Authoring Autism


Book Description

In Authoring Autism M. Remi Yergeau defines neurodivergence as an identity—neuroqueerness—rather than an impairment. Using a queer theory framework, Yergeau notes the stereotypes that deny autistic people their humanity and the chance to define themselves while also challenging cognitive studies scholarship and its reification of the neurological passivity of autistics. They also critique early intensive behavioral interventions—which have much in common with gay conversion therapy—and questions the ableist privileging of intentionality and diplomacy in rhetorical traditions. Using storying as their method, they present an alternative view of autistic rhetoricity by foregrounding the cunning rhetorical abilities of autistics and by framing autism as a narrative condition wherein autistics are the best-equipped people to define their experience. Contending that autism represents a queer way of being that simultaneously embraces and rejects the rhetorical, Yergeau shows how autistic people queer the lines of rhetoric, humanity, and agency. In so doing, they demonstrate how an autistic rhetoric requires the reconceptualization of rhetoric’s very essence.




See It Feelingly


Book Description

“We each have Skype accounts and use them to discuss [Moby-Dick] face to face. Once a week, we spread the worded whale out in front of us; we dissect its head, eyes, and bones, careful not to hurt or kill it. The Professor and I are not whale hunters. We are not letting the whale die. We are shaping it, letting it swim through the Web with a new and polished look.”—Tito Mukhopadhyay Since the 1940s researchers have been repeating claims about autistic people's limited ability to understand language, to partake in imaginative play, and to generate the complex theory of mind necessary to appreciate literature. In See It Feelingly Ralph James Savarese, an English professor whose son is one of the first nonspeaking autistics to graduate from college, challenges this view. Discussing fictional works over a period of years with readers from across the autism spectrum, Savarese was stunned by the readers' ability to expand his understanding of texts he knew intimately. Their startling insights emerged not only from the way their different bodies and brains lined up with a story but also from their experiences of stigma and exclusion. For Mukhopadhyay Moby-Dick is an allegory of revenge against autism, the frantic quest for a cure. The white whale represents the autist's baffling, because wordless, immersion in the sensory. Computer programmer and cyberpunk author Dora Raymaker skewers the empathetic failings of the bounty hunters in Philip K. Dick's Do Androids Dream of Electric Sheep? Autistics, some studies suggest, offer instruction in embracing the nonhuman. Encountering a short story about a lonely marine biologist in Antarctica, Temple Grandin remembers her past with an uncharacteristic emotional intensity, and she reminds the reader of the myriad ways in which people can relate to fiction. Why must there be a norm? Mixing memoir with current research in autism and cognitive literary studies, Savarese celebrates how literature springs to life through the contrasting responses of unique individuals, while helping people both on and off the spectrum to engage more richly with the world.




Neuroqueer Heresies


Book Description

The work of queer autistic scholar Nick Walker has played a key role in the evolving discourse on human neurodiversity. Neuroqueer Heresies collects a decade's worth of Dr. Walker's most influential writings, along with new commentary by the author and new material on her radical conceptualization of Neuroqueer Theory. This book is essential reading for anyone seeking to understand the foundations, terminology, implications, and leading edges of the emerging neurodiversity paradigm.




Autistic Intelligence


Book Description

Examines the diagnostic process to question how we understand autism as a category and to better recognize its intelligence and uncommon sense. As autism has become a widely prevalent diagnosis, we have grown increasingly desperate to understand it. Whether by placing baseless blame on vaccinations or seeking a genetic cause, Americans have struggled to understand what autism is and where it comes from. In Autistic Intelligence, Douglas Maynard and Jason Turowetz focus on a different origin of autism: the diagnostic process. By looking at how autism is diagnosed, they ask us to question the norms we use to measure autistic behavior against, why we understand autistic behavior as disordered, and how we go about assigning that disorder to particular people. To do so, the authors take a close look at a clinic in which children are assessed for and diagnosed with autism. Their research draws on hours observing assessment evaluations among psychologists, pediatricians, parents, and children in order to make plain the systems, language, and categories that clinicians rely upon when making their assessments. Those diagnostic tools determine the kind of information doctors can gather about children, and indeed, those assessments affect how children act. Autistic Intelligence shows that autism is not a stable category, but the result of an interpretive act, and in the process of diagnosing children with autism, we often miss all of the unique contributions they make to the world around them.




Neurodiversity Studies


Book Description

Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and ‘others’, including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field – neurodiversity studies – will be of interest to people working in all these areas. Chapter 7 of this book is freely available as a downloadable Open Access PDF at http://www.taylorfrancis.com under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.




Representing Autism


Book Description

From concerns about an ‘autism epidemic’ to the MMR vaccine crisis, autism is a source of peculiar fascination in the contemporary media. Author Stuart Murray, himself the parent of an autistic child, contends that for all the coverage, autism rarely emerges from the various images we produce of it as a comprehensible way of being in the world—instead occupying a succession of narrative spaces as a source of fascination and wonder. A refreshing analysis and evaluation of autism within contemporary society and culture, Representing Autism establishes the autistic presence as a way by which we might more fully articulate our understanding of those with the condition, and what it means to be a human. “This is an outstanding volume of empathetic scholarship. . . . Representing Autism is a truly significant piece of cultural criticism about one of the defining conditions of our time.”—Mark Osteen, Loyola College




Autistic Disturbances


Book Description

While research on autism has sometimes focused on special talents or abilities, autism is typically characterized as impoverished or defective when it comes to language. Autistic Disturbances reveals the ways interpreters have failed to register the real creative valence of autistic language and offers a theoretical framework for understanding the distinctive aesthetics of autistic rhetoric and semiotics. Reinterpreting characteristic autistic verbal practices such as repetition in the context of a more widely respected literary canon, Julia Miele Rodas argues that autistic language is actually an essential part of mainstream literary aesthetics, visible in poetry by Walt Whitman and Gertrude Stein, in novels by Charlotte Brontë and Daniel Defoe, in life writing by Andy Warhol, and even in writing by figures from popular culture. Autistic Disturbances pursues these resonances and explores the tensions of language and culture that lead to the classification of some verbal expression as disordered while other, similar expression enjoys prized status as literature. It identifies the most characteristic patterns of autistic expression-repetition, monologue, ejaculation, verbal ordering or list-making, and neologism-and adopts new language to describe and reimagine these categories in aesthetically productive terms. In so doing, the book seeks to redress the place of verbal autistic language, to argue for the value and complexity of autistic ways of speaking, and to invite recognition of an obscured tradition of literary autism at the very center of Anglo-American text culture.





Book Description




We're Not Broken


Book Description

"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language." With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America. Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed. In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum. From education to healthcare, he explores how autistic people wrestle with systems that were not built with them in mind. At the same time, he shares the experiences of all types of autistic people, from those with higher support needs, to autistic people of color, to those in the LGBTQ community. In doing so, Garcia gives his community a platform to articulate their own needs, rather than having others speak for them, which has been the standard for far too long.




Autism's False Prophets


Book Description

A London researcher was the first to assert that the combination measles-mumps-rubella vaccine known as MMR caused autism in children. Following this "discovery," a handful of parents declared that a mercury-containing preservative in several vaccines was responsible for the disease. If mercury caused autism, they reasoned, eliminating it from a child's system should treat the disorder. Consequently, a number of untested alternative therapies arose, and, most tragically, in one such treatment, a doctor injected a five-year-old autistic boy with a chemical in an effort to cleanse him of mercury, which stopped his heart instead. Children with autism have been placed on stringent diets, subjected to high-temperature saunas, bathed in magnetic clay, asked to swallow digestive enzymes and activated charcoal, and injected with various combinations of vitamins, minerals, and acids. Instead of helping, these therapies can hurt those who are most vulnerable, and particularly in the case of autism, they undermine childhood vaccination programs that have saved millions of lives. An overwhelming body of scientific evidence clearly shows that childhood vaccines are safe and does not cause autism. Yet widespread fear of vaccines on the part of parents persists. In this book, Paul A. Offit, a national expert on vaccines, challenges the modern-day false prophets who have so egregiously misled the public and exposes the opportunism of the lawyers, journalists, celebrities, and politicians who support them. Offit recounts the history of autism research and the exploitation of this tragic condition by advocates and zealots. He considers the manipulation of science in the popular media and the courtroom, and he explores why society is susceptible to the bad science and risky therapies put forward by many antivaccination activists.