A Family Caregiver Speaks Up


Book Description

As featured on The Today Show--the adward-winning advocate for family caregivers tells her own story and shows how you too can learn to speak up for yourself, your loved one, and all family caregivers.




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




Always on Call


Book Description

This substantially updated book presents an intimate look at the world of family caregiving through compelling narratives by caregivers that capture the intensity of the caregiving experience, while chapters by noted health care professionals analyze the impact of caregiving, urge more professional advocacy on behalf of caregivers, and offer insightful suggestions for building partnerships for change and fostering improvement.




The Caregiving Trap


Book Description

"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy




Hope for the Caregiver


Book Description

There are 65.7 million caregivers in America, making up 29 percent of the U.S. adult population. Where does the caregiver turn when dealing with their own need for encouragement and renewal?




Activities for the Family Caregiver


Book Description

Caregiving is hard. For most families, it is an unexpected change to your life that you make without question because you are caring for a loved one. Let us help you make things a little easier with common sense and proven ideas. A unique blend of decades of long term care experience and quality of life experience and two decades of caring for a loved one at home led to the Activities for the Family Caregiver: Caregiving 101 book. The book offers information and insight to enhance quality of life for family caregivers and their loved ones. Whether it is heart disease, cancer, stroke, COPD, ALS, Parkinson's, dementia, Alzheimer's or any issue where you are forced to care for someone, we can help. Learn new communication and engagement strategies to improve time spent with your loved one. Gain new insight as you learn the "how to's" and "why" techniques of activities of daily living and leisure. Discover how to turn daily activities and routines into opportunities to start some joy. Written by nationally-recognized leaders, Activities for the Family Caregiver: Lewy Body Dementia: How to Engage / How to Live provides much-needed information to address the unique social needs of those with LBD and those who care for them. TOPICS COVERED IN THIS BOOK Lewy Body Dementia Overview Family, Friends and the Benefits of Activities Know Your Loved One-Information Gathering and Assessment Communicating and Motivating for Success Customary Routines and Preferences Planning and Executing Activities Leisure Activity Categories - Types, Topics, and Tips Activities of Daily Living - Tips and Suggestions Home Preparation Personal History Form




Already Toast


Book Description

The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.




Caring for the Family Caregiver


Book Description

Caring for the Family Caregiver examines the high cost and poorly addressed exigencies of the family caregiver in chronic illness, including health literacy, palliative care, and health outcomes, through the prism of communication. This book uses an interdisciplinary approach to identify the impact of communication and its burdens on the caregiver and presents four caregiver profiles: the Manager, Carrier, Partner, and Lone caregiver, each emerging from a family system with different patterns of conversational sharing and expectations of conformity. By synthesizing current data assessing the experiences of caregivers, as well as integrating the narrative experiences of a range of caregivers living through a variety of illnesses and their specific demands, the authors deliver an unflinching gaze at the journey of the caregiver. With an author team comprised of three health communication researchers and a nurse and health literacy expert, this volume integrates literature addressing caregiver needs and burdens, communication theory and practice, palliative care and health literacy research, and the real stories of caregivers. Caring for the Family Caregiver presents the groundbreaking concept of the Caregiver Types and an innovative set of support resources to facilitate improved pathways to better care for the caregiver, making it an essential resource for providers, students, clinicians, policy makers and family caregivers alike.




Love, Honor and Value


Book Description

This book is about family caregivers--those who are just beginning a caregiving journey and those for whom family caregiving is an integral part of their daily lives.




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/