Confronting the Existential Threat of Dementia


Book Description

This book explores how dementia acts as an existential threat, both to people diagnosed with the condition, and to their carers. The authors highlight how dementia not only gradually erodes our most fundamental abilities, but that it does so at a time of life when the resources of individuals, couples, and families are already stretched. While over time many people who are living with dementia are able to adapt to their diagnosis and acknowledge its impact on them, for many others it remains too threatening and painful to do this. The book draws on examples from clinical practice and experimental studies to argue that a range of responses, such as searching for long-dead parents or clinging to previous identities, all represent ways in which people living with dementia attempt to protect themselves against the emotional impact of the condition. Finally, the authors set out new ways of intervening to boost psychological resources and thereby support people in facing the existential threat of dementia.




Dementia


Book Description

This book explores how our conception of dementia has changed since its initial discovery, taking in advancements in knowledge that translate into better ways to manage the condition. Providing detailed reports of the latest research, the book explores the myriad forms of dementia. Written in accessible language, it looks at current methods of assessing and diagnosing the condition before turning to contemporary approaches to treatment. Chapters dedicated to often overlooked issues include raising awareness about how dementia affects the lives of those with an intellectual developmental disorder, the fundamental need to consider cultural differences, and the need to fully acknowledge and support informal carers. The final section of the text examines how COVID-19 has spotlighted serious gaps in healthcare for those living with dementia. Fortified with straightforward explanations and references to clinical material throughout, the book is essential reading not only for clinical psychologists in training and those in practice seeking an overview of the field and latest developments, but for a broader audience as well.




Dementia and Psychotherapy Reconsidered


Book Description

"Rik Cheston is one of the pioneers of psychotherapy in dementia. This book integrates his clinical expertise and research, and is brought vividly to life by Rik’s personal reflections and case examples drawn from his vast experience […] this book will be one that I keep coming back to and share." Dr Emma Wolverson, Clinical Psychologist, Senior Lecturer in Ageing and Dementia, Research Lead Dementia, UK "This is a thoughtful and, at times, provocative book, providing knowledge and insights from theoretical and practical perspectives […] Cheston has set out to challenge you; which he does extremely well." Professor Ian Andrew James, Innovations Team, CNTW NHS Trust and honorary professor at the University of Bradford, UK "In this brilliant and timely book, Richard Cheston […] draws upon […] over 30 years of insightful clinical practice to discuss not only psychotherapy but a whole lot more. The book is lucidly written so can be valuable not only to specialists but to anyone whose work or personal life brings them into contact with dementia. Actually, that’s most of us." Tom Dening, Professor of Dementia Research, Mental Health & Clinical Neurosciences, University of Nottingham, UK "This is a clear, accessible and beautifully written legacy of psychotherapeutic endeavour in dementia care […] This book is a seminal text for all who are committed to continually improving their practice in person-centred dementia care." Esme Moniz-Cook Professor Emerita (Clinical Psychology, Ageing and Dementia Care), University of Hull, UK. Founder Chair, now board member INTERDEM There is little opportunity for people living with dementia to talk about their experiences and what is happening to them. This often makes it harder for them to adjust to, and to accept, the diagnosis. Dementia and Psychotherapy Reconsidered introduces a new and distinctive way of thinking about dementia. Each of the four sections is augmented with examples from the author’s 30 years of clinical and research experience and offers an accessible approach from mainstream psychotherapeutic and psychological frameworks that: • Places dementia into a psychological context of loss, threat and change • Addresses the research and clinical evidence underpinning psychotherapy; whether this is delivered to individuals, couples or groups • Sets out a model of adjustment to dementia and outlines how talking about dementia needs to be tailored to the stage of change • Explores how psychotherapy and counselling can be adapted to accommodate the client’s cognitive changes and why we need to acknowledge that talking about dementia is not always possible or desirable Dementia and Psychotherapy Reconsidered is applicable not only to psychotherapists and counsellors, but to clinicians and families who are supporting people living with dementia post-diagnosis and want to find new ways of talking about their experiences. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Richard Cheston worked as a Clinical Psychologist in the NHS before becoming Professor of Dementia Research at the University of the West of England, UK in 2012.




Existential Crises in Educational Administration and Leadership


Book Description

This book examines the theoretical foundations relevant to existential issues in educational leadership and management, taking inspiration from Munch’s painting The Scream. The book considers internationally relevant topics such as the growth of neoliberalism, globalisation, cultural shifts, forced migration and the digitalisation of the socio-cultural sphere and uniquely positions these crises as existential threats, rather than simply political, cultural, or social. The volume explores this complex set of dimensions in existential experience and outlines the implications for research and teaching in educational leadership. By exemplifying the narrative and introspective nature of existential research, the book addresses major aspects of the field including the impact such threats have on organisational studies, policy, administrative structures and practices, and leadership. This timely collection on existential issues in administration and leadership will appeal to academics, scholars, researchers, practitioners and policy-makers. It will also be of great interest for students in teacher education programmes and graduate courses in educational administration and leadership, organisation studies, and educational ethics for broad international use.




HCI and Design in the Context of Dementia


Book Description

Old age is currently the greatest risk factor for developing dementia. Since older people make up a larger portion of the population than ever before, the resulting increase in the incidence of dementia presents a major challenge for society. Dementia is complex and multifaceted and impacts not only the person with the diagnosis but also those caring for them and society as a whole. Human-Computer Interaction (HCI) design and development are pivotal in enabling people with dementia to live well and be supported in the communities around them. HCI is increasingly addressing the need for inclusivity and accessibility in the design and development of new technologies, interfaces, systems, services, and tools. Using interdisciplinary approaches HCI engages with the complexities and ‘messiness’ of real-world design spaces to provide novel perspectives and new ways of addressing the challenge of dementia and multi-stakeholder needs. HCI and Design in the Context of Dementia brings together the work of international experts, designers and researchers working across disciplines. It provides methodologies, methods and frameworks, approaches to participatory engagement and case studies showing how technology can impact the lives of people living with dementia and those around them. It includes examples of how to conduct dementia research and design in-context in the field of HCI, ethically and effectively and how these issues transcend the design space of dementia to inform HCI design and technology development more broadly. The book is valuable for and aimed at designers, researchers, scholars and caregivers that work with vulnerable groups like people with dementia, and those directly impacted.




Losing It


Book Description




Depression


Book Description

Depression, now recognized as a significant source of disability across the globe, is something many of us will be familiar with. This book explores the way people have discussed depression and examines how scientific understanding has led to ways to better appreciate and treat the condition. Through evaluations of contemporary research and literature, this book examines how depression has been depicted throughout history and presents an up-to-date account of how a diagnosis is made. Offering a narrative steeped in cognitive neuropsychology and emotion regulation, chapters explore the different theories behind current explanations of why depression develops and how this understanding drives the different ways to treat and manage the condition. It presents a holistic approach that considers depression in the context of physical health and how it impacts across the lifespan. This book is an essential read for practising and trainee clinical psychologists, but its accessible and readable style will appeal to a broader audience of those looking to further understand depression.




Fictions of Dementia


Book Description

Taking its cues from both classical and post-classical narratologies, this study explores both forms and functions of the representation of dementia in Anglophone fictions. Initially, dementia is conceptualised as a narrative-epistemological paradox: The more those affected know what it is like to have dementia, the less they can tell about it. Narrative fiction is the only discourse that provides an imaginative glimpse at the subjective experience of dementia in language. The narratological modelling of four ‘narrative modes’ elaborates how the paradox becomes productive in fiction: Depending on the narrative perspective taken, but also on the type of narration, the technique for representing consciousness and the epistemic strategy of narrating dementia, the respective narrative modes come with different prerequisites and possibilities for narrating dementia. The analysis of four contemporary Anglophone dementia fictions based on the developed model reveals their potential functions: Fiction allows readers to learn about the challenges of dementia, grants them perspective-taking, it trains cognitive flexibility, and explores the meaning of memory, knowledge, narrative and imagination, and thus also offers trajectories of a cultural coping with dementia.




Communities in Action


Book Description

In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.