Culture, Coping and Parents who Have a Child with a Disability


Book Description

Various person and situation factors have been examined as they affect coping in parenting a child with a disability. However, little data exists on the extent to which cultural system influences coping of parents from diverse cultural backgrounds. Informed by Lazarus and Folkman's (1984) transactional model of stress and coping, and Triandis' (1995) concept of individualist/collectivist cultures, the current study examined the ways ofcoping of 62 mothers and fathers from two different cultural systems (Anglo-Australian [individualist] and Greek-Australian [collectivist]). The focus of research was to quantitatively identify the coping resources that were antecedents to the selection of coping strategies and to qualitatively examine the subjective experience of parents from two diverse cultural systems caring for a child with a disability. The relationship between coping resources (depression, self-esteem, social interest, marital relationship) and coping strategies (problem-focused, seeking social support, blame self, wishful thinking and avoidance) was examined using a battery of five questionnaires. The subjective experiences of the parents were elicited via semi-structured interviews. Analysis of the data revealed that depression was not associated with any of the coping strategies for either the mothers or the fathers in the sample. For mothers, associations were found between self-esteem and wishful thinking and avoidance, and between dyadic adjustment and blame self. Social interest was not associated with any of the coping strategies for mothers. Level of education made no difference in the use of coping strategies for mothers. For fathers, associations were noted between self-esteem and wishful thinking, between dyadic adjustment and problem-focused coping, seeking social support, wishful thinking and avoidance. Fathers with high education made more use of problem-focused coping and fathers with low education differed in the use of wishful thinking and avoidance from the high education fathers. Mothers and fathers differed in their use of seeking social support as a coping strategy, with mothers seeking more social support than fathers. Cultural differences were found between fathers in the use of problem-focused and wishful thinking and avoidance coping strategies. Anglo-Australians used more problem-focused coping than their Greek-Australian counterparts. Greek-Australian fathers used more wishful thinking and avoidance than the Anglo-Australian fathers. Anglo-and Greek-Australian mothers did not differ in their use of coping strategies. Qualitative findings indicated both etic and emic experiences. Similar sources of stress, appraisals, coping resources and coping strategies characterised both groups' experiences of caring for their child with a disability. For Greek-Australian mothers and fathers, references to family, responsibility and stigma identified their collectivist cultural background. For the Anglo-Australian mothers and fathers, references to work, social networks and marital relationship identified their individualist cultural background. Overall, the results of the present study supported the relevance of the use of coping resources (social interest, self-esteem, depression, dyadic adjustment) in the study of ways of coping with child disability; and, supported the presence of differences in coping, both between gender, and between membership in a culturally diverse system. It is suggested that future research continues to investigate these resources using populations from other cultural groups and longitudinal designs so that their role in influencing coping under lifelong and uncontrollable circumstances with non-normative populations might be better understood. It is further suggested that health professionals take into consideration cultural differences and factor them into the care of culturally diverse families with children with a disability.




Parenting Matters


Book Description

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.




Professional Collaboration with Parents of Children with Disabilities


Book Description

The work of professionals with children with disabilities affects the children's family, while events at home affect what professionals can achieve with the children. This text describes how professionals can form collaborative relationships with the parents of the children in their care, to optimise the children's development and to enable both family members and professionals to work in the children's interests. It describes experiences of families who have a child with a disability and takes a new look at old assumptions that disability necessarily has a negative effect on families or that families themselves are in need of therapy simply by virtue of having a child with additional needs. This text offers practical insights and guidelines for action by teachers, occupational therapists, physiotherapists, speech pathologists and psychologists. It is a practical text that enables practitioners to offer a high-quality service to children while supporting the family in its role of nurturing their child with special needs.







Coping When a Parent Has a Disability


Book Description

Adolescence is naturally fraught with confusion: social skills, school, sports, love, acne, and a myriad of other issues are challenges every day. Having even one extra phenomenon, like how to deal with complications resulting from a parent's disability, can feel overwhelming. This book presents multiple aspects of disability in a mainstream culture. It will give readers a guide for developing resilience and finding a voice. Special features include a segment on Myths and Facts, as well as an Ask the Specialist section. Readers will gain a better understanding of self, other people, and the subject of disability itself.




A Multicultural Examination of the Relationship Between Coping and Well-being in Parents of Children with Disabilities


Book Description

Prior coping literature has typically focused on Western models, with an emphasis on changing one's environment or situation from an individualistic perspective. However, alongside the increasing cultural diversity in the U.S., there has been a recent movement towards examining collectivistic models of coping in reaction to the exclusion of cultural orientations that consider one's impact on relationships in managing stress. People of Color who have children with disabilities are a highly vulnerable group given their barriers to services and experienced stigma from outside and within their cultural communities. Using the Double ABCX Model (McCubbin & Patterson, 1983) as a framework, this study explored the relationship between caregiver stress and well-being outcomes, while testing the mediating effects of coping. The sample consisted of 386 caregivers of children with disabilities. The majority of the sample were female (96%). Participants completed self-report questionnaires to assess for family strains, stigma, coping, and well-being. Structural equation modeling (SEM) was employed to determine the effects of Individualistic and Collectivistic coping strategies on well-being for both European Americans and People of Color. Engagement, Disengagement, and Collectivistic Coping strategies significantly predicted overall Well-Being. Coping was a partial mediator for many of the relationships between Pile-up factors and Well-Being. People of Color endorsed Collectivistic Coping strategies to a greater degree than European Americans. Results from this study demonstrate the use of bi-cultural coping amongst Caregivers of Color and highlight the utility and importance of considering coping and well-being from a cultural lens in working with this population at large.




Ordinary Families, Special Children


Book Description

This popular clinical reference and text provides a multisystems perspective on childhood disability and its effects on family life. The volume examines how child, family, ecological, and sociocultural variables intertwine to shape the ways families respond to disability, and how professionals can promote coping, adaptation, and empowerment. Accessible and engaging, the book integrates theory and research with vignettes and firsthand reflections from family members.




Textbook of Cultural Psychiatry


Book Description

The textbook offers comprehensive understanding of the impact of cultural factors and differences on mental illness and its treatment.




Coping for Capable Kids


Book Description

Giftedness, coping with problems common to gifted kids, teaching for coping, family functioning and coping,coping strategies, coping skills and dealing with concerns and worries.




Disability and Culture


Book Description

This collection of essays both reframes disability in terms of social processes and offers a global, multicultural perspective on the subject. It explores the significance of mental, sensory and motor impairments in light of fundamental, culturally determined assumptions about humanity.