Caregiving for Alzheimer’s Disease and Related Disorders


Book Description

Assisting someone with Alzheimer’s disease or another illness that causes dementia is incredibly demanding and stressful for the family. Like many disabling conditions, Alzheimer’s disease leads to difficulty or inability to carry out common activities of daily life, and so family members take over a variety of tasks ranging from managing the person’s finances to helping with intimate activities such as bathing and dressing. Key coverage in Caregiving for Alzheimer’s Disease and Related Disorders includes: Early diagnosis and family dynamics Emotional needs of caregivers Developmentally appropriate long-term care for people with Alzheimer’s Family caregivers as members of the Alzheimer’s treatment Team Legal and ethical issues for caregivers Faith and spirituality The economics of caring for individuals with Alzheimer’s disease Cultural, racial, ethnic, and socioeconomic issues of minority caregivers Advances in Alzheimer’s disease research Caregiving for Alzheimer’s Disease and Related Disorders offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.




Caring for a Person with Alzheimer's Disease: Your Easy -to-Use- Guide from the National Institute on Aging (Revised January 2019)


Book Description

The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




The Problem of Alzheimer's


Book Description

A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.




Reducing the Impact of Dementia in America


Book Description

As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.




The Busy Caregiver's Guide to Advanced Alzheimer Disease


Book Description

"The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully"--




Alzheimer's Activities


Book Description

Most patients with Alzheimer's disease (AD) benefit from participation in activities, but identifying and planning appropriate activies is often a challenge, especially for family caregivers. This book is packed with creative ideas for everyday and special-occasion activities, caregivers' anecdotes, helpful tips, interesting facts, and encouragement.




Profiles in Caregiving


Book Description

Given medical advances and greater understanding of healthful living habits, people are living longer lives. Proportionally speaking, a greater percentage of the population is elderly. Despite medical advances, there is still no cure for dementia, and as elderly individuals succumb to Alzheimer's Disease or related dementia, more and more people are having to care their elderly parents and /or siblings. Profiles in Caregiving is practical source of information for anyone who teaches caregiving, acts as a caregiver, or studies caregiving. This book discusses recent research on stress factors associated with caregiving, and what factors impact on successful versus non-successful adaptation to the care-giving role. This is an expanding field in gerontology, and is also of interest to personality and social psychologists studying stress and interpersonal relations. Although there are many books on the cause and treatment of dementia, there has been a book that provides a research investigation into the factors associated with effective caregiving to dementia patients. - Conceptualizes caregiving as a multistage career whose impact on the caregiver continues to be felt after in-home care has ceased - Based upon a longitudinal survey of a demographically diverse sample of principal caregivers over a three-year period - Identifies caregivers who are most at-risk for adverse adaptation to the role - Describes preventative and clinical intervention strategies - Identifies post-care risk and issues - Identifies antecedents to successful adaptation - State of the art analytic techniques - Graphic presentation of empirical findings - Renowned multidisciplinary research team




Alzheimer's Medical Advisor


Book Description

As we move through life many of us find ourselves needing to help a family member or friend with a medical condition. If the condition is temporary, our need to help is temporary. However, chronic conditions such as Alzheimer's and other dementias require longer-term, possibly ever-increasing assistance. Problems with thinking and memory lead to new, different, and often challenging behaviors. In addition, caring for someone with Alzheimer's often means helping them deal with other medical problems that are often difficult to recognize. This book is a resource for caregivers of people with Alzheimer's or dementia who are also beginning to experience non-memory-related medical conditions. It addresses 54 medical conditions that caregivers often must deal with when providing care. Each medical condition is addressed in an easy-to-follow, two-page guide that provides basic facts about the medical condition, signs that indicate a possible emergency, tips on providing relief in the home, other related issues to watch out for, and safety tips for the caregiver. Written by experts at the University of North Carolina at Chapel Hill and Duke University, this book is based on the latest clinical knowledge and scientific research on Alzheimer's and the care of Alzheimer's and dementia patients. It includes basic facts about Alzheimer's disease and other dementias and practical guidance when conferring with doctors and nurses, when visiting hospitals, nursing homes, and assisted-living residences, and during the dying process. Also, an entire chapter is devoted to what caregivers need to do to take care of themselves while helping someone with Alzheimer's and related dementia. p.p1 {margin: 0.0px 0.0px 0.0px 0.0px; font: 12.0px Arial}




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/