Culture Care Meanings, Expressions, and Cultural Lifeways of Urban African American Family Members Caring for Their Child with Autism


Book Description

Delays in the diagnosis and misdiagnosis of African American children with autism represent a health care disparity in the United States, resulting in preventable delays in treatments that improve outcomes. Autism research suggests there are cultural factors that have led to these disparities. Understanding the cultural influencers necessitates an examination of the family, since the embodiment of culture and care is the family group. Outside the dominant culture, there are significant research gaps for understanding family care of the child with autism. One way to bridge the gap of these disparities is to discover from African American family members their care meanings, expressions and practices in the cultural care of their child with autism. An ethnonursing qualitative study, underpinned by the theory of Culture Care Diversity and Universality, was conducted to discover, describe and systematically analyze meanings of care and cultural ways of living among African American family members caring for their child with autism. Interviews and field observations were conducted within the natural environments of eight African American families, for a total of 24 family members, who care for their child with autism, aged 3 to 8 years old. Twenty eight general health and educational care participants were interviewed for an etic perspective of the phenomenon. The qualitative data were analyzed using Leininger's phases of ethnonursing analysis. Four universal themes, one diverse theme and one additional finding emerged from the data. For urban African American family members caring for their child with autism, the major universal culture care themes were: protection of others (child); faith in God and family; respect for and from others; and taking action for their child. A diverse theme of differences in responsible care and dependence on family was found among single and dual parent families. An additional finding of cultural pain was important to the study. Nurses and other autism professionals may be more likely to provide culturally congruent care when taking into account the findings of this study.




Culture Care Meanings, Expressions, and Lifeways of African American Appalachian and European American Appalachian Mothers Caring for Their Children in an Urban Homeless Shelter


Book Description

The purpose of this ethnonursing study was to discover, describe, and systematically analyze universal (common) and diverse care meanings and expressions of mothers caring for their children in an urban homeless shelter within a qualitative paradigm. The goal of the research was to discover unknown nursing knowledge regarding cultural influences on the lifeways of family homelessness among African American Appalachian and European American Appalachian mothers. The domain of inquiry was the culture care meanings, expressions, and lifeways of selected African American Appalachian and European American Appalachian mothers caring for their children within the environmental context of an urban homeless shelter. The research was conceptualized within Leininger's Theory of Culture Care Diversity and Universality. Data collection took place over a six-month period with 12 key participants of Appalachian cultural heritage - 6 African American and 6 European American - and 23 general participants. Observation, participation, and ethnographic interviews were used to collect data in the research context of the participants. A systematic, rigorous, and in-depth data analysis was completed using Leininger's Data Analysis Guide with the four phases of analysis for ethnonursing qualitative research data and the Ethnograph qualitative software program. Evaluation criteria for qualitative research of credibility, confirmability, recurrent patterning, meaning-in-context, redundancy, and saturation were met. Three universal themes, two diverse themes, and two additional findings emerged from the data. Universal care constructs for all mothers were identified, and included culture care as enduring threatening lifeways, being respected, being supported, human connectedness, emotional and spiritual strength, and maintaining hope. Diverse care constructs identified among mothers were culture care as self worth, interdependence, and overcoming suffering. Mother care emerged from the findings as another universal care construct, and meant a mother providing love, nurturance, and discipline to her children, while instilling in them hope for their future. These discoveries, along with Leininger's modes of nursing actions, suggest ways of providing culturally congruent nursing care for African American Appalachian and European American Appalachian mothers caring for their children while experiencing homelessness, in order to promote their health and well-being.




Leininger's Transcultural Nursing: Concepts, Theories, Research & Practice, Fourth Edition


Book Description

The Cornerstone Text on Transcultural Nursing Concepts – Updated with the Latest Advances and Breakthroughs A Doody’s Core Title for 2021! Leininger’s Transcultural Nursing: Concepts, Theories, Research & Practices, Fourth Edition offers theoretical and practical guidance about the provision of client-focused care by integrating cultural values, beliefs, and lifeways into an individualized plan of care. This acclaimed resource presents a global comparative perspective about Western and non-Western cultures and examines the potential future directions for transcultural nursing with insights into rural and urban cultures in the United States including the culture of homeless mothers and children. The book covers important topics such as transcultural nursing, research, and healthcare in Kenya, Southeast Asia, Haiti, Syria, and Taiwan, as well as translational research, globalization, conflict resolution, mental health considerations, Ayurvedic medicine, genetics and genomics in healthcare, integration of care and caring, and an overview of transcultural history, concepts, and principles. Reflecting the work of experts and scholars in the discipline, the Fourth Edition includes twenty-five new chapters. There are also major updates to the Theory of Culture Care Diversity and Universality, Ethnonursing Research Method, Sunrise Enabler, and other enablers. SPECIAL FOR FACULTY: Chapter PowerPoints available online at MHProfessional.com, including learning objectives, figures, and chapter summaries to support classroom use.




Meaning of Culture in Pediatric Rehabilitation and Health Care


Book Description

This insightful volume demonstrates how important an individual's personal, familial, and cultural characteristics are to his or her receptiveness and response to therapy. Meaning of Culture in Pediatric Rehabilitation and Health Care helps occupational therapists and physical therapists develop effective interventions by showing them how to avoid cultural stereotypes and improve communication across cultural boundaries. It helps therapists to define culture, understand the uniqueness of each client's culture, and appreciate how their own medical acculturation affects their view of clients and their families. Invaluable for OTs and PTs at all levels, this new book provides an update on the changing demographics of American society and aids understanding of how culture influences care seeking, caregiving, and acceptance of health care for children. It also includes a bibliography and reviews of additional sources of information on the topic of culture and pediatric rehabilitation to assist readers in further study. Specific advice on educating yourself and your associates about culture and communicating with persons from different cultures is featured to help OTs and PTs offer effective intervention.




Black Children


Book Description

American educators have largely failed to recognize the crucial significance of culture in the education of African-American children, contents Janice E. Hale in the revised edition of her groundbreaking work, Black Children. As African-American children are acculturated at home and in the African-American community, they develop cognitive patterns and behaviors that may prove incompatable with the school environment. Cultural factors produce group differences that must be addressed in the educational process. Drawing on the fields of anthropology, sociology, history, and psychology, Hale explored the effects of African-American culture on a child's intellectual development and suggests curricular reforms that would allow African-American children to develop their interlligence, pursue their strengths, and succeed in school and at work.




Developing Cross-cultural Competence


Book Description

This new edition is filled with helpful updates such as chapter on South Asian roots, open-ended case studies on ethical and culture-based dilemmas, and an expanded discussion of Middle Eastern roots, this is an essential reference for early intervention professionals working with families whose customs, beliefs, and values may differ from their own.




The Helping Tradition in the Black Family and Community


Book Description

This book describes and documents the existence of the black helping tradition, and offers a theory regarding its origin, development, and decline. The book is based on research operating from the fundamental assumption that a pattern of black self-help activities developed from the black extended family, particularly the extended family's major elements of mutual aid, social-class cooperation, male-female equality, and prosocial behavior in children; and that the pattern of black self-help spread from the black extended family to institutions in the wider black community through fictive kinship and racial and religious consciousness.




Developing Cross-cultural Competence


Book Description

This collection of essays for human services professionals examines the role that culture plays in families' and professionals' beliefs, values, and behaviors; explores the difficulties involved in adapting to a different culture; and provides strategies for effective cross-cultural interactions with families of infants, preschoolers, and young children who may have or be at-risk for a disability or chronic illness.--From publisher description.




Social Work Practice with African Americans in Urban Environments


Book Description

The book describes an overarching framework for understanding and practicing urban social work, including definitions and theories that have critical implications for working with people in such communities. It encompasses the contributions of African American pioneers regarding a response to such challenges as poverty, oppression, and racism. Focusing on the theory, practice, and policy aspects of urban social work, the book examines specific subsets of the urban African American population including children, adults, families, and older adults. It addresses the challenges of urban social work in relation to public health, health, and mental health; substance abuse; criminal justice; and violence prevention.




Transforming the Workforce for Children Birth Through Age 8


Book Description

Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.