Cancer in Adolescents and Young Adults


Book Description

This is the first comprehensive book devoted exclusively to cancer in adolescents and young adults. It compiles medical, epidemiological, biological, psychological, and emotional issues of young adults’ oncology. The emphasis is on the differences of the "same" cancer in younger and older patients. Model programs specially designed to care for patients in the age group and surveillance of long-term adverse effects are reviewed.




Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer


Book Description

Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them.




Childhood Cancer and Functional Impacts Across the Care Continuum


Book Description

Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.




Cancer Care for Adolescents and Young Adults


Book Description

Cancer in Adolescents and Young Adults is a practical guide to cancer care in adolescents and young adults. It considers the impact of diagnosis on individuals, and their families, as well as examining the impact on the health professionals responsible for their care. There are sections focussing on the adolescent’s experience of cancer and ongoing care needs during treatment, and on life after cancer, including rehabilitation and palliative care. • Builds on the forthcoming NICE guidelines on Supportive Cancer Care for Children & Young People, and recent Department of Health guidelines & policy initiatives • Adopts an integrated inter-professional approach • Contains evidence-based contributions from leading professionals in cancer care Cancer in Adolescents and Young Adults is an essential resource for all those involved with the provision of care and support for adolescents and young adults with cancer. About the Editors: Dr Daniel Kelly is Reader in Cancer & Palliative Care, Middlesex University, London. Dr Faith Gibson is Senior Lecturer in Children’s Nursing Research, Institute of Child Health, Great Ormond Street Hospital and King’s College London.




Planet Cancer


Book Description

Tapping the collective wisdom of the young adult cancer community Each year, nearly 70,000 young adults between 18 and 40 are diagnosed in the United States with cancer. While there are many sources of information for patients, the special concerns of this age group are rarely discussed. One remarkable exception is PlanetCancer.org. For nearly a decade, those in this “gap” age have sought out this online community for resources, networks, and support from those who have been there and done that. Planet Cancer is an honest, down-to-earth guide to living in this new world, from Diagnosis to Post-Treatment. Each chapter is informed by Planet Cancer’s voice—authoritative, funny, friendly, no-nonsense. Experts address issues from all sides around bedrock “What It’s Really Like” essays: deeply personal, unflinching, and often hilarious pieces written by people who actually experienced on Planet Cancer things like banking sperm, adopting a child, or undergoing brain radiation. The book, enlivened with quotes and real-life stories from Planet Cancer members, gives the uninitiated a sense of community and removes some of the mystery and fear of the unknown. Planet Cancer is now a LIVESTRONG initiative.




This Should Not be Happening


Book Description

What do young adults with cancer need to live full and fulfilling lives? That is the question the latest book from Anne Katz sets out to answer. More than one million people living now were diagnosed with cancer as young adults and, with a five-year survival rate reaching more than 80%, that number is likely to grow in the coming years. This Should Not Be Happening: Young Adults With Cancer tries to make sense of a situation that for many young people doesn't make any sense at all. Written for a younger audience, this new book tackles tough issues head-on and in language young people will understand. From dealing with medical professionals to handling going back to work and school, This Should Not Be Happening offers information and insight on a broad range of issues affecting young people with cancer. Share this book with any of your young adult patients with cancer or refer this book to anyone who is working with a young adult patient population or has a young adult with cancer in their lives.




Sexual Health, Fertility, and Relationships in Cancer Care


Book Description

"This book, from the International Psycho-oncology Society, is the second in a series of brief Companion Guides for Clinicians. The series editors identified a need for a guide to focus on the impact of cancer and oncology treatments on sexual health, fertility and relationships. The topic is approached from a psycho-oncology perspective, i.e. placing the emotional, behavioural and social elements at the centre of the topics covered in the chapters.The aim is to describe approaches and treatments that can be utilised by cancer clinicians, mental health professionals, psycho-oncologists in training and allied psychosocial oncology professionals. It emphasises the importance of multidisciplinary care. The guide is not intended to replace national clinical guidelines and policies but gives a more generic international overview of the important factors and elements that need to be considered when dealing with sexual health, fertility and associated relationship issues for cancer patients at all points on the treatment trajectory. Topics include: management of sexual health; onco-fertility care; relationship issues. It covers standards of good practice across all cancer patients, as well as focussing on the needs of individuals, couples, young people and LGBT groups in a pragmatic format for use in everyday practice.Assessment methods are covered, alongside psychological treatments, covering a wide range of patient ages and types of cancer. Policies, service issues, legal, ethical, confidentiality and communication issues are also covered.This brief pocketbook manual can be used for quick reference. This will suit oncology professionals who decide to look further into a topic on a case-by-case or problem-focussed basis as they undertake clinical work"--




Investing in the Health and Well-Being of Young Adults


Book Description

Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.




Caring for a Young Person with Cancer


Book Description

This book is an accessible, sensitive, and evidence-based resource for partners, parents, and other family members navigating the heartache and challenges of caring for a young adult with cancer. When a young person you love is diagnosed with cancer, the impacts on partners and parents is life-altering. In this book, Anne Katz offers her unique perspective as a counselor to help family members as their child or partner goes through diagnosis, treatment, and the years of survivorship. Interweaving clinical practice with evidence-based tips and interventions, each chapter presents the story of a young person with cancer and how the illness impacts those that love them with Dr. Katz providing gentle, targeted advice throughout. The chapters include individuals from diverse backgrounds, such as people across different ages, gender identities, ethnicities, and sexual orientations, as well as reflective questions, with topics covering treatment decision-making, how to care during treatment, letting go, and a resource section pointing readers to where they can seek help. Written by a leading voice in the field of cancer, the stories and advice provided in this book will help all families and partners apply the lessons learnt to their lived experiences. It will be also of interest to health care providers working with these families, such as clinical social workers and nurses.




Tumors in Adolescents and Young Adults


Book Description

The field of adolescents and young adult (AYA) oncology is experiencing a very challenging time. This book is a guide to the key issues for any clinician and health professional managing AYA with cancer in Europe. Emphasis is on collaboration between adult and pediatric specialists. Authors present their perception of the current state of the most prominent primary issues in AYA oncology. Chapters cover cross-cutting issues such as disease epidemiology, systems of care, access to innovative therapy and late effects of treatment and survivorship for AYA-onset cancers. There are discussions of the latest developments and the most important cancer types for AYA, including the shared perspectives of adult and pediatric specialists. Throughout the book recurrent challenges to the AYA community are exposed and solutions proposed. Tumors in Adolescents and Young Adults is highly recommended to any oncologist or haematologist treating patients aged 15 to 39 diagnosed with cancer. It will also be of interest to other members of the multidisciplinary teams involved with this patient group.