Children’s Competence to Consent


Book Description




Children’s Rights in Health Care


Book Description

While coordinating the University of Groningen’s Honours College Winterschool/Atelier entitled Children's Rights in Health Care, the need to publish the contributions to this program was generally expressed and confirmed by its participants. The Winterschool/Atelier, successfully organized in recent years, has dealt with many issues concerning the legal position of minor persons – born and unborn – in the context of health care, especially pediatric care. These issues involve matters concerning pediatric treatment, preventive care and predictive medicine, medical research involving children, incompetence and child autonomy, a child’s psychological development, parental responsibility and representation, protective judicial measures, child migration issues, children’s health rights enforcement as well as children’s health interest monitoring and promotion. During the program, leading experts in the fields of law, ethics, medicine, biology, psychology and institutions such as the Dutch Child & Hospital Foundation, the Child Protection Board, Save the Children, and UNICEF shared their views on normative standards, practical experiences, significant developments, challenging ideas, silent dreams and inevitable realities. As a result, the Children's Rights in Health Care program provided opportunities for a profound dialogue between Honours College students and lecturing scholars on a wide range of topics involving children’s health care interests. This volume contains several analyses of health rights issues related to children. The various chapters provide an overview of this captivating area and may be of special interest to lawyers, health care professionals, ethicists, psychologists, judicial institutions, policy makers, interest groups, students and all others who are concerned with the children’s rights perspective on health care.




MacArthur Competence Assessment Tool for Clinical Research (MacCAT-CR)


Book Description

The MacCAT-CR provides a structured format for capacity assessment that is adaptable to the particulars of any given research project. With the introduction of the MacCAT-CR, researchers enrolling human participants in their studieshave available for the first time a reliable and valid means of assessing their potential subject's capacity to consent to participation. The MacCAT-CR can typically be administered in 15-20 minutes. Beginning with project-specific disclosures to potential participants, the MacCAT-CR measures the four generally accepted components of decision-making competence: understanding, appreciation, reasoning, and the ability to express a choice. Quantification of subjects' responses permits comparisons across subjects and subject groups, and allows the MacCAT-CR to be used for not only for screening individual participants but also for conducting research on the characteristics of subject populations and for assessing the effectiveness of interventions designed to increase subjects' capacities.




Ethical Conduct of Clinical Research Involving Children


Book Description

In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.




Social Competence in Children


Book Description

In this book, readers will discover a developmental view of social functioning in children at different stages. Chapters are based in transactional theory in that the environment plays a role in the development of social competence skills as well as the biological contributions the child brings to his/her experiences. The familial and school contributions to social understanding are discussed in this volume.




Social Skills of Children and Adolescents


Book Description

This scholarly yet highly readable and practical text systematically covers the importance, development, assessment, and treatment of social skills of children and adolescents. Combining scientific rigor with a highly approachable and readable style of writing to create a practical and unique book, this volume provides a comprehensive overview of the increasingly important topic of child and adolescent social skills. A wide variety of tables, figures, and practical step-by-step guides enhance the material presented, making it particularly useful for practitioners while offering an extensive array of recent research and models of interest to researchers. The authors present a solid foundation of scientific knowledge written in a manner accessible to nonscientists and having ample practical implications and examples for educational and clinical practice. The book is divided into two parts--the first features a foundation for conceptualizing and assessing child and adolescent social skills, whereas the second focuses on the arena of intervention. An up-to-date and unique addition to the literature, this volume will be of interest to professionals who work with or study children across several disciplines including school and clinical child psychology, special education, counseling, and social work. Although many books and other professional materials on the social competence of children and adolescents are presently available, the knowledge regarding these social skills is expanding rapidly, and there is a tremendous need to keep it current. This book helps meet this need by not only synthesizing a great deal of recent work in the field, but also by providing new information and evidence that has not yet been published. It also bridges an important gap that sometimes exists between research and practice. For instance, some books on child and adolescent social skills are clearly written for the academician or researcher, and may have little apparent application for the clinician or practitioner. Other materials are written as practical assessment or intervention guides for the clinician/practitioner, yet sometimes lack supporting evidence and rationale. This book is aimed at both arenas.




Ethical Considerations for Research on Housing-Related Health Hazards Involving Children


Book Description

Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.




Deciding for Others


Book Description

This book is the most comprehensive treatment available of one of the most urgent problems in bioethics: decision-making for incompetents.




Children's Consent to Surgery


Book Description

When are children old enough to understand medical information? When are they mature enough to make wise decisions in their best interests? This book explores these questions through detailed qualitative research. It is based on in-depth interviews with children undergoing surgery, their parents and many of the staff caring for them in four city hospitals. In their own words, the child patients challenge many of the accepted ideas about their rights, interests and abilities.




Zero to Eighteen Years


Book Description