook developed specially for adults with acquired brain injuries, and it can be used by individuals or facilitated groups. Families will find it helpful as an outlet and coping mechanism for survivors. Clinicians will find it a useful cognitive tool for building communication skills of reading, writing and comprehension. Families and clinicians will find it helpful for promoting insight, self-awareness and goal setting.




Cerebral Palsy


Book Description

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.




CONCUSSION, TRAUMATIC BRAIN INJURY, MTBI ULTIMATE REHABILITATION GUIDE


Book Description

Traumatic Brain Injury is a silent global epidemic, and the outcome of this tragic event spans a wide spectrum of symptoms, future complications and disabilities. While prevention is the cure, it is an undeniable fact that living with Traumatic Brain Injury is the real challenge. The good news, however, is that with the right knowledge and approach, you can live a normal life after any TBI. This book will be your best guide in learning about TBI scientifically and practically, so you can be ready to take the right action at the right time to limit the damage and overcome the challenges that come with it, both as the patient and as the caretaker. - back cover




101 Tips for Recovering from Traumatic Brain Injury


Book Description

Kelly Bouldin Darmofal suffered a severe TBI in 1992; currently she holds a Masters in Special Education from Salem College, NC. Her memoir Lost In My Mind: Recovering From Traumatic Brain Injury (TBI) tells her story of tragedy and triumph. Kelly will be teaching "TBI: An Overview for Educators" at Salem College. Kelly's "tips" were learned during two decades of recovery and perseverance; they include:Ways to avoid isolation and culture shock post-TBITips for staying organized in the face of instant chaosStrategies for caretakers and teachers of TBI survivorsLife philosophies that reject despairHow to relearn that shoes must matchWhy one alarm clock is never enough, andA breath of humor for a growing population with a "silent illness"--TBI Those who suffer from TBI should benefit from Kelly Darmofal's advice. She speaks often of the value of a sense of humor in dealing with TBI symptoms and quotes Viktor Frankl who believed that humor was one of the "...soul's weapons in the fight for self preservation." I strongly recommend her work. --Dr. George E. Naff, NCC, LPC, Diplomate in Logotherapy Kelly is a wonderful resource about TBI for survivors, caregivers, teachers, and the entire community. The wisdom gained from her own experience makes her believable; the frankness and sense of humor that she reveals as she writes makes her authentic... Kelly and her publications have become a trusted resource for our clients who are surviving from a TBI. --Barbara Saulpaugh, Regional Executive Director, CareNet Counseling, an affiliate of Wake Forest Baptist Health Learn more at www.ImLostInMyMind.com From Loving Healing Press www.LHPress.co ÿ




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/